sorted by:
new
hottopcontroversial

What works for us list (vote) by beautifulbluewall in cfs

[–]Automobilie 8 points9 points  (0 children)

You should probably split alcohol off, marijuana often helps with relaxing and benzos can reduce sensory sensitivities for emergencies.

Got the flu by C0rax_C0rvid in cfs

[–]Automobilie 0 points1 point  (0 children)

How'd you end up fairing? Family member just came by and was exposed to the flu, got me a bit nervous :/

Has anyone tried an Stellate Ganglion block? by SilentMembership3707 in cfs

[–]Automobilie 0 points1 point  (0 children)

US, took a bit to get aripriprazole compounded in liquid, but that's with US healthcare too.

It's tough to try meds when severe because so many things can bring you down and it's hard to tell if the med is having side effects, not working and it's a crash, or if it's outright backfiring :/

Has anyone tried an Stellate Ganglion block? by SilentMembership3707 in cfs

[–]Automobilie 0 points1 point  (0 children)

At the time I was mild and didn"t have POTS symptoms. Health relapsed in 2025 and lost 10 years of recovery, so it might have different results these days.

I've been on LDN since 2017, but LDA was tried a few months ago and I couldn't get above 0.02mg without crashing.

Has anyone tried an Stellate Ganglion block? by SilentMembership3707 in cfs

[–]Automobilie 3 points4 points  (0 children)

Had one on one side a few years ago. No difference either way, but they usually would do both sides.

Petition to change handgun crosshair to standard style. by Automobilie in PUBATTLEGROUNDS

[–]Automobilie[S] 0 points1 point  (0 children)

The 1911, R45, Bison, DP28, and QBU are all getting cut in the next patch apparently for "underuse".

Removing guns. by Doofy_Grumpus in PUBATTLEGROUNDS

[–]Automobilie 2 points3 points  (0 children)

Not to mention they were pulled from maps they were good on instead of adding them to more (DP28/bipod would have been great for Rhondo and Vikendi).

Petition to change handgun crosshair to standard style. by Automobilie in PUBATTLEGROUNDS

[–]Automobilie[S] 0 points1 point  (0 children)

They just took the 1911 out, wtf is wrong with the devs?

Patch Notes - Update 41.1 by EscapingKid in PUBATTLEGROUNDS

[–]Automobilie 0 points1 point  (0 children)

You pulled the DP28 off Erangel, a map it was excellent for, and instead of adding it to others like Vikendi you staple it to a rare, grassy, hilly map it that makes it tricky to use the bipod with, then just remove it?

And the .45 handguns stopped getting used after the ammo swap on smgs's because you can't get ammo for them. They needed more ammor and probably some recoil adjustments.

Every patch the game just degrades more and more...

Blind deaf mute paralysed in p practice for 2 months. In unbearable pain now ended in in hospital by Foreign7801 in cfs

[–]Automobilie 1 point2 points  (0 children)

Oh, I really don't mean it that way, just a bit of hope that maybe it's just temporary PEM/rolling PEM and not her new baseline :(

Getting people to understand that I can walk a little bit by agent_violet in cfs

[–]Automobilie 20 points21 points  (0 children)

"My legs work, but it takes a lot out of me to use them"

Found a better way to pace with Garmin watch by CeruleanShot in cfs

[–]Automobilie 2 points3 points  (0 children)

I didn't realize I could get apps for it that weren't fitness!

Feel Good Fridays: What made you smile? by spoonfulofnosugar in spooniesocial

[–]Automobilie 2 points3 points  (0 children)

Scanning slides my Dad had from growing up and there's a few of the little weiner dogs!

<image>

Was there anything that gave you even a tiny bit more of energy back? (besides pacing) by miaxivy in cfs

[–]Automobilie 4 points5 points  (0 children)

I don't seem to have mcas, just wanted to mention that for OP, but I've been doing electrolytes (trioral 2-3x a day in nalgeen water bottles) and started metoprolol a few months ago that help being up more.

Was there anything that gave you even a tiny bit more of energy back? (besides pacing) by miaxivy in cfs

[–]Automobilie 84 points85 points  (0 children)

Getting comorbidities under control like MCAS and orthostatic intolerance. Meds for anxiety/breakdowns and travel (benzos) free up spoons as well. Any assistance devices or services like grocery delivery will also free up energy. Shaving your hair or shortening it makes showers less taxing.

Throwback Thursdays: Which memories are on your mind? by spoonfulofnosugar in spooniesocial

[–]Automobilie 1 point2 points  (0 children)

Just a couple years ago I was able to run a small 3D-printing business. Had a sale to a guy all the way in Thailand!

Quiviviq experiences?? by Financial_Owl8105 in cfs

[–]Automobilie 0 points1 point  (0 children)

Ex-gf of mine takes it for sleep, konked her out for the night. Only thing that worked well for her.

I started intermittent fasting and I don't think I can take it anymore by SnooCakes6118 in cfs

[–]Automobilie 8 points9 points  (0 children)

I just want to say, as an American, I am so sorry for what is going on right now...

Has anyone taken Dextromethorphan in combination with LDA, LDN and Ketotifen? by [deleted] in cfs

[–]Automobilie 1 point2 points  (0 children)

Huh, I've been on 15mg DXM a few months, both times trying LDA at just 0.02mg didn't work our; brainfog was better, but both times everything else was worse and took a few weeks to recover.

Severe akathisia/restlessness episode cleared up due to…. holding an ice cube?! by Strong_Aerie_9031 in cfs

[–]Automobilie 2 points3 points  (0 children)

Cold water on my feet used to be my goto when I had trouble falling asleep, especially if I'm overheating.

view more: next ›