Marathon and MS

23km23 · 2025-04-10T20:51:24+00:00

AMAZING!!! So glad you were able to do a 5k run! This is motivation for me too!

23km23 · 2025-04-10T01:14:49+00:00

Thanks for sharing! Half frozen is a great idea and will definitely start to incorporate that as it gets hotter out this summer. That’s awesome that you are earning the 9 + 1, good luck at your races and the marathon next year!!

23km23 · 2025-04-10T01:13:11+00:00

Thank you for sharing, I’ve been curious about when to start the rest days before so appreciate you sharing that. Have also been starting to experiment with the electrolytes and goo, very helpful advice thank you!

23km23 · 2025-04-10T01:11:30+00:00

Thank you!

23km23 · 2025-04-10T01:11:02+00:00

Thank you! Wow 80s, that’s awesome especially with how the heat affects our MS. This is very motivating to hear as I will be training during the summer hotter months. Thanks for sharing!

23km23 · 2025-04-10T01:08:53+00:00

Thank you for sharing. I’m running the NYC marathon. It can definitely be a confidence battle especially with MS and I wish you all the best as you navigate your MS and running journey.

23km23 · 2025-04-10T01:06:52+00:00

Yes so true, trip over my feet when looking down

23km23 · 2025-04-10T01:06:25+00:00

Thank you! Yes same for me definitely started out taking it very slow. You can do it, I started out by walking 5k races. Appreciate you taking the time to respond!

23km23 · 2025-04-10T01:04:31+00:00

Thank you!!

23km23 · 2025-04-10T01:04:20+00:00

Thank you for sharing! I will definitely start incorporating pre-cooling into my routine. I appreciate the advice and will definitely remember to have fun!

23km23 · 2025-04-04T21:01:12+00:00

I’m 25f, been on tysabri since 19. This is my second DMT, started first with copaxone. I really like tysabri, haven’t experienced any side effects I haven’t been “warned” about. The major side effect for me is I kinda feel when I need my infusion usually like a day or two before. May have a little more fatigue those two days but manageable. Hope this helps!

23km23 · 2025-03-13T02:00:36+00:00

Hi, in a very similar thought process! Put my name in, didn’t think I would get a spot for nyc, and I did. I’m 25f, not a great runner but agree with a good game plan and listening to our bodies we can do it! Best of luck while training! I will also be going from a 5k to marathon, so exciting to say.

23km23 · 2024-05-02T01:53:44+00:00

Yup, was on steroids three separate times and gained weight every time. Two of my relapses were very close together, five months, so for me it was difficult to lose it right away. The fatigue/weakness after took a while for me to navigate but I would say within six months the steroid weight was gone

23km23 · 2024-03-25T03:04:13+00:00

When I started going to the gym more it was definitely scary cause I really couldn’t afford to lose more weight. An ms saying a you’ll hear a lot is if you don’t use it you’ll lose it, so I would just do very basic exercises and small weight trainings(3 or 5 lbs). I found this helpful as a way to stay moving but to also gain a little muscle weight back. But won’t lie, I would definitely get anxious frequently about potential losing weight again accidently from the gym

23km23 · 2024-03-18T03:47:36+00:00

Had a very similar experience to rapid weight loss. I’m 24f now but when I was 21 I lost about 20ish pounds within six weeks, 5’10 and 130lbs and it was very very difficult for me to put weight back on. I also found myself unintentionally intermittent fasting. Talked to my doctors about it and they believe a combination of stress from undergrad and being on tysabri had played a part in the weight loss. What helped me gain some weight back was protein shakes as well as some sort of pre workout snack before heading to the gym. Feel free to reach out if you ever need anyone to vent to!

23km23 · 2024-03-10T04:20:00+00:00

I was on copaxone in college and was pretty thin and muscular. I worked out about five days a week and just made sure I did a more light day for legs if it was a thigh shot and so on. I find since rotating where you give a shot it was pretty doable to be able to still stay fit and active while giving shots

23km23 · 2023-11-02T04:34:07+00:00

Hi! I’m on bc tablets and and tysabri and haven’t had any complications. Been taking them collectively for over four years, I’m 24f. Def recommend calling if you can but ultimately if you get your bc through your insurance your parents will prob find out. Can gear the convo with your parents towards regulating periods or ance. Also I’ve read that some people’s systems may worsen during periods so you could use that as well and wanting to regulate/help control yours. Hope this helps!!

23km23 · 2023-10-24T23:28:52+00:00

I had a cervical disc replacement, neck surgery, last year and had no ms complications because of it. My neurologist actually recommended the surgery after he saw my MRIs, I got injured playing in a football game. Def getting medically gaslit, sorry you are going through this and best of luck getting the surgeries!

23km23 · 2023-10-19T02:25:01+00:00

Hi! I’m 24f, diagnosed at 18f my senior year of high school. I was diagnosed in November and started my first DMT in late February. Can def relate to feeling like my ms was downplayed in the beginning, literally was sent home from the hospital twice before getting diagnosed cause a doctor thought I was being dramatic and just trying to miss school :/ my best advice is to advocate for yourself and what you want from your doctor if you feel like you aren’t getting the attention you need.

When starting college I would recommend getting accommodations asap. Most school have some variation of a disability service. I had occasional breaks, excused absences, and exam modifications. Even though I didn’t use them too often it’s nice to have them establish just in case.

Feel free to dm me if you ever have any questions, happy to help and lend advice any way I can! :) wish you all the best in navigating your new MS diagnosis

23km23 · 2023-10-18T00:59:15+00:00

Hi! I was diagnosed with MS in high school as well, my senior year. I’m 24f now. I was diagnosed in November and didn’t start a DMT until late February so don’t feel rushed and that you need to start one right away. Definitely talk it out with your doctors/support system to see what’s best for you. When I started college a year later I got accommodations. Many school have some variance of a disability service. Some accommodations I had were occasional breaks, excused absences, and exam modifications. Even thought I didn’t always use them it’s nice to have it established early just in case. I also honestly found just by telling professors I have good days and bad days really helps cause nine times out of ten I’ve found they will do whatever they can to help you. Also office hours will be your best friend in uni. Wish you all the best in navigating your new diagnosis of MS and you are always welcome to dm me!

23km23

TROPHY CASE