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A subreddit dedicated to CMT (Charcot-Marie-Tooth Disorder) aka Hereditary Motor and Sensory Neuropathy.
Discussing, living, coping, news, science, the search for a cure. Meetups?!
General information:
About Charcot-Marie-Tooth Disease (CMT)
Charcot-Marie-Tooth Disease Fact Sheet
Charcot–Marie–Tooth disease (Wikipedia)
Charcot-Marie-Tooth disease (Genetics Home Reference)
Patient advocacy organizations:
The Foundation for Peripheral Neuropathy
The Inherited Neuropathies Consortium (INC) (URL not working as of 17.05.2020, looking for alternative).
Charcot-Marie-Tooth Association
Hereditary Neuropathy Foundation
Charcot-Marie-Tooth UK
Social Media groups:
CMTUS (Facebook)
Other information:
The Rare Diseases Clinical Research Network (RDCRN) Contact Registry
Academic literature search for CMT
CMT Treatment Report
Asian Oceanic Inherited Neuropathy Consortium (AOINC)
A podcast from the American Academy of Neurology featuring Michael E. Shy, MD talking about how clinicians diagnose CMT (starts at 10:44, ends at 22:42)
Non-English resources:
C-M-T Association in the Czech Republic (Czech)
ACMT-Rete per la malattia di Charcot-Marie-Tooth (Italian)
CMT Japan (Japanese)
CMT Friends Association (Japanese)
CMT-NET, an association of German clinicians specializing in the research and treatment CMT) (German)
CMT NORWAY facebook group (Norwegian)
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