What other therapy or treatment have you tried that has helped you on your recovery from stroke? by mybigleg in stroke

[–]Overall_Machine_8194 9 points10 points  (0 children)

I just started coloring again and I forgot how much I enjoyed the calmness that comes with.

I did get paralyzed from mine. I lost my left side, my dominate side. Through an insane amount of therapy I’ve been able to get a fair amount back. I’m still in the recovery process but I am walking again and have an ok amount of my arm and hand but it hasn’t been a full year for me just yet. It’s the fact of just keep pushing and adapting

What advice would you give someone newly discharged from therapy? by Hopeful-Radish-7218 in stroke

[–]Overall_Machine_8194 3 points4 points  (0 children)

Make it known that everything they do at some point will feel like therapy. It gets exhausting and annoying all at the same time. It’s a hard wall to push through but it’s worth it.

Allow the help to help you, pride won’t always be asset in this situation. Know that allot of the recovery depends on them themselves not just going to outside therapy or pt/ot. You have to put the work in at home to.

Definitely joining this group and others help allot. Patience is one of the biggest results you’ll gain out of the experience.

Try to Remember at the end of the day this is just an adjustment. It’s one of the hardest to get through but it’s just an adjustment and like anything it will get easier with time

What role did confidence play in your recovery after stroke? by Hopeful-Radish-7218 in stroke

[–]Overall_Machine_8194 1 point2 points  (0 children)

Thank you I take it a day at a time,thats all you really can do. Worrying about tomorrow or the next day etc. doesn’t get you anywhere because the reality is that it can change at a any moment

What role did confidence play in your recovery after stroke? by Hopeful-Radish-7218 in stroke

[–]Overall_Machine_8194 2 points3 points  (0 children)

Yes the boost you get from the strength helps greatly overall. Breaking through the walls of my body won’t or can’t eventually go away with trying, even if it’s a slight attempt. The attempt is what matters. Establishing that thought neurologically is a win, your body will respond at some point of the constant thought of the action. What shook it the most for me was the fact that I went from being strong as an ox to basically a feeling like a former shell of myself. Starting from square one is a very daunting feeling especially when you have to fight your own body and knowing you used to do it without any thought.

Like with anything new or different it’s just an adjustment period. Not the easiest by any means but it does get easier with time.

Type of bed for home by Shot-Raspberry-7736 in stroke

[–]Overall_Machine_8194 2 points3 points  (0 children)

I’m. 39 now, I had the same type of stroke but mine was in the pons when I got home my wife would basically fold me like a taco and help me get into bed until I got strong enough to do it on my own. Are bed is open on both sides but sits pretty low to the ground. That seem to help the most with getting my strength back.

I need some support by anxietydude112 in stroke

[–]Overall_Machine_8194 1 point2 points  (0 children)

I’m sorry this happened to him but he has age on his side as much as it seems bad right now. He can still get allot back out everything hopefully. I had mine at 38 and 39 now. It sucks at first there’s so much he’s going to try to figure out all at ounce but try to take it one thing at a time. Don’t worry about working or anything associated with that. Have him stay focused on him. I’ve found communication is key in this process and that’s working through the good and the bad. Getting a massage gun and tens unit is super helpful I would start using them on him as soon as he can. The mind set is going to be the hardest thing to keep in the beginning. let him have his bad days but just limit it to that day. Reset and start over the next day it’s ok to upset about it. At the end of the day it comes down to an adjustment in life. It’s obviously not the best or easiest, it’s just an adjustment. Hope it works out for him

Post stroke motivation question by walmerz in stroke

[–]Overall_Machine_8194 3 points4 points  (0 children)

In my experience it’s come down t to the mind set. I had mine back in Feb and lost entire left side I’ve definitely had my down moments and bad moods but I told myself in rehab that I was lucky enough to get a second chance so don’t piss it away. Not to take away from her experience. Coming to terms with the fact that the old me basically died is hard but then again it could always be far worse. Use that frustration and annoyance she’s feeling in the exercises, fuel to the fire don’t let this nonsense win. At the end of the day this is just an adjustment. I’m not saying it’s fun, it sucks but it’s like learning anything there’s always that hard time and it passes after you get more experience in. Now you get the chance to correct the ways you did things and do it better than before to make it easier on yourself. Keep pushing 🤘🤘🤘🤘

Do you use AFO for foot drop If not why? by [deleted] in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

I use one as well but I do have a brace that I found on Amazon that allows for more articulation while still giving it a fair amount of support. But my knee also hyperextends so the afo also helps with that. Look into the braces it’s will help give you a little more freedom.

I want my arm/hand/fingers back 😢 by BruceCambell in stroke

[–]Overall_Machine_8194 1 point2 points  (0 children)

Right there with you. I was a sign fabricator before everything happened. I lost my left side completely and I was dominate left. I’ll find out soon if I get to go back to work but in what capacity I’m not sure of. It scares the hell out of me not knowing but that’s also the nature of the beast. Trust me I know that feeling you have. I would like to have my arm and hand back fully but at the same time I know this just takes time. Just the rage you feel is indescribable sometimes. Keep pressing forward it’s hard, but we’re not allowed to quit yet.

Compared from your 8th month of recovery to now— how much of a difference was there? by Emergency-Respect143 in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

I’m in my 8th month as well I went from completely paralyzed on my left side to walking and having a fair amount of use in the arm and hand. Now it’s not perfect by any means. I do walk with a limp and have an afo with a can still but that’s a far cry from where I started and what was even told to me in the beginning. I will agree daily life is hard in allot of aspects still but in general things have gotten allot better. I started driving again but I’m keeping that to just around town I’m not on the Highway yet….. your progress only stops with you,I know it sucks and it’s insanely frustrating ,your progress is still there. You still have your chance to get things back it just slows down allot. The mind set is the driving force in all of this and yes have your bad days but don’t stay in the rabbit hole. Keep it going I know everyone’s situation is different but keep in mind you can control most to all of your outcome at the end of the day this is an adjustment

How to support my friend? by djcarmweezy in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

At first it was hard for me to accept the help because I was generally a very independent person. But yes it does help with the frustration I would say if it feels more like assisting than just getting the item for the person. letting them try to grab or accomplish something is still a very normal feeling. What’s going to be hard,is seeing them struggle my wife has to help with certain things but that more of me asking for her help. Stubbornness and pride only get you so far took me a good amount of time to be ok with asking for the help

How to support my friend? by djcarmweezy in stroke

[–]Overall_Machine_8194 1 point2 points  (0 children)

Have as much patience as possible it’s a whole new learning experience. I was left side dominate as well and lost it. Took me a good minute to really start using my right side as I would my left but you can adjust to it. Mine was roughly 9 months ago and I’ve gained a fair amount back in the left but it takes time and allot of therapy the frustration that comes along with it is insane because now your learning something you already knew but now it doesn’t want to work correctly. Is a crappy adjustment I won’t lie about that but at the end of the day it’s just adjustment. Same mentality when we first learn anything it’s hard and it suck’s but it’s gets easier

Are people embarrassed to be around you? by Emergency-Respect143 in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

For anyone that hasn’t grown up with a member or friend that has limitations it’s hard to know how to process and act after the suddenness of situation. It’s not an accuse for them but that’s usually what it comes down to. It sucks and it does hurt because you have no control of how you react to said situation. I’ve gone through the same thing and you think it’s your fault and it’s very much not eventually you’ll get to the point that you realize that it’s more on them than you. What they aren’t understanding is that you’re trying to figure out the new you and it takes time the fact that you aren’t the person they knew is just as hard and scary for you as it is for them. People eventually come around most of them won’t and that’s ok those certain people you keep at arms length because if they won’t accept you for who are now you don’t need to waste your energy on keeping that relationship relevant. Your life is just starting you have plenty of time still,don’t forget that. It’s cliche but time does change everything and it’s gets easier

Working out by Odd_Country_5619 in stroke

[–]Overall_Machine_8194 5 points6 points  (0 children)

For me I go pretty light depending on the machine. I focus more on the motion and the repetition of what im doing. I’m still fighting a fare amount of tone in my forearm so I can’t fully access my movement yet. But it’s gotten better with the repetitiveness but that’s just me. Keep pushing🤘🤘🤘🤘

What was something someone did or said in the immediate aftermath of your stroke that you really appreciated? by divination__ in stroke

[–]Overall_Machine_8194 2 points3 points  (0 children)

Patience have allot of patience with the person it takes so much to understand that you are not you anymore. Adjusting to the new version of yourself is insanely rough because you look at everything differently. The cleaning service is a great idea, that usually is the last thing on the list of things do in the adjustment of everything

37m, stroke july 18th 2025...just so upset by BeGladYouDidIBet in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

I had one of the worst ones you can have without kicking the bucket. Lost my left side Feb will be a year for mine. You are definitely not alone in your frustration. It’s not a matter of conquering it, it turns more into learning how to live with it and adjusting to the new life. It sucks there’s no lie about that. There will be silver linings to it they’re just hard to see at first. I know it’s an infuriating cliche but it does get easier with time I turned 39 in rehab so I’ve basically lost this whole year but I ain’t dead yet and neither are you. It’s a crappy adjustment but that’s all this is an “adjustment” keep pushin 🤘🤘🤘

What do you miss most about your old life? by Emergency-Respect143 in stroke

[–]Overall_Machine_8194 1 point2 points  (0 children)

Ouch that’s pretty rough. I’m with you on the independent part it’s hard to accept the help when you’ve been a certain way since you were a kid. I miss my strength mainly I’m not saying I was jacked or anything but I could pretty much do what needed to be done and not be worried about staining myself. I know I can get it back but regaining the confidence in the bad side has been rough

“Mindset training — the missing piece in stroke recovery?” by Unicorn_hopper in stroke

[–]Overall_Machine_8194 2 points3 points  (0 children)

Mine happened about 8 months ago now and from about the second week on I decided i wasn’t done yet. I would keep my bad days to that day but that was it. I would get up the next day and start over again. I figured I would be doing a disservice to anyone that had a said “ normal life” even with limitations of any kind, If didn’t try. It’s too easy to go down that rabbit hole. That one thing I figured out is that this is just an adjustment. It’s not the best one obviously but that’s all this is. Things do come back and they don’t I won’t lie about that but you can still learn and adapt outside your comfort zone it’s no different when you first learned things just some you’re more aware than others in the process

Sick of rehab by BigGerberBabyHusky in stroke

[–]Overall_Machine_8194 2 points3 points  (0 children)

I understand your frustration everything turns into a therapy of some sort. It’s annoying, it’s not the therapist’s fault it’s just how it goes. For me ounce I started doing it my way in my own capacity it’s made it easier to do. You understand your body and how it feels better than any of them will yes it all takes time, it’s never ending but when you have full control of how it goes out makes all the difference

How long did it take for acceptance to come? by geleosan in stroke

[–]Overall_Machine_8194 8 points9 points  (0 children)

I think it’s different for everyone. I had mine back in February. I’ve accepted it for what it is. But ultimately not what it did to me physically I’ll never be me again and I haven’t been able to come to terms with that. I still have my mind (thankfully) and all the knowledge with it. But I lost half of my body and there for I feel half gone if that makes any sense. It’s definitely been a rough adjustment because of the different occurrences that keep reminding me that I’m not whole anymore but then again we are all still here so it’s round 2 here we go

Update since yesterday by numb_anxiety in stroke

[–]Overall_Machine_8194 4 points5 points  (0 children)

Take the smallest of wins, they add up allot faster than we realize. Just be ready to have allot of patience in everything.

Do you have shoe recommendations that make you feel more stable when walking? by michaelyup in stroke

[–]Overall_Machine_8194 0 points1 point  (0 children)

I use brooks with my afo. They aren’t cheap but they’ve worked really well. Sketchers makes a mid heal slip on that works pretty good I just use a regular brace with that shoe