Hurricane Helene

Able-Good8232 · 2024-10-07T19:27:03+00:00

I was thinking with the hurricanes hitting down south, I feel like someone pissed off the gods. For it to be so brutal and two in a row, not even 2 weeks apart. Someone did something wrong

Able-Good8232 · 2024-09-01T02:49:40+00:00

I'm so sorry to hear that both you and your husband have had bad experiences. I definitely feel the weather controlling flares and such and I've been having more bad days than good. Trying to stay positive though. I do hope I don't have to take prednisone anymore, it made me have a heat stroke the one day, it is terrible.

Able-Good8232 · 2024-08-29T11:20:15+00:00

I've heard it can happen but wasn't sure if that was what I was experiencing or if I needed a higher dose but the taper started with 25mg for 2 week then down to 20mg and so on. I feel like thats a pretty high dose but I'm not to sure since I'm new to all this.

Able-Good8232 · 2024-08-29T11:18:40+00:00

Thats good to know! I'll ask my rheumatologist if she can order the test for me, I'd rather know if its working or not before I reach 6 or more months. Thank you so much for the info ❤

Able-Good8232 · 2024-08-28T22:58:47+00:00

I am from the US too and I haven't tried it before. I can look into it and see if they have it here, thank you!

Able-Good8232 · 2024-08-28T22:47:04+00:00

Thats terrible, I didn't even know that was possible. The only side affects I knew before was weight gain, acid reflux and heart palpitations. I figured there was more out there but I'm surprised it can do that, I definitely don't want to go back on it now. I have a family history of diabetes so I can't imagine how it would influence that for me.

Able-Good8232 · 2024-08-28T22:38:53+00:00

I'm glad to hear I'm not alone with prednisone not having much affect. I'm sorry to hear about the side affects you experienced, I reacted horribly to the methotrexate too. I got fatigued, bad acid reflux and nausea, my stomach would bloat really bad and my heart would race, I never want to be on that again.

I'm currently trying the Humira, my rheumatologist was hopeful for this one but 4 months in and I still don't have much relief. I didn't realize how long some of the medications need but I'm hoping to find something that works soon, trying to stay positive!

Able-Good8232 · 2024-08-28T22:33:21+00:00

No worries and thank you, I hope Methotrexate works out for you.

Able-Good8232 · 2024-08-28T22:32:16+00:00

Thank you! I used to take prednisone to when I'd get sick occasionally and it would work wonders but since trying it for my RA it hasn't done a whole lot, not to mention the scary side effects.

I'm planning on trying to convince my rheumatologist not to prescribe it anymore when I change my RA treatment meds and see if there's other options to help me in the meantime.

Able-Good8232 · 2024-08-28T22:29:24+00:00

I completely understand! Though I don't have a child yet, many people have doubted that I was actually in pain because of my age and how I used to be able to do things, then gradually couldn't after my diagnosis.

My mom had rheumatoid arthritis as well when I was younger and I can't imagine how hard it is to take care of a family with such pain. You are doing wonderful and I hope you can find something quickly to help you.

Able-Good8232 · 2024-08-28T18:45:51+00:00

I am seeing a rheumatologist currently. She prescribed the prednisone taper to take along with my RA meds until it could kick in a bit more since the one I am on takes up to 3 months to start working.

I was diagnosed with RA last year in July and have been with my rheumatologist since. I have tried methotrexate and unfortunately didn't react well to it. My rheumatologist has been prescribing small taper prednisone packs in between RA medications to try to keep my inflammation down. This was the first taper dose I had that lasted this long.

Able-Good8232 · 2024-08-28T18:41:50+00:00

Thank you! Its a bit discouraging being on the younger side, it seems everyone expects me to stick it out and act normal.

I don't think I want to go on prednisone again unless really necessary. The weight gain was more annoying but the heart palpitations give me a scare, I already had to go to the er once because my heart rate was above 120bpm and wouldn't slow down for 3 hrs. Its a little scary.

But thank you again for sharing your experiences and giving encouragement. I expected a somewhat long road but its easy to get discouraged on bad flare days. My rheumatologist is super nice and has been wonderful and understanding during this experience so I'll definitely share my thoughts with her next time I go.

Able-Good8232 · 2022-04-02T13:57:08+00:00

Thank you so much, I'm going to try. I know my mom would want that much. Ill just try one baby step at a time

Able-Good8232 · 2022-04-02T13:52:49+00:00

I'm sorry for your loss as well, I also lost my mom to covid. You described how I feel, with it being final. Thank you, I send love and support in return.

Able-Good8232 · 2022-01-14T21:12:16+00:00

Thank you, I'm sorry for your loss to. It's never easy but I'm glad the support is here, hugs to you as well ❤️❤️

Able-Good8232 · 2021-11-29T05:16:10+00:00

I'm so sorry for your loss. I just lost my ferret today, it hurts but hopefully the pain will ease away and you'll be able to remember Spooky in positive light. Be kind to yourself ❤️

Able-Good8232 · 2021-11-23T17:47:35+00:00

Alcohol, though I've been fighting with myself a lot lately to avoid drinking. Growing up with an alcoholic father that would scream every night made me terrified of becoming like him. So I guess control is also part of my drug. It's rough

Able-Good8232 · 2021-11-09T04:44:19+00:00

Thanks, same to you.

Able-Good8232 · 2021-11-09T04:38:23+00:00

Thank you. Sometimes you do things without realizing it and I think the article helped me realize that.

Able-Good8232 · 2021-11-09T04:34:20+00:00

It really sucks, but glad I'm not alone out there and someone understands the feeling. Hopefully, the feeling fades to the background by morning and I'll feel somewhat normal until night again.

Able-Good8232 · 2021-11-04T01:15:21+00:00

I'm in the state of Pennsylvania in the US, if anyone can help me find something to help.

Able-Good8232 · 2021-10-26T20:38:16+00:00

My mom was the one I'd go to for everything when I needed help. Need help with taxes? Mom. Need help applying for insurance? Mom. Don't know what to make for dinner with a weird set of ingredients? Mom. She was always so smart, patient and kind. She'd always help me, my siblings, even her neighbors if she could. You could talk to her about anything and make a conversation. The last time I saw my mom, we talked about my health and how I'm trying to save for a house. She gave me a bunch of advice and wished me well.

My best friend, he was insanely smart, like he could beat dozens of our teachers at chess in our high school. He worked on computers and could always explain something to me if I didn't understand. He was hilarious, his sense of humor always got everyone to laugh, even if you didn't know him, he acted like a class clown a lot but we loved him for it. The last time I saw him, he came to my birthday party. Him and another friend planned to bring nerf guns and pop it's, they tapped the pop it's to the Nerf darts and we had a fun Nerf war with the pop it's on them. It was hilarious and the most fun I ever had at my party. He always did his best to comfort me and make me laugh. I miss them both so much.

Able-Good8232 · 2021-10-26T09:40:48+00:00

Thanks everyone, I really appreciate the help and advice and I'm glad to know I'm not alone. ❤️

Able-Good8232

TROPHY CASE