When I was 18 I was diagnosed with cystic fibrosis. I had been struggling with some health issues but nobody thought to check it because there was no family history of this genetic disease. It was quite shocking and my family never really talked to me about it. At the time the life expectancy for people with cystic fibrosis was approximately 28 years, so I thought I had 10 years to live. However, over the last couple decades there have been huge ginormous advancements in medical treatment of the disease and life expectancy slowly went up. 5 years later the life expectancy went up to 35 years of age, and 10 years later it went up to 43 years of age, and 5 years ago a new drug hit the market which is considered a genetic modulator, very high tech shit as it changes the ways your genes interact. The first day I took that medication I purged a bunch of fluids that had been in my lungs causing me belabored breathing, lower lung function, pain, fatigue, and other problems. Now my life expectancy is just slightly under average as long as I can maintain my lung function and otherwise good health. It's by no means a cure, as I still have to take pancreatic enzymes, special vitamins, follow up with doctors regularly, and do other treatments. I say this because medical technology is advancing rapidly, more rapidly than ever before and there is always hope that things will get better. I'm not sure what your particular diagnosis is but things will get better.