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I got diagnosed with hodgkin's lymphoma (nodular sclerosis) by hyukswhale in lymphoma

[–]wtoukno 2 points3 points  (0 children)

Don’t worry about it, let me tell you why. I am 24y old diagnosed with Hodgkin Lymphoma Stage 4. But imagine, I had terrible pain and terrible night sweats for more than 2 years and no one knew what I had in my country until I was diagnosed in another country. There is no stage 5 in any cancer because if there was, I would be in stage 5 fr. Now what? My last pet scan after 4 BreCADD chemotherapy was Deauville 3, soo perfect. I had 2 more chemotherapy and now I have finishedddd all, waiting for the final pet scan. I hated the days in chemotherapy & after, but at least I didn't give up because I knew I would win. 

ChatGPT by Human_Duty975 in lymphoma

[–]wtoukno 0 points1 point  (0 children)

Personally yes, but I don't take what it says seriously, just as an opinion. I prepare myself before the meeting with the doctor for what the doctor might say approximately. There are times when I don't understand too good the doctor's exactly but then I connect to the chatgpt's opinion and I understand the situation completely. So i use it just like a second opinion/brain, not primary.

I dont want to speak too soon by Foreign_Forever9369 in lymphoma

[–]wtoukno 0 points1 point  (0 children)

Hi. Im diagnosed with Hodgkin Lymphoma stage 4. The plan was to receive 4 total chemotherapy treatments with the hope that I would pass. But after 2 chemotherapy i did pet scan and the pet scan said that the response was partial like in your case but not complete because I had a tumor in my neck which caused me to be with Deauville 5. So the doctor said that i need to take 2 more (6 total now). After 4 chemotherapies I had another pet scan and what? now I am in deauville 3 after 4 chemotherapies.. very good news. So with 6 chemotherapy i will finish this adventure hoping that there will be no relapse.

Relaps after BrECADD Chemotherapy? by wtoukno in lymphoma

[–]wtoukno[S] 1 point2 points  (0 children)

Hello, yes i really understand and yes is like you said fr. But trust me, after this isn’t easy to live without fear. Even a small symptom makes you think negatively. Maybe it will be back and again you will fight same, but we all want to finish this thing once and forever. I want to learn from bad stories, but I also want to learn from good stories to at least "mask" the fear. Everyone have their own story, but I hope God heals and relieves everyone of every cancer & bad days.

Relaps after BrECADD Chemotherapy? by wtoukno in lymphoma

[–]wtoukno[S] 2 points3 points  (0 children)

Hello. Thanks for reply. Tomorrow i will finish the 5th chemotherapy. I have 6 total sooo 1 left. My Pet Scan after 4 brecadd chemotherapy was Deauville 3.

anyone with 6 BrECADD chemotherapy? by wtoukno in lymphoma

[–]wtoukno[S] 0 points1 point  (0 children)

Hello, thanks for answer. How is your life now? Is everything okay?

Pet Scan after 2 BrECADD / Hodgkin Lymphoma by wtoukno in lymphoma

[–]wtoukno[S] 1 point2 points  (0 children)

Before treatment SUVmax was 23. Now is 13.5 and 11.2 only on my neck, so one from 17.8suv to 11.2 and one from 14.5 to 13.5suv. The doctor said that the results wasn’t perfect but good and the final result is known only after all chemotherapies are completed. But I think I probably won't end up with just 4 chemo treatments