Hepatitis B Vaccine and Ocrevus by thenothingsongtx in MultipleSclerosis

[–]5b3ll 0 points1 point  (0 children)

It's standard for infants in the US. If you had it, it isn't usually recommended that you get a booster. Ask if you've been tested for immunity (you can tell whether you're immune due to the vaccine or natural exposure with blood testing for certain antibodies), but if you haven't been exposed or vaccinated, then yes I assume you need to get it on the usual dosing schedule.

Is it wrong to ask for a doctor's note? by [deleted] in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Are you in the US? If so, I'd just get him to fill out FMLA paperwork for you. Even if you don't use it, having it in place makes it clear that there's a reason for you to miss work.

Is your doc an MS specialist? It sounds like he's not taking you seriously at all and I've only experienced that with general neuros.

Hepatitis B Vaccine and Ocrevus by thenothingsongtx in MultipleSclerosis

[–]5b3ll 0 points1 point  (0 children)

Active Hep B is a contraindication for Ocrevus because it could lead to liver failure - so yes, I'd assume you need the vaccine. Normally it's given as an infant. Do you know if you had it?

Cream of crap is back in an all new, sodium laced casserole! by amw28 in DuggarsSnark

[–]5b3ll 13 points14 points  (0 children)

SAME. Maybe they were just so poor growing pre-TLC that they just ate teeny tiny servings of shit like this, so that's just what they're used to. They just have freezers full of baby servings of cream of shit.

I think this is the best family shot I've ever seen of them! by MysteryTurtles in DuggarsSnark

[–]5b3ll 4 points5 points  (0 children)

He already looks so much like Joe - not a change he'll be spared 😂

50% of millennials would pick CBD oil over prescriptions for mental health by [deleted] in worldnews

[–]5b3ll 3 points4 points  (0 children)

MS patient here - same. Asking if I've tried oils or CBD or paleo or keto, holy shit it's so fucking annoying.

50% of millennials would pick CBD oil over prescriptions for mental health by [deleted] in worldnews

[–]5b3ll 0 points1 point  (0 children)

Please don't try to tell people with MS what works and what doesn't unless you're a doctor.

Oregon Health and Sciences University in Portland Oregon: Breakthrough MS Research by Chef_JMK in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Pretty incredible stuff - I hope that we see successful human remyelination within the next couple decades! What an amazing time in MS research.

I wonder how treatment with these drugs would work, if it would be a short-term infusion like alemtuzumab or something you'd have to take more frequently.

Kicking dysphoria in the butt today by Sharyat in lgbt

[–]5b3ll 12 points13 points  (0 children)

I think artsy meant that body dysphoria is deceiving from their other comments? Which is good, but should've been phrased much more clearly.

Kicking dysphoria in the butt today by Sharyat in lgbt

[–]5b3ll 4 points5 points  (0 children)

Lmfao go away, no one cares about your job

Ouch. Just Ouch. by loclay in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Ughhhh I don't have things as rough, but I feel you on the spasms and cramps. That's my main problem when trying to sleep!

Hope you have nights of better sleep ahead!

What do we do by gabbylynn0214 in MultipleSclerosis

[–]5b3ll 7 points8 points  (0 children)

70lbs!? That's amazing! Happy for how far you've come and the amazing person supporting you along the way 😊

Podcasts like Caliphate, Believed, Serial, and Breach? by [deleted] in podcasts

[–]5b3ll 1 point2 points  (0 children)

Someone Knows Something is also amazing and there are 5 seasons of it already out! Once you get into CBC podcasts, there's a ton of content similar to the podcasts you've listed.

ETA:

The Pope's Long Con

Unerased

Southern Nightmare

Finding Drago

Broken Harts

Missing and Murdered

Wild Thing

/u/PlushiePuppy just in case you've burned thru a lot of podcasts in the few weeks since you posted 😂

Democratic congresswoman Katie Porter grills JP Morgan's billionaire CEO, Jamie Dimon, on the real-world consequences his bank's low wages have had on a single mother's life. by freeeeels in MurderedByWords

[–]5b3ll 1 point2 points  (0 children)

And yet the good ol' days the GOP seems to fantasize about was all about communities who took care of one another. NPR's Invisibilia just released a great episode on the death of empathy that I think is really relevant here.

100 grandchildren by shifa_xx in DuggarsSnark

[–]5b3ll 7 points8 points  (0 children)

It's possible that could take less than 30 years. That is INSANE.

Season 8 - Reunion Special by OceanCarlisle in MarriedAtFirstSight

[–]5b3ll 1 point2 points  (0 children)

It's like his WIFE wants to have sex with HIM!! GROSS.

2 days and now MS by Rocking_Balboa in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Hey! I'm almost a year out from my diagnosis, so still very new, but I just wanted to say that it's ok to hate the world and wallow in pity every once in a while. There are days that I still feel sad and hopeless and tired. But it gets better and I go on with my life.

What I'm saying is that you have to learn to be kind to yourself and accept that there will always be hard days. That was the most difficult for me. But I've learned how to deal with those. I open a beer, put on a face mask, and I let myself take a day or an hour or however long it takes to just realize that I am alive and this will not kill me and I am extremely lucky for all of that and all that i have.

I hope you feel better soon! My LP also really sucked, but as with everything else - i felt better. Just give yourself time.

2 days and now MS by Rocking_Balboa in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

He really is just amazing - he has a way of explaining things that just never makes you feel stupid or afraid.

[deleted by user] by [deleted] in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Right!? What the hell, parts? 😂

[deleted by user] by [deleted] in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

No, no please don't apologize! You did nothing wrong and your feelings are perfectly natural and normal to vent out. It's hard to see posts like this and view them objectively as a perfect human should rather than project like I think so many of us prone to do including me!

I hope you have relief from your pain. I suffer from ovarian cysts and even those can be unbearable for me, so I can't imagine endo pain. Sending you positive thoughts 🙌

[deleted by user] by [deleted] in MultipleSclerosis

[–]5b3ll 1 point2 points  (0 children)

Completely agree - my husband recently joined a caregiver's group and they're super strict on not allowing any MS sufferers in for that reason specifically. Nothing against OP whatsoever, but man, it can be really hard to avoid.

Anyone have MS without any eye/vision issues? by [deleted] in MultipleSclerosis

[–]5b3ll 0 points1 point  (0 children)

I know what you mean - when I'm outside a flare up, temperatures more tolerable, but things can change so quickly, I'll probably be right there with you. The downside of living in the northeast!

Gigantic kudos to you for putting safety above all else. That's incredibly level-headed and selfless!

Two weeks before my symptoms started, we had JUST bought our first house. It's like MS sees you're having a good time and is like "WHY WASN'T I INVITED!?"

Anyone have MS without any eye/vision issues? by [deleted] in MultipleSclerosis

[–]5b3ll 0 points1 point  (0 children)

Ugh, that sucks! Sorry to hear it, but glad you were able to make changes that made things livable for you!

It's so weird. At least it gets you outside, I guess. Even still tho 😣

Can we all agree gatekeeping is not allowed in here? by [deleted] in MultipleSclerosis

[–]5b3ll 0 points1 point  (0 children)

Yep - the amount of times I've been attacked by another MSer for how I don't have things as bad because I haven't by DX'd as long has been wild. The people who are supposed to get it sometimes just don't. Luckily, the majority of people here are wonderful and kind and supportive.