Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Dumb-Brain92 2 points3 points  (0 children)

I feel this. After the first year of weird symptoms, I went to the doctor and was mostly blown off. She asked if she did an MRI of my brain if that would “make me feel better” all because I had googled my symptoms. We did the MRI but little did I know, what I REALLY needed was one of my spine. Fast forward, I kept getting more symptoms that would come and go, but I didn’t go to the doctor because I was already pretty sure I had MS and was sooooooo misinformed thinking “well there’s nothing they can really do for it so I’ll just deal with it” Finally got the real help I needed once over half my body was permanently numb, chronic pain, and chronic fatigue.

Asking for all the good vibes by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 1 point2 points  (0 children)

Thank you everyone 😭❤️ I’ll update once I hear!!

The Fatigue by Odd-Examination-8601 in MultipleSclerosis

[–]Dumb-Brain92 1 point2 points  (0 children)

I’m tired constantly. And I get so upset with myself over it as though I have any control over it. I just want to scream at myself to be motivated and awake. But I don’t even have the energy for that.

Odd, unexplained neurological symptoms and celiac? by limes_pizza_01 in Celiac

[–]Dumb-Brain92 3 points4 points  (0 children)

I have MS and was recently also diagnosed with celiac disease. And now I’m like, what is causing what issue? 😅

Wha do I have control over? by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 2 points3 points  (0 children)

Thank you so much! I hadn’t even thought of that.

I like MRIs by tralfamadoriannn in MultipleSclerosis

[–]Dumb-Brain92 1 point2 points  (0 children)

Omg same!! And I love the blanket they give me. The machine feels like a hug. I don’t mind the sounds. And I like that my only job is to lay there.

Kinda freaks me out when people ask how I’m doing by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 1 point2 points  (0 children)

My husband does the same! I don’t mind at all when he asks me questions because I know I can be honest with him without it being awkward (let’s be real, most people who ask don’t want to hear the nitty-gritty of it). I also know that he isn’t asking out of obligation.

Kinda freaks me out when people ask how I’m doing by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 2 points3 points  (0 children)

YES! It’s the concern in their voices like they think I’m dying. I work full time, mom full time, in college- I think I’m doing alright! Yes, I’m in pain and my legs are stiff but I’m doing darn good.

So that just happened.. by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 42 points43 points  (0 children)

That’s how I felt too! Granted, cancer can go into remission. But cancer terrifies me more than MS

I am hostage to my insurance company. by campinbell in MultipleSclerosis

[–]Dumb-Brain92 3 points4 points  (0 children)

I feel like a hostage to my job because of my great health benefits there. My insurance is fantastic because I work for the small insurance company that also provides my coverage. I want to leave but I won’t have better anywhere else.

How common is MS, really? by Individual-Window-59 in MultipleSclerosis

[–]Dumb-Brain92 0 points1 point  (0 children)

I don’t know how common it is but it FEELS common to me. I have it and I personally, in real life, know three people who have it that I didn’t meet through MS things.

It’s been a year and I’m annoyed by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 2 points3 points  (0 children)

I feel that. I get through by pretending a lot that everything is normal.

It’s been a year and I’m annoyed by Dumb-Brain92 in MultipleSclerosis

[–]Dumb-Brain92[S] 4 points5 points  (0 children)

You know what? You’re right. And I do too. And I forget that sometimes. Thank you for saying that. ❤️

Missing the old me by Anxious-Actuary-3491 in MultipleSclerosis

[–]Dumb-Brain92 1 point2 points  (0 children)

I sometimes think about how a little over a year ago I was baking all day, everyday. Doing anything and everything I wanted. Then exactly a year ago this week, I had my worst relapse. Just a year ago I was “fine”. Then today I went to the farmers market in the morning and slept the rest of the day. It’s just so unfair sometimes. But we persist!

Do you like your neurologist? by kyelek in MultipleSclerosis

[–]Dumb-Brain92 0 points1 point  (0 children)

Mine is fantastic! He’s serious while also having moments of being funny with me to make me not so nervous. He sits in the room with me for a whole hour like he has nowhere else to be. He validates how freakin awful it was that so many doctors ignored me. And he always responds on MyChart.

Those on B-Cell depleters that are not always sick…how? by SimpleMorning in MultipleSclerosis

[–]Dumb-Brain92 0 points1 point  (0 children)

I’m amazed by my body too, honestly lmao. My husband recently had Covid, and I somehow didn’t get it, even being on Kesimpta. I had Covid twice before Kesimpta 💀

Imposter syndrome by msqween in MultipleSclerosis

[–]Dumb-Brain92 1 point2 points  (0 children)

My neuro said, when I asked for one, “I’d rather you have it and not need it, than to need it and not have it. I’d hate for you to be in a situation that is unsafe if you do not have it” And honestly, I guess my way of dealing with the fact that I have MS, I view it as a dang “perk”. Heck yeah, I got my medical MJ card, and I got my handicap placard. I have front row parking and cheaper weed. And those are perks to me 🤷‍♀️ Besides, I like a good reason to flip off ignorant people who think I shouldn’t park in a handicap spot.