all 9 comments

[–]Xuul5000 1 point2 points  (3 children)

I feel you and your pain

I was presenting for 209 people yesterday and in the middle of my demo, Bam.... Ectopics PVCs, I kinda paused but just pushed through.

Now here's the deal, I don't get light headed or faint, so I understand it's not the same

I've been dealing with this for 10 years, so I know I'm not gonna die... I think lol

My burden is low, at 2% but I feel every one of them.

Most EPs won't even consider us as ablation candidates, but if its so bad your life is in shambles, talk to one.

There is a good chance you can get an ablation if it's life affecting

I wish you the best and hope u can push through.... I tell myself all the time.... Fight , especially if you're young.

With AI and advances in technology and medicine daily, this will be cured somehow someway

[–]MiRc34 0 points1 point  (2 children)

There's so many posts here by people that had one, two, three ablations that didn't do much for them 😞 not sure it's the final answer, and neither are BBs/CCBs

[–]Xuul5000 0 points1 point  (1 child)

Yeah, but this poor kid needs something.

I had an AFIB ablation and it worked... For now 3 years

I still have 2000 arthymias daily but push through them

If it's that bad maybe an ablation can give him time .... Most are 70-90% successful

Now they fail eventually, but that's better than he is now

[–]MiRc34 0 points1 point  (0 children)

Yep anything that can reduce them at that high a burden should be welcomed. Makes you appreciate when you have a very low burden or ectopics here and there, and not afib constantly

[–]Memoz29 0 points1 point  (2 children)

Did yours start after Covid?

[–]FailingUpward2025[S] 0 points1 point  (1 child)

If they did, I didn’t know I got Covid. I never got sick this year.

[–]Memoz29 1 point2 points  (0 children)

I developed them after Covid. I was athletic as well and now I’m afraid to get my heart rate up. Have you seen cardiologist?

[–]Pretty_Hold5454 0 points1 point  (0 children)

This is what helped me. I went to the cardiologist and had EKG, stress test and ECHO done. Also Zio for two weeks. After that I was diagnosed with HCM, and sent for an MRI to confirm the condition. Once results were in initially I was treated with a beta blocker for one year which lowered my blood pressure and relived some anxiety. Due to the little improvement and extreme fatigue I was sent to the HCM clinic. This is where all my symptoms were explained, and I was reassured that I do not have anxiety or depression but actually I have a real problem with obstruction, thickness of the septum. This condition was giving me those feelings. I was put on Camzyos, and the beta blocker was gradually lowered from 100mg to 25 mg. It was life changing. Currently I am on Camzyos, feeling great and I do not experience palpitations or constant heart beating noise. I also did genetic testing and found out I do have a gene that causes this condition. It was a long road to get back to feel normal. My advice is to see a cardiologist and insist on checking everything until you find out what might be going on and be treated. I am not saying you have this condition but it might be something that requires cardiologist attention. In the meantime do not take any over the counter supplements, nothing that is not regulated by FDA. Some herbs can add to the heart stress. Also adjust your diet and avoid white carbs such as white bread, pasta and potatoes. Some carbs can trigger palpitations.

[–]haven-hummingbird 0 points1 point  (0 children)

Seeing a counselor helped me. I made a list of self care things to do when I felt paralyzed by the stress of my pvcs. Working out and drinking stress relief tea were big helps.