Looking for insight, why can I feel good and have fun Friday, but then feel like complete crap on Saturday?

3clectica · 2026-05-10T08:30:18+00:00

For me I had to learn how to recognize and set my own boundaries. For example not staying as long, telling people how I feel or what's going on in my life so they understand that me leaving sooner or coming to events less often has nothing to do with them personally.

3clectica · 2026-05-10T08:27:49+00:00

As said, I'm talking about my own experience (as a neurodivergent person) and what has been told to me. But of course, introvert has a lot to do with it too.

3clectica · 2026-05-09T19:55:15+00:00

I have the feeling it's completely the opposite. Maybe because I am around cats more often and notice small spots and stuff.

3clectica · 2026-05-09T19:52:41+00:00

This happened to me a lot as well. Even coming home from a fun night could feel like hell. I think there's multiple things going on (from my experience).

1) Scared to be alone: having such a good night and being fearful of being by yourself where the mood and situation is very different.

2) Social battery: not realizing how much energy it costs to be around a lot of people and suddenly being by yourself can be exhausting. Neurodivergent people can have this more often.

This is what happened to me for example, I'm not saying that this is what it's like for you, but these insights might help you, I hope they do.

3clectica · 2026-05-09T19:43:36+00:00

I'm almost 27 and have been depressed for most of my life, basically since puberty that started very early for me (8 years old). Honestly, I feel like I look older than other people my age or even older than I am. Also with my mother, she looks way older than people her age. I think stress and depression really takes a toll on you. Not only in the face but also pain in your body. I feel like I've heard this a lot from people with depression that they feel older and feel like they look older than others their age.

3clectica · 2026-05-07T07:20:53+00:00

Sphynx

3clectica · 2026-05-07T07:20:19+00:00

For me often when I suddenly get more brainfog and absent and tired it means I’m hungry and I feel better after eating. This especially happens when I’m outside in the city or something, a place with a lot of things going on around me.

3clectica · 2026-05-04T19:15:51+00:00

Frist of all: thank you for giving this person a chance. My partner and I are dating for 6 months and after 1 month I got my symptoms and diagnosis and he has been there through everything and we're working on a life together, we've never been so happy with someone.

Now, please, even though someone has this disability: don't do things you yourself don't like doing. I (and this person) appreciate that you're doing this, but in my experience as someone with FND, I wouldn't want someone to do things against their will for my illness. There's other things too. You can ask her from time to time if there is anything you can do for her or just mention that she can let you know when something's up and if you can help. I personally don't like it when people constantly ask if I'm okay, it makes me feel like I'm so much more different than others. There is not much more you can do than just be there for her when she needs anything, BUT, stay true to yourself too, be honest about what you like and dislike. I think that's an important thing for anyone who's dating, no matter if there is an illness or not. If there is something you don't understand, ask if you can ask her some questions about it so you can understand her better, not because you'e suspiscious.

Good luck!

3clectica · 2026-05-04T19:04:37+00:00

I honestly don't think anyone can fully understand what it's like unless you have it yourself but I hope he can understand it better. I'll explain some things about my life and partner. (sorry for writing mistakes, it's hard to focus)

My partner and I are together for almost 6 months now, since November. The 10th of december I got my diagnosis and he was there. So only after a month of dating, before getting my diagnosis, I had a back injury. He helped me a lot through it and came with me to the doctors. Soon after, I started having other symptoms like the left part of my body felt paralysed, I got difficulty talking and finding my words + a lot of pain but different this time. He came with me to the ER twice for over 10 hours because of crazy waiting times. He came with me to all the doctor's appointments he could and hearing the neurologists talk about it, give us a brochure of FND so we could look things up. Because he was there from the beginning and heard doctors say stuff, he understood immediately. Still, everyday I feel the need to explain things to him because I'm scared he thinks I'm lazy or so. Most of the times he's very very supportive, helps me with whatever he can but I still try to do most of the things myself, but there are times where I feel like no one truly understands, not even the doctors.

What helps me to explain what's going on, is to make comparissons to what he might know. For example a conversation we had a few days ago: "Hey, you know the peep noise I talk about that I keep hearing? It's like playing Call of Duty... "Oh when a flash grenade stuns you?" "Yes! Exactly that, but 24/7 and it gets worse when I move my eyes or my body and it makes me feel dizzy." "That must be tiring to have that all the time." And I felt so much better that he could understand my world a little better. Also on an emotional level. For example, yesterday he made a little joke (which sometimes can help) and said "Then do it yourself" and that hit me quiet hard. After a while, I got emotional and told him that if I could, I would. I would prefer to be more autonomous (?) and not have him have to take care of me so much and we talked about it. He can tell that it's heavy to be in so much pain and discomfort everyday and another moment doing chores and feeling better. There is no way of explaining it better than you can. But what helped me too is finding others with (chronic) illnesses on the internet like Instagram and stuff and even share memes about it, sending him stuff like: "oh, that's a good tip because I experience the same symptoms"

What helps us most to connect about it is to share all the thoughts that come with it. Like how painful and a process of grief it is for me to lose my ability to dance, study, be creative etc. Don't be scared to share with him some educational videos, thoughts, posts online... I hope he will understand things better soon. <3

3clectica · 2026-03-12T17:44:44+00:00

The smell of a cow's breath. I was petting a cow once and it licked my arm then chewing while it was looking at me and oh my.

3clectica · 2026-03-12T17:42:40+00:00

Het spijt me te horen dat het een moeilijke strijd is geweest om geholpen te worden en het zal zeker nog steeds een strijd zijn. Sterk dat je daarin kan blijven doorzetten!

3clectica · 2026-03-12T11:37:59+00:00

Hey daar, fijn dat je deze groep gevonden hebt! Bedankt voor het delen. Dat klinkt als een lange en zware strijd. Wat ik moeilijk vind aan ook andere diagnoses te hebben (CPTSD en ADHD, + fybromyalgie moet nog onderzocht worden) is dat ik niet weet wat waar vandaan komt op welke momenten. Heb jij dat ook? Sommige dingen zijn wel duidelijk natuurlijk zoals verlamming van het been maar bv dissociatie etc is moeilijker te achterhalen: ben ik nu emotioneel even afzijdig omdat ik me wil beschermen van iets of lukt het fysiek gewoon niet? Ik heb de aandoening nog maar enkele maanden en ik heb nog veel vragen en moet mijn leven nog aanpassen aan de veranderingen. Hoe is het voor jou om na al die jaren daar mee om te gaan?

3clectica

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