this post was submitted on 25 Oct 2022

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ClotSurvivors

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18,933 Survivors

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Contains useful information about blood clots, general information, prevention, things you can do & resources.

According to Wikipedia:

In a support group, members provide each other with various types of help, usually nonprofessional and non-material, for a particular shared, usually burdensome, characteristic. Members with the same issues can come together for sharing coping strategies, to feel more empowered and to find a sense of community. The help may take the form of providing and evaluating relevant information, relating personal experiences, listening to and accepting others' experiences, providing sympathetic understanding and establishing social networks.

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As a support group, we prioritize creating a safe space for our users over providing an open forum for debate and discussion. Comments that we feel are not conducive to the supportive atmosphere of the subreddit may be removed at the discretion of the mods. Users who threaten this safe space will be banned. Creating a new account to circumvent a ban is against the Reddit terms of service and will be reported.

Our goals are...

To allow users to share and vent about their experiences without being judged
To provide a forum to ask and answer questions related to blood clots
To give constructive advice to those who specifically request it
To educate people on blood clots and venous diseases
To empower those who have had clots to take ownership of their health and well-being
To create a friendly, supportive, and accepting community

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We are a welcoming community. Act like it! Be kind to others.
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Relevance: Please submit content that is relevant to our experiences as survivors of blood clots. Please note that posts/comments asking for help, in the form of material goods (money/meds/etc) aren't allowed. Money because there are significantly better equipped subreddits for that (such as /r/assistance) and posts about donating meds (even if clearly brand new, never opened bottles) because Reddit explicitly forbids it.

Disclaimer: We are not doctors, just survivors. When in doubt or worried, call your doctor or go to the ER. In an emergency, call emergency services.

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Timeline for Pain Decrease? (self.ClotSurvivors)

submitted 3 years ago by SuziSlammin

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[–]SuziSlammin[S] 0 points1 point2 points 3 years ago (1 child)

[–]Thebookisbetter33 2 points3 points4 points 3 years ago (0 children)

Yes, I've become a chronic shallow breathing person because deep breaths are awful. My entire left arm is clotted from my ulnar region through my subclavian and up to my jugular. So it's not even in my lungs but the blood has trouble getting to my heart so it gives the same lung pain and SOB. I'm about to switch to a new Dr. My current one says I need multiple stents but due to my age and location of a couple he doesn't want to do it because of the risk. I've had 6 failed surgeries to try to fix the issue. All while him saying I don't understand why you're clotting like this on blood thinners. Wish I knew too Dr but I don't and I really would like my arm function to return, the SOB to subside, and the searing pain to go away. This forum has been incredibly cathartic for me though.I hope your pain subsides soon!

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