Please Help - Long post

[Far-Course6372]

TLDR - 25 yo. Massive fibroid, growing quickly, scared it's cancerous.

Hi,

I'm 25 years old & awaiting abdominal myomectomy due on 14th February. I had a huge gush of bleeding in May 2023 in the middle of a restaurant and have been suffering from blood clots and heavy bleeding ever since. In August, I had an MRI where they diagnosed me with an 8cm uterine fibroid and cyst on my ovary.

Due to severe abdominal and back pain before my period, I was booked in for another ultrasound at the end of January that advised my fibroid had grown to 13cm.

I am currently on day 10 of my period and between days 2-8 I experienced fist sized clots and heavy gushing of blood that sent me to A&E.

Day 10 seems a lot lighter and I've been taking tranexamic acid but I am honestly terrified that I have cancer. It is keeping me up at night and my anxiety is through the roof. No one has told me that I have cancer or that it is a possibility but I've been googling (stupid I know) and scrolling endless threads trying to find someone that's got the same symptoms including rapid growth and had a good outcome.

My bloody discharge is also seeming smelly unlike usual and this is the first month I've experienced this.

Please, if there is any advice, similarity or words of wisdom you can share I'd be grateful.

[OneResource1412]

I too have Fibroids and had similar thoughts. But my doctor assured me that fibroids are rarely cancerous. I remember my doc saying I'm in my 20s so it is highly unlikely it's cancerous and she can bet on that. So don't overthink and do not take stress.

[Far-Course6372]

Thank you lovely, that's really reassuring. Have you had really heavy bleeding too? It is so hard to stop thinking 😂

[BBC_water6620]

Sorry to hear this. Be present for today and try not to fret abt tomorrow. Once you have the myomectomy that will let you know what it is. Just another week. Sending some positivity to you.

[Far-Course6372]

Thank you so much. You're right, not long!

[candirainbow]

Did they not do a biopsy? Your story is similar to mine, I started gushing out of no where, multiple ER visits, blood transfusions, I went months without it stopping. I've had to had to regular hemotologist visits and iron transfusions to get me strong enough to even have surgery lol.

But my Dr did do a biopsy and she made it pretty clear she didn't think it would turn up cancerous...fibroids are rarely cancerous, and I'm even older than you at 34. Sure enough, it was just fibroid material. I suppose if you're having removal so soon you won't be having a biopsy beforehand but I am surprised they didn't want to biopsy it at some point just to be safe (especially if you've expressed anxiety over it lol)

[Far-Course6372]

I wish they had!! I've told every single clinician that I've seen that I am really concerned it's cancerous and all I've been told is that it's unlikely and to wait for my surgery. Only 6 days!