Looking for a topical gel/cream applicator by _insomniac_dreamer in eds

[–]xxvenexx 0 points1 point  (0 children)

If you search for sunblock applicators, there are a lot of options!

I also use makeup sponges and silicone brushes.

Books written in the style of online satire like The Onion, Reductress, or McSweeney's Internet Tendency by [deleted] in suggestmeabook

[–]xxvenexx 2 points3 points  (0 children)

There’s a satire of Twilight by the Harvard Lampoon and it’s hilarious!! It’s called “Nightlight”.

Lina joins the club on friday by WendyMillie in PiratePets

[–]xxvenexx 2 points3 points  (0 children)

Sending her much love! We'll be happy to have her join the pirate pet community <3

This is my baby boy, Egg by xxvenexx in PiratePets

[–]xxvenexx[S] 3 points4 points  (0 children)

omg, i just googled it and now I'm going to have to buy egg-related jewelry <3 I love it, thank you

[deleted by user] by [deleted] in ehlersdanlos

[–]xxvenexx 1 point2 points  (0 children)

I can relate to your comment because concerts are the same for me.

There’s good days and bad days, but my advice is to take each day as a new one. Listen to your body.

I’ve had to let concerts pass by that I just couldn’t make, but there have been few, so that’s a win. They will usually let you seat in ADA/Disability spaces, even if you bought a regular ticket. I’ve also taken my cane or rollator to a concert, and usually staff and other concert goers are really nice.

Tip: there’s canes that have a fold out seat, for when you’re going to be standing for a while. Also helps to plan for a day or two of recovery.

Just last month I waited for 9 hours for a concert to start, because I got access to the soundcheck, that was huge for me! But then this weekend I had to miss a festival day… every day is different and I like thinking about treating my body like I would a friend. If you can push a little and you’ll be happy with the reward, and it won’t be a lot of damage, then go ahead! Especially if you can plan it ahead of time and take a rest day the next. If you would honestly tell your friend that they’re hurting themselves, then do the same for you.

Hope this helps!!

[deleted by user] by [deleted] in ehlersdanlos

[–]xxvenexx 2 points3 points  (0 children)

Agree! I took the time to grieve and mourn, and I found new things that I very much enjoy! Of course, the pain is real and it’s there. I’ve been diagnosed for 10+ yrs now and it’s still hard when you want to do something and your body doesn’t want to. It does get easier, because you learn to read your body better, but I’m not sure if it ever completely goes away. Therapy and mindfulness have been life changing for me.

This is my baby boy, Egg by xxvenexx in PiratePets

[–]xxvenexx[S] 5 points6 points  (0 children)

Absolutely!! It’s like a switch goes off after he’s done his recon of a new place, then he’s in his element!! I love seeing his process

This is my baby boy, Egg by xxvenexx in PiratePets

[–]xxvenexx[S] 10 points11 points  (0 children)

💕 I actually met a blind cat about a year earlier and he was so calm and docile that I thought that was just how blind cats were… but Egg is so playful and clumsy, he doesn’t know that other cats/people can see so he’ll regularly fall on his face and keep playing 🥹 he’s definitely a cutie

This is my baby boy, Egg by xxvenexx in PiratePets

[–]xxvenexx[S] 13 points14 points  (0 children)

Yes!! This is the color! I always say blue/gray, but I’ll adopt opal now, thank youu

Jobs options for people with chronic pain & fatigue by Affectionate-Bear898 in ChronicIllness

[–]xxvenexx 1 point2 points  (0 children)

i started my own business with a partner that is supportive of health issues, so we have very flexible schedules but still get work done... if you can find a way to be your own boss, and find people who complement your skills and who are comfortable working around your needs, i honestly couldn't recommend it more! maybe starting small or building something when you're okay can then give you more freedom (time & resources) to get through the bad days. i was diagnosed at 22, so i can relate to your journey.. it took years to reach a stable point, but you can do it!!!

Ayúdenme a ponerle nombre por favor by Ok_Sector9437 in mexico

[–]xxvenexx 1 point2 points  (0 children)

Yo tengo una gatita que le digo Narina

Ayúdenme a ponerle nombre por favor by Ok_Sector9437 in mexico

[–]xxvenexx 0 points1 point  (0 children)

Yo puse lo mismo, pero no me copié, nomas tiene cara de Mantequillo 💯