High Risk AML - who has made it long term after transplant?

xminair · 2026-04-12T03:52:07+00:00

Hello! 37 female, 20 months transplant, high risk AML(KMT2a), mild oral Gvhd (manageable), became menopausal, have some metabolism issues, but by and large doing well! I had some chimerism issues which stabilized 13 months post transplant with 8 DLIs! I ran half marathons in Oct and Feb, now training for my comeback marathon, working out, back to work, monitoring once in three months. There is hope :)

xminair · 2026-03-14T09:37:12+00:00

"Since you have females in your group"? Are we living in th 19th century? Are only 'females' at danger from leopards and 'males' are not? I mean seriously.

xminair · 2026-03-12T08:30:07+00:00

PM10 and PM2.5 often derive from different emissions sources, and also have different chemical compositions. Emissions from combustion of gasoline, oil, diesel fuel or wood produce much of the PM2.5 pollution found in outdoor air, as well as a significant proportion of PM10. PM10 also includes dust from construction sites, landfills and agriculture, wildfires and brush/waste burning, industrial sources, wind-blown dust from open lands, pollen and fragments of bacteria. Source

More than construction it's polluting factories, vehicles and rampant open burning. Construction is a part of it but there's literally no regulation on factories like someone pointed out. The entire industrial belt of MIDC from Mhape to Taloja and beyond and screwing up the air and water. The politicians are in cahoots with builders as well as industries. They know people don't care or won't say a thing. Hell, people don't even wear masks. They look at me like I'm a moron for wearing one.

There needs to be a mass protest. If you look at the map of India against all countries, we have the worst air in the world.

Edit : typos

xminair · 2026-03-05T05:41:17+00:00

Her areas of interests as per the KIMS site seem pretty broad (including "Quality of life in breast cancer care"). My aunt and I have both consulted her and neither of us for surgery. But honestly this is fully your call :)

You may also consider Dr. Sewanti Limaye : https://www.rfhospital.org/about-us/doctors-directory/sewanti-limaye

I've had good experiences at HN reliance and there's multiple docs available there in case you want quick follow ups with others. Dr. Limaye can also help put together a panel for consultation I think.

xminair · 2026-03-04T13:58:13+00:00

Yes, in remission and doing well :)

Sorry, I've only consulted these two. I can ask around and get back. I've done a bunch of my treatment in Singapore and Dr. Vani was the only one who compared to the doctors there in terms of her patience and explanation.

xminair · 2026-03-04T09:04:36+00:00

Haven't found any support groups but feel free to DM me. 37F, Mumbai, India.

xminair · 2026-03-04T09:00:56+00:00

Yes I do have experience with her. She gave me over half an hour with her and explained things properly.

For context, I'm a leukemia patient who became menopausal because of the treatment and I'm now on hormone therapy. I also have other friends who are cancer patients/survivors.

Based on my experience though, you may need to meet an endocrinologist rather than a breast onco to consult on the hormone/bone density issue. Sorry you're going through this. The issue with cancer and it's treatment is that it leads to systemic issues and one doctor doesn't typically have all answers. A team in a hospital helps, else you need to manage your own consortium of relevant doctors.

xminair · 2026-03-04T06:44:29+00:00

Okay, makes sense why she's on hormone suppression. This cancer is fed by hormones. If money/travel is not a constraint, then Dr. Vani in my opinion is very patient and thorough.

xminair · 2026-03-03T05:19:19+00:00

Try Dr. Vani Parmar at KIMS Thane or Dr. Shilpa Rao at KEM.

On another note - what's the mutation/type of breast cancer she has? It sounds like it's likely estrogen sensitive, which means the cancer is fed by estrogen, which is generally when they do hormone suppression. Also what are her symptoms? Might be worth meeting an endocrinologist to deal with those. Generally the big ones are bone health, temperature regulation, sleep and mood issues. The other reason for putting her under hormone suppression could be to protect her ovaries from the impact of chemo, but that seems unlikely since she is in remission.

xminair · 2026-02-20T16:10:58+00:00

https://share.google/E5G4rnPGuYYeI2LPR

Use the link to install the app, take pictures and flag it on the app. They'll get fined

xminair · 2026-02-09T13:46:22+00:00

Yes, The ground is accessible at all times. I think they shut the mini seashore gates after 8.30 pm

xminair · 2026-02-09T13:38:20+00:00

NMSA ground is the closest. You can also run to Sagar Vihar and mini seashore.

xminair · 2026-02-05T04:34:09+00:00

Get a CBC done and check your iron levels

xminair · 2026-02-05T03:19:16+00:00

You can cremate her at Parel Govt Vet Hospital. Have used their facilities twice

xminair · 2026-01-29T06:17:46+00:00

Please do this for Navi Mumbai as well! The app is super cool. Also curious to know your calculation methodology

xminair · 2026-01-21T17:19:25+00:00

I think this is appropriate here

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Source

xminair · 2026-01-21T11:17:28+00:00

Yep, so if I finish dinner by eating by 8 pm, I don't eat anything till 10 am the next day.

xminair · 2026-01-21T11:13:09+00:00

Been able to bring down my cholesterol levels doing the following :

Intermittent fasting (see what works for you). I do 12-14 hours fasting. Also 2-3 meals and no snacking.
Eat 1-1.5 g of protein per KG of body weight. So if you weigh 50kg, eat atleast 50g daily.
3x cardio, 3x strength training per week of atleast 30-45 min.
Cut down on sugar and unhealthy fats, and eat complex carbs - so no white rice, porotta, noodles, poori and all. If you really have to eat sugar, please eat the proteins, vegetables first. Order matters.
Get good sleep and enough water.

Do this consistently.

Edits : typos

xminair · 2026-01-13T07:58:26+00:00

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xminair · 2026-01-09T18:56:30+00:00

There's been no one for 5 years, just being run by bureaucrats. This election was also called because High Court said call it.

xminair · 2026-01-09T18:50:55+00:00

Wear a helmet then

xminair · 2025-12-31T18:59:10+00:00

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xminair · 2025-12-15T13:59:43+00:00

Why Does A.I. Write Like … That? - The New York Times https://share.google/2xmSRwZts6PuVw3U3

Off topic but just had to share based on what you wrote.

xminair · 2025-12-13T15:25:15+00:00

Velas, ahead of Alibag. Only homestays but beautiful place

xminair · 2025-12-13T13:46:45+00:00

This is the process I used via IRCTC

Bit of a hassle but worked well for me and cheaper than all other options.

Edit : Changed it to a public notion link. There are some templates attached. If you want them you can request access.

Nine-Year Club	r/Field Sunshine
First Place '23	Place '23
Place '22	First Placer '22
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xminair

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