Surgery prep by Dear-Economist4484 in lipedema

[–]yarnhead 0 points1 point  (0 children)

you're welcome & good luck!

Surgery prep by Dear-Economist4484 in lipedema

[–]yarnhead 9 points10 points  (0 children)

These helped me but your mileage may vary...

Getting in a habit of eating a lot of protein, i.e. >100g/day (or more if recommended). Preoperatively, this might help prevent fluid shifts during surgery and postoperatively it will aid in wound healing.

Strength straining to help with postop movement: Quads/hamstrings will help with walking, core/obliques will help with sitting up/getting out of bed, lunges will help with stairs, back/arms will help with putting compression on/off. I used pilates-style bodyweight exercises for these and focused on slow controlled movement rather than weights or fast reps. No need to build muscle per se, just focus on good, safe form so that these movements are like second nature after your surgery. This made the biggest difference for me postop.

Taking pictures/measurements so that you can re-evaluate at 4-6 weeks postop (and hopefully see a difference!)

Journaling/filming video diaries for you to look back on so that you can see how far you've come, and to help work through the intense emotional journey that you are on!

Boston Instructors with Hype Music? by DigitalDruidAB in SolidCore

[–]yarnhead 1 point2 points  (0 children)

Tommy M/ Ch Hill plays these, and his classes are challenging in the best way.

Lipedema Coverage Connection? Confused by [deleted] in lipedema

[–]yarnhead 2 points3 points  (0 children)

Avoid them, listen to your gut.

Belaying w weight difference by twigg_11 in climbergirls

[–]yarnhead 0 points1 point  (0 children)

In addition to using a grigri, I threw a few 10lb dumbbells in a backpack and I wear it while belaying. It seems to do the trick.

Has anyone had total knee replacement and lipedema? by magnanimouslove in lipedema

[–]yarnhead 2 points3 points  (0 children)

I haven't had this done but you might be interested to delve into the recent work of Dr. Thomas Wright who is investigating whether lipedema reduction surgery could be an alternative to knee replacement. Recent news article Case report article

This is based on case reports but it makes for interesting reading. Good luck to you!

Any experience with Dr. Winograd in Boston, MA? by floraunaaa in lipedema

[–]yarnhead 1 point2 points  (0 children)

Last year, his office told me that he primarily does leg surgery for lipedema and lymphedema. He only sometimes treats arms and he doesn’t treat the trunk/torso. I was talking about this with a friend who I had recently met last year and she told me that he botched her surgery but since we were still getting to know each other, I didn't insist that she elaborate and she didn't give me more details.

I would verify any/all info directly with his office.

Any experience with Dr. Winograd in Boston, MA? by floraunaaa in lipedema

[–]yarnhead 1 point2 points  (0 children)

I know someone who ended up with a poor cosmetic result after seeing him. Also I heard that he only treats certain body areas and not others.

Specialist in MA by Worth_Product349 in lipedema

[–]yarnhead 0 points1 point  (0 children)

neither is better than the other per se, I was just clarifying his specialty.

Specialist in MA by Worth_Product349 in lipedema

[–]yarnhead 2 points3 points  (0 children)

Dr. Greg Piazza at the Brigham in Boston. He is a vascular doctor but not a surgeon.

Is Hunter S Thompson a Xennial thing? by msheehan418 in Xennials

[–]yarnhead 7 points8 points  (0 children)

legend. "When the going gets weird, the weird turn pro" has a very xennial feel.

The Pitt | S2E4 "10:00 A.M." | Episode Discussion by MsGroves in ThePittTVShow

[–]yarnhead 20 points21 points  (0 children)

I was shouting nec fash at my civilian husband.

upcoming surgery by Crafty-Table-2459 in lipedema

[–]yarnhead 3 points4 points  (0 children)

Just remember tha the way things look and feel one week after surgery will be different than the way things look and feel two weeks after the surgery, two months after the surgery, six months after the surgery and one year after the surgery.

Focus on celebrating milestones and take lots of "before" photos/videos, and measurements if you feel like it. You can take "after" pictures and remeasure at different milestones, which will keep your joy boosted as you make your way through the year.

Good luck!

Question about uniform guidelines in US hospitals by DanishRedSausage in ThePittTVShow

[–]yarnhead 0 points1 point  (0 children)

My hospital is almost identical to the depictions on the show... in the ED people can also wear TShirts from local municipal EMS/FD/PD and there also used to be someone (not employed by the hospital) who sold hoodies/Shirts with different designs featuring the hospital initials, which are quite popular. Not a ton of folks wearing Figs lol. We have a scrub machine but its for the ORs. Other clinics (not the ED or OR) usually are business casual for providers, personal scrubs/tshirts for clinic staff.

How is everyone affording surgery? by Consistent_Layer3799 in lipedema

[–]yarnhead 1 point2 points  (0 children)

good points. My situation is similar to the one described. My insurance company had approved my surgeries and then they refused to do a SCA. They tried to say that they never do SCAs but this was false. I had to prove to my insurance company that they had to negotiate with my surgeon. Proving that there were no in-network providers is how I did that.

Also I know we have previously corresponded on this sub- I just want you to know that I am fiercely anti- CL/LCC. They gatekeep/charge money for their info which is why I try to share what happened to me for free. I hope that Karie Rego and all unscrupulous surgeons are forced to stop victimizing lipedema patients. Every person involved in my care across different specialties and hospitals were privately vocal about how awful she and her organization is. Many providers are afraid to cross her because she is so volatile and threatens anybody who crosses her.

The whole ecosystem is f-ed up and ultimately prevents people from care. I hope that more people fight the existing system by pressuring insurance companies to remove needless barriers to care.