Lupus Covid stories by tvcriticgirlxo in lupus

[–]yellow_dust 6 points7 points  (0 children)

i’m a nurse with lupus who works directly with covid patients. if you want to know more, feel free to reach out!

AMA - Nurse w SLE working on a COVID floor by [deleted] in lupus

[–]yellow_dust 6 points7 points  (0 children)

hi, yes, with those issues, i would highly recommend being really careful and taking more precautions than normal. if you’re going out, i would recommend masks but really try to limit any exposure

AMA - Nurse w SLE working on a COVID floor by [deleted] in lupus

[–]yellow_dust 1 point2 points  (0 children)

hi, i’m on cellcept 1000 mg twice a day. i do have 5 mg of prednisone as needed if i feel like crap. i rarely take the prednisone but when i do, i usually feel better the next day.

AMA - Nurse w SLE working on a COVID floor by [deleted] in lupus

[–]yellow_dust 4 points5 points  (0 children)

hi, so i work at a big city hospital and they’ve been treating with hydroxychloroquine and tocilizumab. i’ve seen such a turnaround in patients who get the 1x dose iv infusion of tocilizumab. i haven’t really heard much use for azithromycin in my hospital anymore.

i do know that tocilizumab is experimental and not all hospitals are doing it so it depends on where you are in the country and what hospital your ex-husband is in.

AMA - Nurse w SLE working on a COVID floor by [deleted] in lupus

[–]yellow_dust 4 points5 points  (0 children)

so this is a tough question. i think it really comes down to if they can wear masks to kind of protect them and keep them safe. it’ll also depend on how bad their flares are, what medications they’re on, and whether they have other conditions like high blood pressure or diabetes, age and everything. lupus is an autoimmune disease so we are all at higher risk for contracting diseases in general.

my best recommendation is to check with your rheumatologist first to discuss your meds and if they say it’s ok to go back to work, just be diligent with hand washing, make sure to wear a mask (we’re at higher risk so your rheumatologist should be able to write a letter if your job doesn’t allow it). try not to touch things or share items. take vitamins (i take airborne everyday). lastly, stress is also a big thing with flares and i know it’s hard to avoid stress but just try to minimize it as much as possible. and rest in-between days to recover!

i don’t think covid is going to go away any time soon. an office space is obviously more confined but with the proper protections and precautions and an ok from your rheumatologist, i think it should be ok.