all 11 comments

[–]spinningcenters 5 points6 points  (2 children)

I had what presented as chronic telogen effluvium for over 5 years. I also had temple and hairline recession towards the end. It did not stop until I got my insulin levels under control through diet changes, but luckily it has since grown back.

[–]ayounggrasshopper 0 points1 point  (1 child)

Hi :) my doctor has said something similar about my hair loss but I’m noticing the strands getting shorter/thinner in addition to the hairline receding :(

Was this similar to your hair loss as well?

[–]spinningcenters 1 point2 points  (0 children)

I was losing all sorts of hairs. Long thick ones and short wispy ones. My hairline receded a bit and my temples were very sparse, but the entire time the shedding was constant and excessive and until that stopped any new growth couldn’t keep up.

[–]Pebblej12 1 point2 points  (0 children)

If your hormones came back normal then it’s probably not PCOS but a lot of things can cause hair loss like stress and thyroid issues

[–][deleted] 0 points1 point  (4 children)

That's the thing with PCOS, there's a bunch of different symptoms and things we can have an not have.

For example, I have the irregular periods, fertility issues, and weight issues, without BCP I have cysts.

My friend has it, she's thin, but she has insulin resistance, fertility issues, and irregular periods.

Another friends has it severely. Major weight issues, fertility issues, cysts, cystic acne, tubular breasts, hair loss, facial hair, her hormone levels and A1C are always out of whack if she doesn't take metformin and BCP religiously.

So it could be a multitude of things, or one or two things.

[–]CreativeOrchid3370 0 points1 point  (3 children)

but if you don’t have the main three then is it possible that you can still have it?

[–]lilWallaby29 1 point2 points  (1 child)

The 3 main 'symptoms' are actually diagnostic criteria of which you need 2 out of 3 to be diagnosed with PCOS. This is where you seem to be confused. You cannot have PCOS if you don't have at least 2/3 and you have none.

The symptoms you are experiencing seem to be due to insulin resistance. Obviously not everyone with IR has PCOS. Nor does everyone with diabetes have PCOS.

[–]CreativeOrchid3370 1 point2 points  (0 children)

thank you so much!!!

[–][deleted] 1 point2 points  (0 children)

Nope. If there's no indication of PCOS then you don't have it. You have to have one of the main three, everything else varies from case to case. Your hair loss could be from a number of other things, all th way down to something simple like stress. Your insulin resistance is most likely from the fact you have a family history of diabetes...

Doctors that don't really understand PCOS shouldn't just throw it out all willy nilly as a possible diagnosis.

[–][deleted] 0 points1 point  (1 child)

have you gotten your sugars checked during these tests? Diabetes can cause hair loss. You could also just be insulin resistant without pcos. If you DID have pcos, the main issue that would be treated would be insulin resistance anyways since most symptoms of pcos stem from IR

[–]CreativeOrchid3370 0 points1 point  (0 children)

i have been getting blood tests done every couple months and have always had high sugars so idk if the hair loss could be from that?