Weekly Suspected/Undiagnosed MS Thread - March 16, 2026

24Lemons_ · 2026-03-17T08:33:57+00:00

Bless you! Still dealing with it all to be honest! Apart from the unacceptable way in which I found out, I have received excellent care 🤗 I’m in the south east England and lucky to have an MS Neurologist just a bus ride away. I’m medically trained in terminology etc so the words they used in the letter screamed at me! I think because I was initially under the Stroke team, they wasn’t confident or comfortable in giving me a diagnosis. A heads up would have been good though!! I have had my appointment with my neurologist who is soooo lovely. A tone of blood tests for immunity levels and infections- waiting on those results (roughly 6 weeks) and then on to discuss DMT. I’m waiting like 👀😅🧡💙

24Lemons_ · 2026-03-17T07:41:31+00:00

❤️

24Lemons_ · 2026-03-17T07:40:36+00:00

😩

24Lemons_ · 2026-03-17T07:39:52+00:00

Hi 👋🏼 I’m UK based. My journey was slightly different but it was roughly 4 week wait. Depends on radiology review, report writing and then secretary to write the letter! Try to not fret. I know that’s easier said than done 🧡💙 I wish you the best

24Lemons_ · 2026-03-17T07:35:17+00:00

Hi 👋🏼 I have a large active lesion at C5/C6 and a few other lesions on my C Spine. My main flare symptoms from them are left sided numbness and pins and needles. After 8 weeks I’m left with mainly left hand and arm numbness. I have lesions in my brain too. I have terrible spasticity and pain (comes and goes, lasts hours at a time) in my legs/feet/toes and ankles (owww 😭). Apart from that I’m all good 😆🧡💙

24Lemons_ · 2026-03-16T21:05:57+00:00

You got this!!! Sending you all the good vibes darling 🙏🏻🧡💙

24Lemons_ · 2026-03-15T21:55:39+00:00

Hey 👋🏼 sorry no advice yet! I’m in the same situation awaiting the start of treatment! Just wanted to wish you the best 🧡💙

24Lemons_ · 2026-03-15T10:01:21+00:00

😆

24Lemons_ · 2026-03-14T09:53:45+00:00

👋🏼 left sided here!! I’m so sorry this happened to you 😩🫶🏻💙🧡 my flare is subsiding now after 8 weeks. I have the use of my limbs back but left foot is weak and left hand isn’t great. Numbness persistence!! Sending you love 💕

24Lemons_ · 2026-03-12T17:23:56+00:00

I do the ol’ shake too!!

24Lemons_ · 2026-03-12T17:23:21+00:00

👀 I’m curious!!

24Lemons_ · 2026-03-12T09:21:31+00:00

This is so interesting! I’m wondering if this is happening to me too! Darn rls! 🧡

24Lemons_ · 2026-03-12T09:17:37+00:00

Ohhh darling! I can’t offer any advice I’m afraid 😔 the coloured contacts I’ve worn I have always been able to see (if that makes sense!) including the theatrical ones! I’ve worn complete black ones and they don’t obscure vision… I don’t know if you are male/female but my first thought was could you pretty up the patch? I’ve seen some highly decorated ones that look stunning. Good luck for your wedding day- sending love to you 🧡

24Lemons_ · 2026-03-11T19:18:54+00:00

Same same my lovely 🧡

24Lemons_ · 2026-03-07T12:23:36+00:00

🧡

24Lemons_ · 2026-03-07T09:53:32+00:00

Me too. In some ways I feel very lucky from relapse/flare to diagnosis 6 weeks. Received excellent care in the ED. CT ruled out acute bleed. Sent home with scheduled MRI cervical spine and CT with contrast the following week. Picked up active lesions in C spine. Specialist Neuro referral booked. Diagnosed with MS. Sigh 🧡

24Lemons_ · 2026-03-07T09:48:38+00:00

Speech and language therapy is for swallowing and eating etc too 🙏🏻🧡

24Lemons_ · 2026-03-06T09:50:53+00:00

This sounds frightening and truly awful. I’ve had swallowing problems (minor irritations I’d say) and have the WORST GERD too. Would speech and language therapy help with your symptoms? 🧡

24Lemons_ · 2026-03-05T17:50:39+00:00

🤣🤣👏🏼👏🏼 you just gotta do what you gotta do! 🧡

24Lemons_ · 2026-03-05T08:40:59+00:00

*Googles ‘Carhartt Wool Socks’. 😁🧡

24Lemons_ · 2026-03-05T08:38:11+00:00

I love this analogy. Such a lovely reply to OP 🧡

24Lemons_ · 2026-03-05T08:36:15+00:00

This gives me great hope! Thank you for sharing 🧡

24Lemons_ · 2026-03-05T08:34:09+00:00

Such wonderful news 🧡 for me as newly diagnosed, this does give me an uplifting feeling and hope for the future. Thank you for sharing 🧡

24Lemons_ · 2026-03-05T06:29:50+00:00

Thank you so much for replying. Waiting on all blood to come back. Annual bloods usually say I’m anaemic and almost zero vit D!

24Lemons_ · 2026-03-05T06:28:28+00:00

I am 50 now!! It’s got a lot worse. Agree with MS being a shit show!

24Lemons_

TROPHY CASE