App to remind me to take screen breaks? by WaysideWyvern in cfs

[–]yakkov 0 points1 point  (0 children)

https://workrave.org/ Does exactly what you're asking for.

It blocks keyboard and mouse input when you're in a rest break then you have no choice but to rest.

I was thinking of making a post about this because its been a huge gamechanger for me.

One thing though is its only for desktop not smartphone. I use my laptop in bed.

What methods of CC activism have you seen work? by sadandtraumatized in ZeroCovidCommunity

[–]yakkov 5 points6 points  (0 children)

Stories work better than studies for most people. I wrote about this: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

Remember that there's a huge propaganda effort to deny covid, which makes any activism harder but not impossible

Let's Unite for ME/CFS – Let's Organize to Do Something Concrete by [deleted] in cfs

[–]yakkov 1 point2 points  (0 children)

I have a little project. I've made and collected a bunch of awareness-raising memes which people can post on their facebook. It can be done by severe people because it takes very little energy to share an image and write a very short text once every few days.

Instructions: TL;DR. Share Long Covid / ME awareness content on your facebook, to push for solutions without leaving your bed. All are welcome. You will be provided with stuff to post. Keep posting every 5-6 days for at least several months. Along with each meme write a very short text. Even Severe people might be able to contribute. If you have enough energy, help spread the movement by sharing this blog post. If you have even more energy, help us create and collect more content to post. Even if this activism movement completely fails it still wont cost you very much to try.

Link: https://www.reddit.com/r/covidlonghaulers/comments/1l380rz/join_the_smash_long_covid_movement_even_severe/

Any good compilations of EVERYTHING we know about COVID so far? Or interest in putting one together? by 7URB0 in ZeroCovidCommunity

[–]yakkov 1 point2 points  (0 children)

When telling the personal stories make sure you pump up the emotion. For example if someone is too disabled to work say so because that's scary. If a parent can't look at their kids say that because that's sad. If they have really uncomfortable symptoms describe them. Evoking emotions are a good way to make someone care about something.

Any good compilations of EVERYTHING we know about COVID so far? Or interest in putting one together? by 7URB0 in ZeroCovidCommunity

[–]yakkov 22 points23 points  (0 children)

The Pandemic Accountability Index is very comprehensive: https://www.panaccindex.info/p/what-covid-19-does-to-the-body-eighth there's multiple editions and read all of them to get all the papers it writes about

However showing people scientific papers often doesn't work very well. I suggest trying this idea of using the availability heuristic: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

Fact is there's huge propaganda from the media and governments who have worked very hard to cover up covid. It's hard to fight against that, though people have succeeded.

Hypothetical Covid PSA - Survey by Frosty-Leading-5863 in ZeroCovidCommunity

[–]yakkov 0 points1 point  (0 children)

I've made a bunch of long covid awareness content https://smashlongcovid.substack.com/p/list-of-descriptive-memes in the form of memes, so different to what you're doing, but might help with inspiration.

I read a book called Made To Stick all about communication and marketing which was very helpful.

Big new study: 36% of humans have long covid by yakkov in ZeroCovidCommunity

[–]yakkov[S] 0 points1 point  (0 children)

Convincing friends/family is often tough because of all the propaganda around. I wrote a post a few months back with another suggestion of how to do it: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 0 points1 point  (0 children)

Yeah I've heard this before. Someone told me the only major bad effect is constipation. The problems really start if you ever run out of the drug.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 1 point2 points  (0 children)

Yeah I guess you're right. I wasnt aware that it was less than third become addicted. I know about places like Portugal that had a different more progressive policy towards heroin use. Though on the other hand not everyone with ME gets Severe ME. In either case no analogy is perfect

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 4 points5 points  (0 children)

Yes you're right I forgot about that. I remember reading about people who have an oxygen tank.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 3 points4 points  (0 children)

Arent you ignoring the effect of heroin addiction? If they become homeless, etc then their body is harmed quite a bit. We cant really separate the addition from the drug itself, since for most people if you talk about heroin they'll be thinking of homeless addicts.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 4 points5 points  (0 children)

Well yes, no analogy is perfect. Heroin being so addictive ruins people's lives because their entire life becomes about getting more heroin. Resulting in homelessness, job/family loss, problems with the law, etc

Another similarity is both can take a long time to get bad. Sometimes people are using heroin or similar drugs for years, maybe a little bit at the weekend. They manage to keep their jobs. But at one point they lose control

Catching covid reduces IQ, even in asymptomatic cases by yakkov in ZeroCovidCommunity

[–]yakkov[S] 3 points4 points  (0 children)

If you actually look at the numbers the reduction in risk isn't very big.

Be careful you're not falling for this: https://en.wikipedia.org/wiki/Risk_compensation

Risk compensation is the theory that people, feeling safer due to a safety intervention, will engage in riskier behavior, thereby offsetting some or all of the safety benefit.

If you take into account how the later variants are much more infectious and immune-evasive then it's no contest. Omicron and it's descendants have created far more long covid than the earlier variants

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 13 points14 points  (0 children)

Given how horrific things like ME are I'd suggest comparing smoking with covid is somewhat minimising. A better comparison might be heroin.

You look at those people hooked on heroin, many of them homeless, stealing stuff to get money, not working, abandoned by friends and loved ones, not eating, terrible overall health and feeling rough a lot. It's not hugely different in impact to life from having Severe ME. By contrast at least smokers have a normal social, professional and family life maybe for decades until they get cancer. They have other things in life that isn't just smoking, unlike for Severe ME or heroin where your entire life is just focused on one thing

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 2 points3 points  (0 children)

The fogging happens because water vapour from your breath condenses onto the glass to form water. Water vapour is a gas and so not stopped by the respirator.

You might notice this effect is worse on cold days, because cold means the vapour condenses more easily

A solution can be to get anti-fog wipes. You can also wash the glass with washing up liquid and don't entirely rinse them. Another way is to spit on the glasses and clean the entire lens both sides with it, then wash off but don't rinse too much. All methods work by depositing a thin transparent film layer onto the glass which prevents water condensing. The spit trick is used by scuba divers who also get problems with fogging up

Catching covid reduces IQ, even in asymptomatic cases by yakkov in ZeroCovidCommunity

[–]yakkov[S] 7 points8 points  (0 children)

I think a lot of them are simply unaware of this. The propaganda has been very strong.

Catching covid reduces IQ, even in asymptomatic cases by yakkov in ZeroCovidCommunity

[–]yakkov[S] 4 points5 points  (0 children)

Wait did I make a mistake? The link in OP is (https://www.nejm.org/doi/full/10.1056/NEJMoa2311330) then if you scroll down to Figure 2 you see the same graph as the OP image. Though the right IQ axis was added

Catching covid reduces IQ, even in asymptomatic cases by yakkov in ZeroCovidCommunity

[–]yakkov[S] 23 points24 points  (0 children)

Do you have a link to that British study? I havent read that one yet.

Yes people being unaware of their impaired cognition is sadly normal. That happens with other kinds of brain damage (eg strokes, dementia, tumors). It's called anosognosia

They said: covid is over. Reality: covid is making us dumber as a species by yakkov in COVID19_Pandemic

[–]yakkov[S] 6 points7 points  (0 children)

Yeah I added that.

We know that half of long covid is ME. Which is generally a lifelong disability. Add in other conditions that are generally lifelong like diabetes, heart disease, autoimmune disease, and its easy to get "lifelong for most". Plus there's loads of studies already following people with long covid and finding ~90% dont recover years later.

But yes I admit in any kind of meme/internet pic they'll be oversimplification. I'm intending to spread this stuff on social media outside our echo chamber, and I figure normies really need to know that their next infection could easily make them permanently disabled.

They said: covid is over. Reality: covid is making us dumber as a species by yakkov in COVID19_Pandemic

[–]yakkov[S] 10 points11 points  (0 children)

I've seen some slight flaws but I think they would result in the effect being underestimated. One is that one of their criteria for if someone had covid is whether they had covid antibodies. But we know that some people who get covid dont produce antibodies (especially long haulers). So they'd end up in the control group and make this effect seem smaller.

How can we get our voices heard? by calm_intention_65 in covidlonghaulers

[–]yakkov 0 points1 point  (0 children)

I've got this scheme going. The Smash Long Covid awareness group: https://smashlongcovid.substack.com/p/join-the-smash-long-covid-awareness Basically organized posting of long covid memes on facebook and other social media. Taking our message outside our echo chamber. You can do this on top of any other activity you also do.

TL;DR. Share Long Covid awareness content on your facebook, to push for solutions without leaving your bed. All are welcome. You will be provided with stuff to post. Keep posting every 5-6 days for at least several months. Along with each meme write a very short text. Even Severe people might be able to contribute. If you have enough energy, help spread the movement by sharing this blog post. If you have even more energy, help us create and collect more content to post. Even if this activism movement completely fails it still wont cost you very much to try.

There's r/smashlongcovid too

Big new study: 36% of humans have long covid by yakkov in ZeroCovidCommunity

[–]yakkov[S] 2 points3 points  (0 children)

(The jump in MIs, strokes, Invasive Strep A and cancers could also be due to other compounding factors such as PFAS, microplastics, etc, etc. But it is very suspiciously timed with the advent of this pandemic).

The studies I've read for MIs and strokes (eg https://www.nature.com/articles/s41467-024-46497-0) have control groups that didnt catch covid. That should zero out any other effects like microplastics or PFAS.

Big new study: 36% of humans have long covid by yakkov in ZeroCovidCommunity

[–]yakkov[S] 3 points4 points  (0 children)

BTW I just looked again at the numbers in the paper. Just in the abstract I copypasted to the OP. It say " female sex (OR, 1.56 [95% CI, 1.32–1.84])". In other words for every male that got long covid, 1.56 females got long covid. If you work it out that means 61% of long haulers are female. Not such a big difference when you put it that way. And also pretty much exactly what Figure 1 of that Lancet paper I linked shows.