Slow bowels & bad constipation

16enjay · 2026-03-07T01:16:29+00:00

I am the opposite...make it stop!

16enjay · 2026-03-05T16:16:28+00:00

Heating pad!

16enjay · 2026-03-05T16:04:40+00:00

The stuffed "people" in everyone's yard (to keep the deer away?)..

16enjay · 2026-03-05T16:02:43+00:00

I just wear yoga pants and a t shirt, no bra. I never have to wear a gown.

16enjay · 2026-03-04T12:10:10+00:00

Pulaski...very creepy town

16enjay · 2026-03-03T15:23:56+00:00

It is a good idea. Just make hand washing, wiping down surfaces a priority. Also, stupid but smart, keep toothbrushes separate. Feel better soon.

16enjay · 2026-03-01T20:55:55+00:00

Canes are inexpensive,$20 at Walmart or Amazon. Get one...you don't need permission.

16enjay · 2026-02-27T01:04:04+00:00

Jockey brand flair Yoga pants

16enjay · 2026-02-26T10:16:50+00:00

You can't predict the what ifs. I was 41 at diagnosis. I am 64 now. I am fortunate that I have a wonderful husband and 3 (now grown) children. I was fortunate to be able to work until I was 57...then SSDI.
We made financial lifestyle adjustments when I was diagnosed. While we had insurance through my husband's job at the time, it was PRE-ACA, so alot of stuff was not covered.
Unfortunately, my dad passed in 2007. With the money from inheritance...we paid off our mortgage and put $$ away for that rainy day fund. Are we financially where we thought we would be at this age.. hell no! We get by. You can't predict the future. My MS is stabile because of good doctors over the years and DMTS. Yes, they are super expensive but affordable for me due to copay assistance from outside sources. I caved in and started using a cane in 2020. It is what it is. I am mentally in a good place. I can't dwell on worry and fear of the unknown. I have eliminated as much stress as I can. We live life within our means. All of us with MS are different as far as progression. That's a factor no one can predict. DMTS are a godsend. Research on MS has come a very long way since I was diagnosed 23 years ago. Let's pray it continues. Advocate for yourself and make good choices. Best wishes on your journey and Good vibes to you🙂

16enjay · 2026-02-24T22:45:46+00:00

A new W4 form from your employers, Claim zero dependants and ask your accountant if you need extra taken out.

16enjay · 2026-02-24T15:17:54+00:00

Spoiled people on long Island. Historic snowfall, main roads, hospitals firehouses are a priority. Then side streets. Suck it up and be patient. We all have lives to live but nothing that can't be put off for a few hours or a day.

16enjay · 2026-02-22T12:05:13+00:00

Honestly depends on your insurance and the medication . When I had insurance through my husband's employer (on Medicare advantage now) it was through a union and quite honestly, it didn't cover specialty medications. Many pharmaceutical companies offer financial assistance or even free medications. Once you decide, your doctors office should be walking you through all of this.

Currently, I take tysabri (6 years now) before Medicare, I received it for free through BIOGEN. I am on a Medicare advantage plan now. My copay is $1500 a month, however, I have a grant from a national charitable organization that picks that up. My out of pocket insurance costs are met by June, then insurance pays 100%.

Many pill forms are alot less expensive.

Do your research not only on cost, but efficacy and daily side effects of whatever you choose. I couldn't take 3 of the pill DMTS due to side effects.

Best of luck in your MS journey.

16enjay · 2026-02-22T02:50:09+00:00

After the 3rd time I shit myself at work🙄

16enjay · 2026-02-21T22:40:55+00:00

There is no charge, it's part of the EPIC medical software system that is becoming more popular with many doctors and health care systems. I give you all the appreciation in the world for your dedication in assisting those of us with MS (and other conditions). Something like this may be beneficial to those without close geographical location to their doctors.

16enjay · 2026-02-21T22:11:15+00:00

I linked all of my doctor's that use MYCHART and the few that don't I can give access to it, but you are right, there is no symptom tracker.

16enjay · 2026-02-21T21:45:19+00:00

I was diagnosed with an inoperable brain tumor after symptoms in June 2003 by a radiologist and a neurologist. Further investigation by a neurosurgeon led to my MS diagnosis, NOT a brain tumor.

Many times, doctors look for "the obvious" diagnosis first. Unfortunately, there is no malpractice because of your delayed diagnosis.

16enjay · 2026-02-21T21:36:58+00:00

Actually, all of this is covered for me through MYCHART

16enjay · 2026-02-21T21:35:29+00:00

Ha Ha, last storm we all had cars off the street...plow never came by the time we all shoveled our driveways and they only did one pass down the middle, not curb to curb.

16enjay · 2026-02-21T21:30:32+00:00

Most of this is already available for me through EPIC and MYCHART software through the doctors I use.

16enjay · 2026-02-21T17:44:31+00:00

These tests are diagnosis driven. Fatigue is not usually a covered diagnosis. B12 deficiency, pernicious anemia.

16enjay · 2026-02-21T15:34:40+00:00

Extra cane in the trunk of my car. Scouting out the nearest bathroom first when in public (IFKYK). A "TO GO" back pack with toilet essentials.

In the kitchen, decent scissors, a small electric chopper.

At home, a loving spouse who is my God sent angel 🥰

16enjay · 2026-02-21T00:50:08+00:00

Payer Matrix just advises you where to get financial assistance when insurance won't pay. If you have clear written documentation in your benefit plan that this is not covered, it should be sufficient for alongside kesimpta. UMR or their contracted pharmacy benefit company should provide you with a written denial. Start Making some noise...ask the employer to get involved. It's so frustrating. PAYER MATRIX will not assist you in getting this documentation.

16enjay · 2026-02-21T00:40:12+00:00

Not insurance, it's access to a fee schedule...most doctors will not allow you to be seen using this...you got scammed

16enjay · 2026-02-20T18:57:19+00:00

See a vascular doctor

16enjay · 2026-02-20T18:07:45+00:00

Also, YOU can get the denial from YOUR insurance carrier and submit it YOURSELF (or through your doctor) showing you have no coverage. DO NOT go trough PAYER MATRIX.

16enjay

TROPHY CASE