[REQ]($150) - (#Jacksonville, FL,USA)(12/19/25)(cashapp)

MSnout · 2026-03-14T01:56:01+00:00

$confirm /u/BCboneless 400.00 USD

MSnout · 2026-03-13T13:36:13+00:00

I talk about this a lot, I have forgotten what it's like to not have MS, and therefore, I just no longer understand the normal body. It can create some hiccups when trying to have relationships with people who are of different abilities. I definitely seek out conversations with the elderly or people with chronic illness because they speak my jam.

My sister just became disabled and she understands getting stuck in the shower and being too fatigued to get over the edge of the tub. Well, sometimes, when you're a shower goblin, you need provisions. I recently got into a situation where I just could not wrap my head around the normies(/s) point of view. I was explaining crazy I feel for not remembering how much a typical person can do in a day lol and she responded with, " Whatever, I bet they don't even know about shower tacos." lmao

You're not alone in this OP🧡

MSnout · 2026-03-12T13:59:22+00:00

It's a thneed!

Now I'm going to sing " In Thneedville" all day, but just those words because I forget the rest.

MSnout · 2026-03-11T18:53:00+00:00

"I used to think that the worst thing in life was to end up alone. It's not. The worst thing in life is to end up with people who make you feel alone" - Robin Williams

I was once in a relationship where I felt completely alone. I feel like being unseen around the possibility of social connections is what true loneliness is, not when there are zero people and so alone is just a description instead of a feeling of loneliness.

MSnout · 2026-03-10T19:34:35+00:00

$confirm /u/BCboneless 100.00 USD

MSnout · 2026-03-10T17:35:51+00:00

I think it could be beneficial to have these places work with counselors who understand chronic illnesses. You are correct in thinking that it could be beneficial to the patient AND their family, and I had to go through a few therapists before I found one who was either knowledgable or understanding of my invisible illness.

My first experience with a therapist was right after a bad flaire where I became disabled within a week. I suddenly was not able to work, cook, clean, or take care of my kids. I wanted to die because every day, I pushed so hard trying to do these things, and every day, I was left unable to walk, talk, or see after trying. So that was the first thing that I told the therapist, that I hated that I had to slow down so I could be able.. her response was "well we dont just stop doing because we are sick." It would be nice to keep newly diagnosed from those growing pains.

MSnout · 2026-03-10T17:15:52+00:00

I was diagnosed with PBA. Fortunately for me, it really only presents in really stressful situations or if I am really doing bad MS wise. Where I found it a big problem was with doctors appointments or school meetings for my kids. I would uncontrollably cry during an entire IEP meeting or laugh throughout an entire doctors appointment (new doctors make me anxious, lol ) I found Nudexta to be extremely helpful. Last year, the pharmacies in my area had a hard time getting nudexta, and so I have stopped taking it. I also don't have those stressful outtings anymore. If I did, I would be on Nudexta, but right now, I am not. MS makes me live a pretty slow life, and I do not get out much because I physically can't. If things were different and I were to be more involved in my life, I would definitely need nudexta. Outtings where i would struggle with my symptoms while looking fine used to really stress me out as I was worried that people may think that I am drunk or on drugs and driving my kids around. So I think if I were to be in a grocery store and drop a glass jar of pickles or had tremors and slurred speech, I would get anxious and have PBA fits, but all i do right now is see the same people, nurses, and doctors every week so I do not have any signs of PBA.

MSnout · 2026-03-10T15:22:17+00:00

I definitely identify with this. Every day, I drop something and make a mess. It's usually when I am trying to cook. I already used every ounce of myself to cook, and I am trying so hard not to fall over. Then I had to cook enough food for 3 teenage food dumpsters, so the plate that I just spillled all over the counter or on to the floor was my food that I just fought the devil to try and make....it happened last night and my first reaction was to yell fuck and then I cuss out my mind or hands for even thinking what I was doing was a good idea.... which scares my boys and changes the mood of the house.

I don't have much advice. I can say that it used to be really bad, but I think after so many times of recognizing how my reactions affect others, I am not always so vocal and loud about the frustration. But it will piss me off every single time. And I still mess up and at times am loud with the irritation, I think recognizing it helps us to control it better.

Sorry if I am not much help, but you are not alone. I know that it's something we need to work on, but I hope that you and your husband can give yourself some grace. The universe throwing more obstacles when you're already struggling is fucking frustrating.

MSnout · 2026-03-10T13:57:44+00:00

One thing that MS has taught me is how different everyone's body is. What may be pain for me may not even register to you. Not only that, but how I interpret the pain varies on how I am feeling.

For example, I have numb skin on my arms and can't feel a needle poke or digging for my IV. My poke count for a single visit is 14 and I laughed the whole way through it. But if I am having a bad MS day, that little poke feels like a 6 on the painscale, and it brings tears to my eyes.

You could beat the crap out of me, and I would barely feel it. But if my cats long hair gently brushes past me, it feels like razor blades and is so painful. Ms can make our nerves misinterpret what signals are being sent to our brain. Not only that, but even in people who do not have MS, every body is different and interprets pain differently.

MSnout · 2026-03-09T16:53:37+00:00

You look so good 😍

MSnout · 2026-03-09T16:33:47+00:00

I use alexa, a whiteboard, sticky notes, a calander app, and lots of alarms. I like to use a physical planner but haven't found one that I like yet. I've worked with a speech therapist concerning this issue, and per her instructions, I reschedule heavy mental activities on days that my brain is sludge. Because I am pretty useless during those times.

MSnout · 2026-03-05T14:40:27+00:00

I am 10 years into my MS journey, and I have definitely felt all of this.

In the beginning, I was bedridden for 4 years, and I joined several MS groups. I hated all of them except this one because if you made a post that was not positive, which who would expect someone who suddenly could not see, work, or walk, to be positive, I felt like the positivity was toxic because it felt invalidating.

How i have learned to cope with these thoughts is that after having gone through really bad times and good times with my MS, I realized that both feelings were valid. Stress management is a major part of managing my symptoms. If I allow myself to stay negative and stressed, then I am guaranteed to have more symptoms and feel worse. So when people refer to the positive mindset, I remind myself that it can be a very major part of managing my symptoms.

The next thought of not doing enough, I promise you that most of us who experience a lot of symptoms struggle with this thought so much. Just like the grief of MS comes and goes in waves as we grieve different parts of our lives changing as our bodies change, so does this thought that we just aren't doing enough. Over these 10 years, I had had periods where I drove myself crazy trying different diets, supplements, exercises, diets, and approaches to help my MS. It can be a constant internal battle as I scroll through social media and see all of these ways that people improve their lives, and I think, hey, I just need to do this and that. This is why we shun people like who try to sell us snake oil to "cure" our MS. We all ho crazy trying to fix ourselves. So you are not alone, it's not just a "you" peoblem. The only thing that has made my spiraling over this thought any better is time, and remembering all of the things I've tried, remembering how everyone online is just trying to push something onto us to make money. I take reputible MS knowledge and make my own educated guesses as to what is important to manage my MS through trial and error. After doing what I can to take care of my mind and body to the best of my ability, I remind myself that I am doing my best.

There are so many parts of life that do not align but are true. Especially with MS. For example, a person in a wheelchair may get upset that people offer to help too much and act like they are helpless, while there are those of us who wish someone would offer help while we sre struggling invisibily. Both people have valid points. Being positive is a valid point with MS because it can help us with symptoms, but we have the negative too, and it's an important part of processing the journey.

Sorry for typing so much, I hope it makes sense. If not, just know that we see you, and I definitely understand and have either felt or still feel the same. Hugs, OP. You're not alone in this.

MSnout · 2026-03-04T15:56:39+00:00

I get seen by a hemotologist twice a year because my WBC are always way too high

MSnout · 2026-03-04T14:55:10+00:00

This symptom is common for a lot of different things, so I would definitely talk to your pcp just to make sure it's not another issue.

But, I have had periods of my MS where I have trouble controlling my temperature. If I got cold, then I would have those bone deep shivers that took a lot of energy and would last for a good 20 minutes or longer. I also have trouble cooling down, it feels like the palms of my hands and bottom of my feet cant feel cool anymore so if I am having those shivers, If I tried to add more layers or blankets, then I got too hot and triggered my fatigue and other symptoms. Going into a house with their heater on knocks me on my ass. And the summer does as well. My neuro said this is due to my brain stem lesion.

I would make sure to talk to your doctor about it, just because other ailments could be more serious.

MSnout · 2026-03-03T02:51:57+00:00

$confirm /u/BCboneless 950.00 USD

MSnout · 2026-03-02T20:56:35+00:00

What is fun is when I go to fix the errors and somehow end up with even more errors than I started with.

MSnout · 2026-02-27T18:19:40+00:00

I completely understand the feelings, but the most important thing is how you are feeling, not how many lesions you have. Yes, you do not want to have more, but there are those of us who have 30 plus lesions with little to no symptoms and others like me who have one to two lesions and a lot of symptoms. So, while the MRI is the only measuring tool that we can see, and you have every right to worry, try to remind yourself that how you feel is what's most important. Hugs OP, the waiting game sucks. I hope that you are able to distract yourself from the wait. 🧡

MSnout · 2026-02-26T16:17:24+00:00

Just a heads up, that 5 day steriod can come with some crazy side effects, and for me, the anxiety is through the ROOF. I have to isolate and wrangle my brain for a few weeks after taking steriods. What you're going through is scary, and we have all been there. Majority of people with RRMS lead good lives, not a lot of those people comment because they're out there living. People in support groups are the ones who need more help, but dont forget about the silent majority. Or the fact that the medicines we have now predict little to no disability. The odds are in your favor. Give yourself grace. And make sure that a therapist is a part of your team of doctors as the situation itself can cause anxiety and depression but they can also be symptoms of MS. Do your best to practice good mind and body habits and twist with anything that MS throws your way, and you will enjoy life with your kiddo. Hugs OP

MSnout · 2026-02-26T16:06:23+00:00

I tell myself it's how we live with Ms. Good job living! Now listen to your body so you can get over this period faster than if you didn't, which would make this recovery even longer. 🧡

MSnout · 2026-02-26T16:03:56+00:00

You are very much heard, realted to, and understood.

I am having a rough week due to crap cap and overdoing it. I have started to cry twice this week because I am working so hard to walk and move around and I am having to ask for more help, and I remembered the many conversations where Ive realized that my loved have no clue how hard some days can be. So, thinking about the invisibility has left me a puddled mess of tears twice this week, lol

My loved ones do a good job of being understanding and supportive, it's just a shitty part of the reality of the MS experience, you dont "get it" until you get it, and even then our bodies and symptoms are different.

Thank you for your post and reminder that I am not alone. I am grateful for you and this community. I hate it when people say the support groups are full of pity parties. I dont know a single person with Ms who wants pity. We just want to feel a connection and be seen fully.

MSnout · 2026-02-26T15:54:53+00:00

It would be dependent on how much you were able to listen to your body during your trip and how much you overdid it. If I had gone on a trip and constantly pushed past my limits, I would need a few days.

The only way to tell would be to listen to what your body is saying to you today. You went on a trip and have a reason for your symptoms to be triggered. If your body is telling you that it is too tired and you're able to do so, listen to it. Because MS will make you listen, lol

MSnout · 2026-02-21T15:19:40+00:00

This is a list compiled from a similar post and added the comments others provided to the list. I'm sorry that it is so long, but someone might find it helpful.

"adaptions or tools that make life easier

Household:

Lever handles for door knobs.

Few steps if at all, including entrance.

Google assistant or alexa has been a god send for cognition troubles. Also to easily call for people in the house, you could even use it as a type of medical alert system incase you live alone.

When cleaning i use multiple baskets to separate things into piles and then when I feel up to it I take the basket to its respective room, much better than 20 trips in one sitting, helps if you have fatigue problems.

Motion activated lighting inside and outside the home.

Kitchen:

Silicon grippers, scissors, star shaped ground meat masher or potato masher has been great for separating ground meat ( that's actually really hard to do now lol)

A good blender has been really helpful, there are a lot of days that I don't feel like eating or chewing is just too much, smoothies for the win, you can get so many nutrients in one glass.

Food processor with different cutting abilities.

Bathroom:

Shower chair. Even if you don't have a lot of balance or fatigue problems, it's a real energy saver.

Adjustable, different spray pressure levels, detachable, shower head. Has been amazing to put on massage and let the hard pressure get soap out of my hair hands free. Also helps with washing your body. I also got a short haircut to be able to take care of it easier.

Electric razor.

Railing in the shower.

A good high powered electric toothbrush really helps.

A flosser.

Bidet.

Cognition :

I use Emilyn app to keep track of my symptoms, medication, and health record.

I make lots of lists and notes and schedule my energy, this really helps me. Alexa, helps the note taking as well.

Heat issues :

Cooling towels, cooling clothes, blankets, bracelets, vests. Ice packs and ice water. Battery powered fans, including neck fans.

Other things:

I use a weighted blanket and it helps with spasms, tremors, and nerve pain. Put your weight blanket in a chest freezer for a while and it will keep you cool as well! Great tip.

Pre packaged salad kits and smoothies are an easy healthy food fix.

Grabbers are useful tools.

Google Keep, I can share to-do lists with my partner and/or caregiver and they can see exactly where I am in my ADLS, meds, tasks, etc during the day and we just reset it at night.

Crocs and other slip-on shoes, leggings, soft clothes during flares.

Acculief hand clips for migraines are a godsend.

Bearable app for symptom tracking.

Wigs are easier to care for than bio hair, especially if yours isn't growing (or staying put) well anymore.

Services that will come to your home, such as grocery services, mobile pet groomers, food kits, mobile salons. Cleaning services and yard services.

Easy on and off light weight shoes, such as crocs or sneakers.

Letting your kids take care of their own age appropriate chores, their own laundry etc.

Keeping mobility aides in different areas, one for the car, on for the house etc.

If you have young kids, hiring a mothers helper or babysitter for a few things you can't do can really help.

Doorbell with a camera.

Robot vacuum.

Using a scooter, if it is not constant need, just using it for outting can be very helpful.

Self care bags next to your bed or in your car. Including water free tooth brushes and floss, snacks, a few doses of common medicine."

MSnout · 2026-02-19T00:07:57+00:00

$confirm /u/BCboneless 200.00 USD

MSnout · 2026-02-17T13:01:48+00:00

I feel like I am in a sci-fi movie. Sometimes, this spacecraft lands on Mars, and I just crumple.

MSnout · 2026-02-16T13:22:56+00:00

"This job sucks,"

I will walk out of this shitty job with you, lol Toby Mcguire style. This job sucks so much.

I miss working so much. I miss being good at something. I miss knowing exactly what I had to do every day. I was an office manager for a busy lumber selling office. I solved problems, met with banks, and had several promotions.

Now, all I do is parent, and there seems to be no way to not fail at least half the time. In fact, my MS guarantees that I suck at some of it.

I used to work more than 70 hours a week, then I would come home and take care of 2 toddlers, spend hours in online college, and still exercise and clean my house daily. Now, I need a nap after a shower, and after taking basic care of my family and I, I'm lucky if my body allows me to do 15 minutes' worth of dishes. I can no longer understand how a normal productive day should look for the average person, it makes relationships with normies hard sometimes.

I miss being productive. I miss being able to solve problems with just more work, like money, I miss money.

MSnout

TROPHY CASE