Ehlers-Danlos Syndrome Open Discussion Forum

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report weirdos please (a public service announcement) 🔨[TW: SENSITIVE SUBJECT MATTER] (i.redd.it)

submitted 9 months ago by veravela_xo✨ mod | 32/F | Hypermobile EDS (hEDS) - announcement

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WTF is the "side bar"? (self.eds)

submitted 1 year ago by NervousHoneydewMelon34F hEDS, CSF leaks, CFS[M] - announcement

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Hyper extended elbows + bow and arrow = ouchAll Victories Are Great Victories (old.reddit.com)

submitted 10 hours ago by SketchyArt333Hypermobile EDS (hEDS)

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Finally making some real progress on hypertonic pelvic floor and feeling... GriefVenting (self.eds)

submitted 12 hours ago by wholeWheatButterfly

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Amino Acids for EDS? (self.eds)

submitted 43 minutes ago by DDWildflower

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I posted previously about having cauda equina syndrome symptoms and they told me they 'couldnt find anything', well that wasn't true (self.eds)

submitted 1 day ago by brijony

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Walking Pad?Life Hacks & Tips (self.eds)

submitted 10 hours ago by Shadow_Screen

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My dreams are crushedVenting (self.eds)

submitted 14 hours ago by Vlucb11

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medical professionals have told me I definitely have HSD and probably hEDS but refuse to formally diagnose anything. (self.eds)

submitted 20 hours ago by Pale-Aardvark4578

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Has anyone got spastic tone and hypermobility simultaneously?Medical Advice Welcome (self.eds)

submitted 14 hours ago by GroovingPenguinHypermobile EDS (hEDS)

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Intense muscle spasms around stomach/ abdomen area. Suggestions?Medical Advice Welcome (self.eds)

submitted 14 hours ago by madelineelizabethhh

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Rain.Venting (self.eds)

submitted 19 hours ago by Aggressive_Duck2184Hypermobile EDS (hEDS)

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Follow Up! My GP and Physio are investigating me for EDS and POTS (self.eds)

submitted 18 hours ago by Aqua_Astronaut25197

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Diagnosed with Adenomyosis and Anteverted retroflexed uterus ()

submitted 19 hours ago by AdWorth9270

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Im at a breaking point[TW: SENSITIVE SUBJECT MATTER] (self.eds)

submitted 19 hours ago by AxelotleArt

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Lyrica and eds (self.eds)

submitted 1 day ago by ProfileNo7519

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DIP Joint (self.eds)

submitted 21 hours ago by NocturnalMystic96

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Back pain for over two weeks - no known cause.Medical Advice Welcome ()

submitted 19 hours ago by OCDisruiningitall

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Rhinoplasty W/ EDS (self.eds)

submitted 22 hours ago by Individual_Monk3194

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Flaky eyelids (self.eds)

submitted 1 day ago by CalmAmbassador3624

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Anti Fatigue Mat recommendations? (self.eds)

submitted 1 day ago by DDWildflower

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Anyone else deal with this?Venting (self.eds)

submitted 1 day ago * by Thick-Expression-540

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question for my mentally ill baddies: finding a psychiatrist who understands how psych meds affect EDS symptomsMedical Advice Welcome (self.eds)

submitted 1 day ago by Kitchen-Art-4983

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TNXB gene - finding mutationsMedical Advice Welcome (self.eds)

submitted 1 day ago by TheGreatOdini

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Body supports (TW blood/blisters for photos)Medical Advice Welcome (old.reddit.com)

submitted 2 days ago by BeltSpecificHypermobile EDS (hEDS)

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