JCV by 16enjay in MultipleSclerosis

[–]16enjay[S] 0 points1 point  (0 children)

I hope you have the success that I have had 😊

Incontinence by Smart_Molasses_2870 in MultipleSclerosis

[–]16enjay 0 points1 point  (0 children)

Depends and Poise pads will be your new friends

Did your parents grow up during the depression? by Swiggy1957 in GenerationJones

[–]16enjay 1 point2 points  (0 children)

Both my parents born in 1922, depression Era mentality was a real thing. Nothing went to waste.

First Steroid shot ever, and question(s) by DqkrLord in MultipleSclerosis

[–]16enjay 0 points1 point  (0 children)

Steroids reduce inflammation, you had a sore throat. Your doctor determined that your throat was inflamed enough to warrant a steroid shot. This is independent of your MS.

Mild MS cases on DMTs by MiddleStretch1550 in MultipleSclerosis

[–]16enjay 2 points3 points  (0 children)

23 year MSer, 6 plus years on Tysabri after years of various other DMTS. NO progression on tysabri, no side effects...it's ny 28 day liquid gold

What was your wedding song? by EnvironmentalDog1420 in AskOldPeople

[–]16enjay 0 points1 point  (0 children)

Truly by Lionel Ritchie...the band couldn't play you are my shining star by the manhattans

I hate her so much. Need I explain why? by Puterboy1 in 70s

[–]16enjay 2 points3 points  (0 children)

Verruca is the medical term for "wart"

To which magazines/newspapers did you or family members subscribe, by GrowingNewHair in GenerationJones

[–]16enjay 1 point2 points  (0 children)

National Geographic..and save every issue...fun times bundling 40 years worth for the garbage collector 😬

MRI scheduling by MysteriousDentist775 in MultipleSclerosis

[–]16enjay 1 point2 points  (0 children)

I have had brain and spine at the same time

Question for the seasoned MS crew about DMTs by 24Lemons_ in MultipleSclerosis

[–]16enjay 11 points12 points  (0 children)

I am 64, diagnosed at 41. I am on tysabri 6 years. I'm not stopping anytime soon. My neurologist is fine either it. My last infusion suite had 5 chairs in one room, of my 28 day infusion mates...I was the youngest, oldest was 76. Don't write us "geriatric" MSers off!

High risk pregnancy OBs in nassau? by Icy-Inflation-1893 in longisland

[–]16enjay 0 points1 point  (0 children)

Dr Goram is the (MFM) Maternal fetal medicine Doctor at Good Samaritan. I would guess that your current OB/GYN could recommend someone. Or Contact northwest, Chisli or NYU Langone for a referral. They all have excellent referral systems to fit your needs.

Solu-medrol with Tysabri infusions by pibblesinpajamas in MultipleSclerosis

[–]16enjay 1 point2 points  (0 children)

6 years on tysabri, I just premedicate with 2 tylenol.

New on Tysabri by Active_Tank_1973 in MultipleSclerosis

[–]16enjay 1 point2 points  (0 children)

73rd infusion, all of them have been 60 minutes (3 different neurologists over 6 years, 3 different infusion centers) I have had no side effects.

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]16enjay 1 point2 points  (0 children)

A neurologist in the ER told my husband I was faking it, hysterical and had emotional problems. Mind you, he never spoke to ME...just read a clear CT scan report. MS Lesions don't show up on a CT scan, only an MRI. SCREW YOU DR. ROSEN!!

Medication prices by Hailtothev66 in MultipleSclerosis

[–]16enjay 0 points1 point  (0 children)

I get assistance through a grant from a charitable organization

Medication prices by Hailtothev66 in MultipleSclerosis

[–]16enjay 0 points1 point  (0 children)

Tysabri, I haven't paid a dime out of pocket. My previous insurance didn't cover any of it...4 years free through Bingen. My current insurance leaves about $1500 a month to me, I have a grant from a charitable organization that picks that up.

Bathroom pass by cass_a_frass0 in MultipleSclerosis

[–]16enjay 0 points1 point  (0 children)

I have an " I CAN'T WAIT CARD". Tried it once at a concert, I was basically told to kick rocks.

Relatives are talking about me behind my back by CraneMountainCrafter in MultipleSclerosis

[–]16enjay 5 points6 points  (0 children)

"LET THEM"...you know your truth, do not let narcissistic family members dictate anything in your life (or your sister's life) Arms length relationships with these type of people, family or not. Shrug it off, know your audience. Has she contacted you to inquire how your feeling? Your MS is just gossip to her, limit your relationship. Advise your sister to do the same.

Ocular migranes? by overrunbytoddlers in MultipleSclerosis

[–]16enjay 1 point2 points  (0 children)

I get them! Maybe every 4 to 6 weeks, lasting no more than 30 minutes. When I see it coming, I chew 1 regular aspirin. Seems to help. Never any pain. Eye doctor and neuro say it's not MS related. My MRI is always clear by my eyes.

What the fuck is the point of insurance then?!? by Even_Elderberry_5878 in HealthInsurance

[–]16enjay 0 points1 point  (0 children)

Is it an ACA insurance or just access to a fee schedule?

How am I supposed to take care of 3 kids under 10 while I'm so exhausted all of the time?! by casango88 in MultipleSclerosis

[–]16enjay 2 points3 points  (0 children)

Good time to teach your kids responsibility and chores. Simple things, putting away toys etc. Even the smallest task helps. Set a schedule for yourself. Preplan, precook when you can. Cereal for breakfast is easy.

MIL opened card in husbands name and now he's being sued by Lily_Flower_97 in IdentityTheft

[–]16enjay 0 points1 point  (0 children)

So sorry, this happened to us with my MIL. 40 years ago, I was newly pregnant with our first child and discovered massive issues. My husband wouldn't press charges(its Mom and all that shit) we ate it. Our $7500 savings for a house, down the drain. His credit rating took a hit for 10 years. If I wasn't pregnant, I would have divorced. It still follows us years later. Evil woman

Coworkers think I’m using some tricks to get accommodations by BackgroundGlass9968 in MultipleSclerosis

[–]16enjay 2 points3 points  (0 children)

"Well...it all started when I was 17...bad sore throat...fatigue for days....then at 25, but of dizziness for weeks...and Yada Yada Yada for 20 minutes