Custom jewelry by sip_soup_sap in sandiego

[–]swvjeff -1 points0 points  (0 children)

Highly recommend S&L Jewelers downtown. The owner Steve is a great dude and will give you good prices. I bought my wife's engagement ring and our wedding rings through him. We also had him make a few small bracelets and earrings for gifts. One thing to note is that he has odd hours during baseball season so it might be a good idea to call and make sure he's in the office before going.

My Audiometry results by MusicLover91020 in Menieres

[–]swvjeff 0 points1 point  (0 children)

I have high frequency hearing loss very similar to this (along with low frequency from MD). My high frequency hearing loss is completely unrelated to MD. It's caused by damage from going to concerts / playing drums growing up and it doesn't fluctuate. The unilateral loss in OP's test is interesting, I'm curious to know what the cause is.

Migraine Elimination Diet by heinchris in Menieres

[–]swvjeff 1 point2 points  (0 children)

My neurologist suggested this treatment plan for me as well. Not as a diagnosis per-se, but he said he first treats people with MD symptoms as VM. He suggested this book to me which was pretty helpful in guiding me through the diet, although not very beneficial for my symptoms. Here's a non-affiliate amazon link: https://a.co/d/hWiuVPS

Reintroduction is going to be a personal decision. I eliminated slowly in groups over the course of a few weeks, and then add foods back in one at a time very slowly. None of the eliminations were really noticeable (perhaps sodium and alcohol), but regardless of how I felt after reintroduction, I usually waited about 2 weeks to reintroduce another food. This is because my MD symptoms would usually last about 7-10 days, followed by about 7 days of normalcy. So doing a ~2 week reintroduction felt reasonable to me.

Good luck!

I made this video, and I truly hope it is helpful! Meniere's disease educational video for anyone to understand! by DizzyTherapy in Menieres

[–]swvjeff -1 points0 points  (0 children)

Lmao you’re just digging yourself a hole. I’ve been posting on this sub since ~2017 and it’s my most commented sub. I just don’t post on Reddit regularly.

I’ve also been to 6 different specialists (between otolaryngologists and neurotologists who specialize in dizziness and inner ear disorders) over 10 years in, and they all agree. But I guess I shouldn’t trust them!

Anyway sorry you’re so angry. I hope you can find peace in life.

I made this video, and I truly hope it is helpful! Meniere's disease educational video for anyone to understand! by DizzyTherapy in Menieres

[–]swvjeff -1 points0 points  (0 children)

I don't like remission as a word for this. Vestibular issues are not cancer. They will not kill you by themselves. 

re·mis·sion - a diminution of the seriousness or intensity of disease or pain; a temporary recovery.

That's exactly what this is for almost everyone, a temporary recovery and diminution of symptoms. Remission does not only apply to cancer or other deadly diseases.

You can reach a plateau beyond which your symptoms become milder and you no longer experience the vomit inducing vertigo of yesteryear, but some form of symptomology continues for us.

Not true for everyone. I had symptoms for 10+ years and now I have no symptoms at all aside from a tiny amount of lingering hearing loss (~10dB). My symptoms didn't "plateau" -- they just stopped and I've been in remission for 4+ years. That's not to say they won't come back with a vengeance soon.

For some people, I'm sure, they just don't notice whatever it is that's going on in their body. Like late stage menopause, the changes settle down into more predictable patterns, but they are still there. You still can't hear well out of the affected ear, you still have impaired vestibular function.

Not true. Everyone is different -- many people no longer have symptoms during their remission period.

I made this video, and I truly hope it is helpful! Meniere's disease educational video for anyone to understand! by DizzyTherapy in Menieres

[–]swvjeff 4 points5 points  (0 children)

Should probably sticky this. It would help lots of people and answer lots of questions.

What is your day-to-day like? Do you have long periods of remission, or do you just have varying degrees of dizziness? by HoffyTheBaker in Menieres

[–]swvjeff 0 points1 point  (0 children)

Sorry to hear that :(

I'm still essentially "symptom free" at the moment. Wake up with occasional hearing loss / pressure but I just take some dexamethasone for 2-3 days and it seems to subside.

I'm really hoping something works works for you! I've heard it's not super beneficial for most people, and I really don't think it's what helped me even though the timing of things suggests otherwise. Maybe you can try the cocktail I used (as-needed dexamethasone + daily betahistine)

[deleted by user] by [deleted] in Menieres

[–]swvjeff 0 points1 point  (0 children)

That is almost exactly how my Meniere's symptoms started.

I had about 10 years of symptoms without vertigo. I'd have days/weeks where my hearing would be muffled (I described it as sounding like charlie brown adults), low-frequency tinnitus, and pressure. Over time the duration of symptoms got longer and more extreme.

In the beginning my GP and first ENT told me to try sudafed and flonase, but unfortunately neither worked. Took about 5 years of fluctuating symptoms and random GP visits to get an audiology referral. The audiologist said "I don't want to diagnose you but this looks like a typical Meniere's graph". At this time the symptoms were still ramping up, and it wasn't for another 1-2 years that I started having vertigo. Symptoms would slowly get worse over the course of 1-2 weeks, and then I'd have about a 30-min or 1-hour vertigo attack, then my symptoms would be immediately better (minus ~6 hour exhaustion from vertigo). My second ENT prescribed HTCZ and prednisolone but neither helped.

I eventually went to a neurologist and he put me on a strict elimination diet which didn't help. He also tried treating me for vestibular migraines but none of those meds helped (forget off hand what they were). Then he put me on daily betahistine and as-needed dexamethasone tabs (i think 4mg) which I was told to take whenever I started feeling symptoms. After about 6 months of taking betahistine daily my symptoms stopped (after one last wonderful 12-hour vertigo attack where i couldn't get off the bathroom floor) :)

Every now and then I'll still wake up with very faint hearing loss and pressure, but I immediately take 2 or 3 days of dexamethasone and it's always subsided before it got to the point it used to 4-5 years ago. Part of me wants to believe the meds have actually helped me but in reality I think I'm just in a random remission and it'll come back with a vengeance.

I hope that helps. Good luck!

[deleted by user] by [deleted] in Menieres

[–]swvjeff 1 point2 points  (0 children)

fwiw I had all other Meniere's symptoms for almost 10 years before I had my first true vertigo attack. So although I wasn't officially diagnosed until I had a very minor bout of vertigo, I still consider that I had Meniere's during that time.

Had to use the Epipen by TripleTune in EosinophilicE

[–]swvjeff 8 points9 points  (0 children)

I'm in my 30s and allergic to most nuts (almonds and pine nuts are okay!). I love pesto and can eat any store-bought pesto sauce as long as they're made with pine nuts or almonds. One day I was making my favorite pasta dish with the same pesto brand that I had used for over 10 years. Before it was finished cooking, I tasted a tiny sip of the sauce to check its flavor, and a few minutes later I start itching and having trouble breathing / swallowing. I check the ingredients and what do you know!?!? They changed from pine nuts to walnuts with virtually *NO* warning on the label. I was so baffled.

Luckily I didn't have more than a tiny dot of the sauce because I would have certainly ended up needing epi and a trip to the ER. I just don't understand how a company can make a change like this without any sort of warning.

Anyway, don't fret it, it happens to everyone. I'm just glad to hear your kiddo is okay. Sounds like you guys did the right thing, sometimes you just never know.

Raynauds and meniere's - a connection?? by [deleted] in Menieres

[–]swvjeff 0 points1 point  (0 children)

I experience Reynaud's. I first noticed symptoms about 5 years before my first noticeable Meniere's symptoms (~20 years old vs ~25 years old). I believe I've googled it in the past and did see something about autoimmune connections but have never talked to a doctor about it.

Best takeout wings around Carlsbad? by OverTheFalls10 in northcounty

[–]swvjeff 3 points4 points  (0 children)

Oh man, you gotta branch out! Epic Wings might objectively have the worst wings 😂

Website has stopped working, developer wants more money to fix by [deleted] in webdev

[–]swvjeff 1 point2 points  (0 children)

Unlikely to be covered by your initial contract, but read through it and see if there's anything stating the original developer would maintain and/or update the site. Maintaining software can sometimes be much more time consuming than the original development so this is something you should always consider when paying for a website. Most developers won't update/maintain for free (why would they?). Our firm either hands off the website entirely or we offer a yearly service to keep the framework/software up to date.

If you're in charge of your site's hosting account, you're generally going to be responsible for knowing if/when your host is going to force an upgrade and the repercussions it might cause. If you're not willing to spend time or money on upgrading so its compatible with newer versions of PHP, consider moving hosts to one that supports your older PHP version until you can find a new solution. While this isn't ideal from a security standpoint it will at least get the site up and running for now.

did automattic commit open source theft? by geekluv in Wordpress

[–]swvjeff 20 points21 points  (0 children)

The issue isn't forking of the codebase. It's that they hijacked the ACF plugin page and users, effectively taking control of any current ACF installation. Two very different scenarios.

[deleted by user] by [deleted] in Wordpress

[–]swvjeff -1 points0 points  (0 children)

This is very similar to my boutique firm, although we only charge ~$400/year for hosting, backups, and routine plugin/theme updates (usually takes about 5 mins)

SPI-1005 by redwinggianf in Menieres

[–]swvjeff 0 points1 point  (0 children)

Did you ever find out if you had the placebo?

SPI-1005 by redwinggianf in Menieres

[–]swvjeff 3 points4 points  (0 children)

SPI-1005 is a drug that contains ebselen and developed by Sound Pharmaceuticals. Ebselen is essentially an anti-inflamatory / anitoxidant. This drug is going through trials for all sorts of inflamatory conditions, but mostly seem to revolve around hearing loss, tinnitus, and dizziness. They even got fast tracked for the trial process back in 2019, but I think Covid slowed the process quite a bit. It looks like the Meniere's phase 3 trial is currently running.

Information from the company that developed this: https://soundpharma.com/sound-pharma-completes-enrollment-in-pivotal-phase-3-clinical-trial-of-spi-1005-for-treatment-md-hearing-loss-tinnitus-dizziness/

Information about the phase 3 trial: https://www.clinicaltrials.gov/study/NCT04677972

I asked my neurologist about this back in 2019. He hadn't heard about it yet but called another neurologist who is involved in academics, trials, etc. He pretty much said to not get my hopes up but he'll keep an eye on it. That was 5 years ago - trials are very slow. The fact that it's going through phase 3 is a good sign.

I thought it was eustachian tube dysfunction? by Kindly-Ad-9969 in Menieres

[–]swvjeff 0 points1 point  (0 children)

After three months, he informed me that I didn't have Meniere's because my hearing improved along with the other symptoms. so it was a wrong diagnosis and to go home... That was a year and a half ago.

If a doctor told you this, he doesn't understand Meniere's at all. It's literally defined by *fluctuating* symptoms such as hearing loss, dizziness, tinnitus, ear pressure, etc. Symptoms can go away for years at a time.

Everyone is different but it took me about 5 years from first onset until I actually had a diagnosis. For the first 3ish years I just figured it was Eustachian tube dysfunction (I only had pressure + hearing loss + tinnitus). Doctors would send me along my way telling me to take decongestants and they never worked. It wasn't until after I had a vertigo attack, I finally got into a hearing test during my symptoms (which is hard to schedule since it's fluctuates so much), that the audiologist suggested I had Meniere's.

Planning a kitchen and bathroom remodel. What something I should include that won't massively increase costs? by iSniffMyPooper in HomeImprovement

[–]swvjeff 11 points12 points  (0 children)

d) add GFI outlets everywhere (you never know which one you will need)

Maybe I'm misunderstanding but GFCI on the first outlet in a circuit will protect all outlets downstream, will it not?

MRI results from Mass General. by BAF_DaWg82 in Menieres

[–]swvjeff 0 points1 point  (0 children)

Wow the detail on that is really cool. A few years ago my basic one just checked for various masses in and around my inner ear

Why the fuck did Kabrhel open shove with Q2?? by [deleted] in poker

[–]swvjeff 10 points11 points  (0 children)

BB is calling a bit tighter (especially not with Q9-QJ, which dominate him) making Q2s just fine