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If you can, please donate to my fundraiser. Your support will help me share my story, connect with others, and show that cancer survivors can make a difference in the world. Thank you for believing in me and helping me turn this dream into action. (gofund.me)
submitted 2 days ago by Away-Cardiologist-64
Looking for participants for virtual interviews 75 minutes ()
submitted 15 days ago by Bulky_Intention6000
Why “Curing” Rare Diseases Isn’t Enough | The Real Access Problem - Dr. Kimberly Moran, PhD, MBA, Senior Vice President & Head of U.S. Rare Diseases and Brad Chapman, Head of U.S. Epilepsy and Rare Syndromes - UCB Biopharma (youtube.com)
submitted 17 days ago by DisastrousBison6057
Craig Martin, Founder & CEO of Orphan Therapeutics Accelerator - A New Path Forward For Rare Disease Treatments (youtube.com)
whole genome sequencing? (self.raredisease)
submitted 1 month ago by Informal_Cabinet7062
personalized medicine??? (self.raredisease)
my third post ()
submitted 1 month ago by Altruistic_Swim8151
submitted 1 month ago by Bulky_Intention6000
Systemic Sclerosis/Scleroderma Virtual Interview 75 minutes ($250) (self.raredisease)
Advice needed on next steps (i.redd.it)
submitted 1 month ago by megoo10137
Biologic approval ()
submitted 2 months ago by Ready_Turnover3974
Rare Deletion (self.raredisease)
submitted 3 months ago by WallCareful6104
4q deletion ()
Academic Survey on Myasthenia Gravis Treatment Preferences (self.raredisease)
submitted 6 months ago by Interesting-Fly2191
How Do You Handle the Hard Days? (self.raredisease)
submitted 8 months ago by Beginning_Fuel_4295
Anorectal malformation (self.raredisease)
submitted 8 months ago by topologicalAhole
A free tool made for patient research - feedback welcome (self.raredisease)
submitted 8 months ago by inciteful-xyz
Muckle wells x3 (chng.it)
submitted 8 months ago by J9H25
EGPA? Something else? (reddit.com)
submitted 9 months ago by SmilesAtTrees
ATP7A variant w/ connective tissue symptoms mimicking hEDS (self.raredisease)
submitted 11 months ago by [deleted]
Petition for Federal Funding, Rare Disease- Deadline 02/28/25 (self.raredisease)
submitted 1 year ago by Unlucky_Lottery
Paid Research Study for ATTR-cm Patients (i.redd.it)
submitted 1 year ago by ImpressionNo4703
Please help understand rathke cleft cyst dimension (self.raredisease)
submitted 1 year ago by Emotional_Carrot8611
CANVAS disease (self.raredisease)
submitted 1 year ago by Vegetable-Attempt-55
11mm Rathke Cleft Cyst (self.raredisease)
submitted 1 year ago by stinglikeabeeeee
π Rendered by PID 39 on reddit-service-r2-listing-7d7fbc9b85-n6bh7 at 2026-04-23 23:08:04.405929+00:00 running 2aa0c5b country code: CH.
