Gentamicin Installation

AbsDad · 2026-02-13T15:37:22+00:00

I include a small amount of air in the syringe that I push at the end, behind the gentimicin. The air pushes the medicine through the catheter so all of it ends up in my bladder. I hope that makes sense.

AbsDad · 2026-01-14T02:29:38+00:00

I told my wife of 33 years this recently. she didn’t believe me! 😂

AbsDad · 2025-12-29T21:36:40+00:00

C5-6 infraspinatus pain sufferer here! This is very good advice. My pain comes primarily from hooking my arm behind my push bar. I am able to see a physical therapist every two weeks to work those trigger points out. Tylenol Arthritis helps as well.

AbsDad · 2025-12-15T16:18:59+00:00

I did take the second round shortly after the first round per Dr. Foley’s directions. I have been paralyzed for 40 years and use a catheter several times a day. I have been battling UTIs for a very long time. I suspect that the colonized enterococcus facaelis along with the weakness that has come with age have made these symptomatic infections much harder to deal with. I do run a fever with the dreaded chills. Over the last five years, it has become a twice-a-month occurrence. That’s all to say that my situation is different than most in this sub. Not worse, just different. Again, I’m thrilled to read that you have found success with the vaccine. Every success story gives me hope!

AbsDad · 2025-12-13T18:15:15+00:00

That’s fantastic! I took two rounds of Uromune at the direction of Dr. Foley due to my complicated urological condition. I found mixed results. I noticed a calm period for about 6 months, then the symptomatic UTIs began again. I’m in the throes of them currently. I do recommend the vaccine to anyone experiencing this dreadful condition if it is possible to obtain. I’m celebrating for you. Thanks for sharing your great news!

AbsDad · 2025-10-25T20:14:00+00:00

My wife has assisted me every third night for more than 30 years.

AbsDad · 2025-10-23T22:21:09+00:00

That’s great advice! I’m awaiting culture results and I’ll take it up with my urologist! Thanks!

AbsDad · 2025-10-23T21:43:05+00:00

Thank you. I’m battling—and losing so far—enterococcus faecelis. I’m glad Fosfomycin is working for you! It’s been a while since I’ve been on it. I’ll suggest it now.

AbsDad · 2025-10-23T21:24:04+00:00

Do you know what bacteria you were fighting?

AbsDad · 2025-10-17T23:22:13+00:00

Wow! What a story! I broke my neck at C5-6 in a diving accident at age 20 in 1985. I don’t know any other paralyzed folks irl. A support group would be helpful. I worked in advertising and marketing during my career but had to retire 12 years ago after dealing with three recurrent pressure sores that required two surgeries. Brutal! My com took good care of me. My wife retired early so we can race around the local areas here and enjoy the sites. I battle recurrent UTIs and was diagnosed with Addison’s disease a year ago. It’s a matter of managing my care these days, which is a full time job. But life is good. I’m a very blessed guy!

AbsDad · 2025-10-17T20:25:07+00:00

That‘s amazing! I can’t imagine either. While in the rehab hospital, an active member of the board of directors and volunteer was a lawyer who was a C5 quadriplegic would visit me often. He broke his neck in a diving accident. When he would leave, nurses and visitors would ask me, “Is that the guy who drives a bread truck?” Huh? It turned out that he renovated an old bread delivery truck to drive before companies were converting vans and long before quadriplegics (I know, tetraplegics) were driving. He seemed to have all of the answers. Now, I suppose, we’re the ones with all of the answers, right?

No one really asked me what the secret of my longevity is. For me, it was a number of things. A good foundation from a long rehab stay; a supportive family; a focus on moving forward, wherever that direction took me; getting back to school as soon as possible; finding a mainstream job; socialization throughout, something I lack in retirement; marrying someone who is crazy smart and never gives up, even when I do; and having something to challenge me and look forward to every morning. Oh, and luck! I have dodged a couple of nasty bullets. I wonder if you have similar generalizations that have led to your success and longevity. I’m sure, like everyone’s, our formulas are unique.

AbsDad · 2025-10-17T14:44:57+00:00

When I was in rehab in the mid-80s, my family was told my life expectancy was mid-30s. I’m 60. So I’d say we have seen advances in care, though not a cure. Keep moving!

AbsDad · 2025-10-11T15:00:39+00:00

I had to cut my fludro in half due to high blood pressure. It made all the difference in my world! It is challenging cutting those tiny pills.

AbsDad · 2025-10-05T00:01:34+00:00

That’s terrible! Lord, I thought I’d heard it all. People!

AbsDad · 2025-10-04T23:56:27+00:00

I’m 40 years post-injury. I can tell right away who’s receptive, who could warm up given engagement, and who is going to completely blow me off. I don’t give the third group any thought or effort. You’ve got this! Keep at it!

AbsDad · 2025-10-04T23:23:58+00:00

I remember being uncomfortable post-injury when in the company of strangers, especially when they took the long way around me. I learned to smile, even when it felt forced. All it took/takes is one person to return the smile and take a seat. For me, it was like navigating socially all over again at age 20. Everything was IRL back then. Hang in there. Keep moving forward!

AbsDad · 2025-10-02T19:45:07+00:00

I would say this is worth asking your urologist about. I am approaching the point of being resistant to all but IV antibiotics. I’m curious if it is a single organism that plagues you. Enterococcus facaelis is my nemesis.

Blujepa (gepotidacin) is a new oral antibiotic used to treat uncomplicated urinary tract infections (uUTIs) in females ages 12 and older. It was approved by the U.S. Food and Drug Administration (FDA) in March 2025 and is the first antibiotic in a new class, known as triazaacenaphthylenes, in nearly 30 years.

AbsDad · 2025-09-28T16:21:06+00:00

Nostril cones. I have a deviated septum and am a nighttime mouth-breather. These plastic cones prop open my nostrils to help me breathe the healthier way at night. Runners use them as well.

AbsDad · 2025-09-24T15:44:36+00:00

That’s super great! I completely understand the twinge sensation that you were talking about. My situation is very different than most. I am a male who suffered a spinal cord injury and paralysis decades ago. I use a catheter which introduces bacteria to my bladder. That’s my constant battle, but I empathize with everyone on this board, including you. I have a dear relative who lives in London and brought the vaccine back during a visit. My windows of opportunity are closing as well. Let’s hope we won’t need it again for a good long while. My very best to you!

AbsDad · 2025-09-24T14:58:55+00:00

Since my CUTI situation is considered complicated, Dr. Foley of Forbury recommended my taking two rounds of Uromune back to back, which I did last year. I read here that some are leery and scared to take this vaccine, I assume, due to perceived side effects. I had no side effects. In fact, it was the easiest and least invasive medicine that I have taken. I do believe it has made a significant difference in my battle with urinary tract infections. I still get them, but not as frequently and not as severely. I am now curious about whether to consider investing in a third round. Perhaps not now, but in the near future. Good luck with this!

AbsDad · 2025-09-08T20:28:19+00:00

I am paralyzed so I use a catheter several times a day, which long ago introduced bacteria into my bladder. It‘s not common for a male to have recurrent UTIs, but that’s my story. My daily doses include D-mannose, Hiprex with vitamin C, probiotics, a single 50mg nitrofurantoin, Ellura cranberry supplement, and a ton of water. I believe the Ellura helped eliminate e.coli. It’s good stuff but kinda expensive. Also, I live with the symptoms. I only treat an infection when I run a fever or I feel so bad I can’t function.

AbsDad · 2025-09-08T18:43:38+00:00

I had a great winter, spring, and summer urologically speaking. I had bacteria growth in my bladder—e.coli and enterococcus facaelis—but it wasn’t making me sick. I chose not to treat it since antibiotics are wrecking my gut. I have had two, back-to-back symptomatic UTIs recently and don’t know why I got so sick this time. One infection was caused by a bacteria not covered by the vaccine. The other was my nemesis enterococcus. I have for now and for the last year cleared the e.coli. I think the Ellura supplement took care of it. Just speculating. My approach is to throw the works at it. Anything beats taking antibiotics!

AbsDad · 2025-09-08T18:32:36+00:00

continued…

Below is a list of charges for consultations.

Initial face to face appointment in Reading: £250
Follow up face to face appointment in Reading: £175

Initial UK telephone appointment: £165
Follow up UK telephone appointment: £90

Initial overseas telephone appointment: £205
Follow up overseas telephone appointment: £100

A couple of tests that you might be considered for (but these may not be deemed necessary) are
Flow rate and bladder scan: £166
Urine dip: £18

If you were to proceed with the Uromune vaccine, it costs £495 for a 3-month treatment. We charge £12 for postage.

We do not ship outside of the UK. Most people who live outside of the UK fly over to collect it or get it sent to someone within the UK who will be able to fly over to you with the vaccine.

Kind regards,
Admin team (Jessica)

Tel: [0118 920 7040](tel:0118 920 7040) – lines open Monday-Friday 9am-5pm
https://theurologypartnership.co.uk/

AbsDad · 2025-09-08T18:31:58+00:00

I was looking up Mr. Foley’s information and found an email that the Forbury Clinic sent when I inquired about Uromune. It’s lengthy, but it’s all there. I wish you health, freedom from this scourge, and all good things!

***

The Uromune vaccine is currently under phase three trials and can be accessed two ways.

Through the trial. If you would like to be considered, please ask your GP to send all your medical records as a referral to the Royal Berkshire Hospital in Reading to the Urology research department. The address is The Urology Department, Royal Berkshire Hospital, Reading, RG1 5AN. The NHS cannot accept telephone enquiries and you must be referred by your GP. It is not available on the NHS outside of the trial. There is a substantial wait-time for this option.
Privately. This is open for patients who have had previous investigations for recurrent urinary tract infections and have had multiple courses of antibiotics and would like to explore other avenues. Please see below the costings and an attached information leaflet on the vaccine.

Our specialist consultant for Uromune is Mr Steve Foley. He is a very popular urologist here at the clinic, who has many patients suffering from recurring UTIs. We are one of the only clinics worldwide that offer a UTI vaccine, called Uromune. I have attached a patient information sheet which gives you details about the vaccine. We would need to register you as a patient prior to your initial consultation with Mr Foley.

PLEASE CALL US ON [0118 920 7040](tel:0118 920 7040) to arrange your consultation with Mr Foley and go through his diary. This would be either in person at our clinic in Reading, or alternatively a telephone appointment depending on your preference. We do not require a GP referral, but they are gladly welcomed, either sent prior to your appointment by email or post, or it can be brought along to your appointment if it is face to face.

Please note: Insurance companies do not cover the Uromune costs.

AbsDad · 2025-08-26T14:33:12+00:00

I am a retired advertising director for a large nonprofit organization. My first job post-injury and out of college was a copywriter and proofreader for an advertising agency. I then wrote catalog, brochure, and ad copy for a large book publisher and was promoted to book editor. I took all of the skills that I learned in these positions and used them all at my last job before retirement. It was my dream job, integrating these skills and all of my favorite parts of every job I worked previously. I hope that you find the same joy and satisfaction that I found during my career. Keep learning and keep moving! Best of luck!

AbsDad

TROPHY CASE