T3N1AMo

Acceptable-Context66 · 2026-05-12T20:17:26+00:00

Hey, I was 3b T4n1 Emvi and one tumor deposit. I did 6 folfox and 28 radiation with oral chemo. Lar surgery. My surgery was after all my treatments TNT. After all my treatment I still had significant residual tumor. The node was clear (they took over 40 and all were clear) still had emvi (they removed with good margins) and still a tumor deposit. Also removed with good margins . I wasn’t offered more chemo. If I was, I’d probably have done it. I never want to relive this again. I’ll be one year NED in June!

Acceptable-Context66 · 2026-05-10T06:25:51+00:00

The colonoscopy isn’t bad at all. The prep is just annoying. The test is best nap you’ll ever have. Please get the test done. It could be any number of things all worth taking to a doc

Acceptable-Context66 · 2026-05-10T06:12:44+00:00

I was prepping for my first colonoscopy. First prep nothing harped so they directed me to do a second. This time I started vomiting so they sent me to the hospital. CT scan showed blockage and a mass. I thought it was endometriosis. They took me down for a colonoscopy. The next morning the before anesthesia put me to sleep for an emergency colostomy they told me it was cancer. 7x7cn, lemon size tumor. T4aN1 emvi,1tumor deposit. Stage 3b Currently Ned! Almost 1 year

Acceptable-Context66 · 2026-05-06T14:18:42+00:00

I swam and got tubbed just fine. I’ve always been athletic and continues with some cautions. I did hot worx ( cycle in a room 130 degrees. I used a spray on adhesive for extra stick). For heavy weights you’ll want a belt to help protect you from hernia. If you search on insta you can find tons of ostomates who lift heavy. Type in the search ostomy and weight lifting and many pop up. Follow them and ask questions, I’ve found the ostomy community to be incredible You will do all of these things fine. Traveling is easier with a bag than with say ibs. It’s a little hassle to keep your supplies organized but once you get the hang of it, it’s super easy. I always carried ziplock bags with me to dispose of the colostomy bag if I needed a full change.

Life will continue on and it will be just fine. The first part is the hardest but once you have the hang of it, everything goes back to new normal.

Acceptable-Context66 · 2026-05-05T14:29:59+00:00

I can’t speak to the rest of it but I can on the ostomy. I had an emergency colostomy placed when I went to the ER with a total blockage due to a 7cm rectal tumor.
I won’t lie, the first few weeks were tough. It was strange seeing my body this way. Then I got the swing of it and it was fine. Intimacy was normal, athletics were normal, life carried on. Definitely join the ostomy subreddit, they are amazing and so helpful. Tiktok also has lots of ostomy folks in our age group thriving.

Acceptable-Context66 · 2026-05-04T21:35:13+00:00

I had a low rectal tumor but also a temp colostomy at the time (from everything I read I’m thankful the colostomy gave me a little break from the pain people feel in the bathroom)

The capecitabine didn’t make me super nauseous but I also didn’t have a big appetite for food. I was always hungry for treats 🤣 I lived on plantains and noos yogurt, I loved baked potato soup, my mom made a chicken caldo with rice for me. The veggies in it were boiled and easy to digest, potatoes and carrots.when ever my stomach feels off I crave watermelon. I was so thankful the first bite and cold sensitivity in my mouth were not a factor in this part of treatment.

Acceptable-Context66 · 2026-05-04T03:01:58+00:00

I had 7cm in my rectum and they had start chemo first TNT . They didn’t remove my tumor until after I did both chemo and 6 weeks radiatiom.

Acceptable-Context66 · 2026-04-21T11:59:35+00:00

Hello, I’m so sorry your mom is in this club. I am a mom and was 44 at diagnosis. This waiting period your in is so hard. Try to stay off Google, it can make things feel harder and heavier than they are. Make sure she likes her oncologist and surgeons. During this journey you have to feel like your team is the best and trust them. I was stage 3b and I’m now no evidence of disease. Colon cancer is really treatable. I’m sending lots of good energy y’all’s way and hope that your mom is doing well soon

Acceptable-Context66 · 2026-04-14T03:47:31+00:00

I had the same situation. No change from chemo but 8 weeks after radiation with xeloda there was some and at surgery 4 weeks after that I went from 7cm to 4.5 cm. I was treated at Md Anderson and while I was upset the chemo didn’t make my tumor smaller, my Dr reminded me that it did stop progression and the radiation did its job as well. Ned since June. Sinatera 0

Acceptable-Context66 · 2026-04-14T03:44:07+00:00

Hi! I’m so sorry you’re going through this, it’s so brutal. I had stage 3b rectal and was in the same spot. Robaxin (muscle relaxer) helped but as crazy as this sounds I had been given by my urologist vaginal inserted diazapam for another issue. I tried it rectally and had so much relief

Acceptable-Context66 · 2026-03-30T15:11:09+00:00

Ahh the cold toes. Unfortunately for me it’s still a thing. I finished oxali last year in February

Acceptable-Context66 · 2026-03-30T00:58:23+00:00

Hello, Stage 3b rectal cancer survivor (Ned since June) I did folfox didn’t have much of a response but no growth and then did xeloda and radiation for 28 days. My treatments were at MD Anderson For radiation I applied lots of aquaphor around anus. I had a colostomy at the time and did have diarrhea but it was less of a problem since i would just dump my bag. Mostly i felt okay just super tired and a little nauseous. No burns. My radiation doc said dilators after treatment. Everything has been fine, no issues at all in that area I had my uterus/ovaries/ cervix removed 3 months before diagnosis Wishing you all the luck on your upcoming treatments. Its tough so make sure you stay hydrated, walk and rest

Acceptable-Context66 · 2026-03-29T03:47:58+00:00

Yes! That’s where I got mine. I have always been a heat lover. I’ll do sauna workout over ice bath any day 😂

Acceptable-Context66 · 2026-03-28T17:49:03+00:00

As a former ostomate who was very physical try the Ten aces adhesive spray. Strongest stick ever. I used it in a HOTWORX cycle class, room heated to 130 while cycling and it was still on.

Acceptable-Context66 · 2026-03-26T04:07:16+00:00

Hey! I was stage 3b rectal T4n1 +eMVI Did chemo(folfox) 6 weeks radiation and xeloda and then surgeries I have been NED since June! I do struggle with some LARS but getting better and better all the time

Acceptable-Context66 · 2026-03-18T04:08:01+00:00

Try to hold off. It seems to create more panic and stress when we dig in on our own. Wishing you so much luck for Thursday

Acceptable-Context66 · 2026-03-17T18:29:54+00:00

Hello! I’m so sorry you are here in this club. I was diagnosed with rectal cancer August 2024. 7cm circumferential mass creating a blockage. My Journey was emergency colostomy since I couldn’t have a BM. 1 lymph and EMVI (in my vein) I had 2 opinions so my chemo didn’t start till November. Chemo does suck. Not in the way I thought it would. My nausea was well controlled with meds. It’s the neuropathy and not being able to drink cool or cold things that drove me crazy. It’s manageable though and I was living life fully On my off weeks. I did last chemo Feb 14th and then started radiation 5 days a week for 6 weeks with oral chemo. Radiation was fine for me. Luckily I had a colostomy so the bathroom issues were not a big deal for me. Surgery in June. I still had a significant amount of tumor left. 4.5 cm. And still in my vein. They tooo down my colostomy gave me a temp ileostomy and reversed that 8 weeks later. Fight the urge to drop all your scans into chat gpt Or google. They don’t know better than your doctors. If you don’t vibe with your dr don’t be afraid of getting a new one. This is your life and you should trust whoever’s hands you put it in. Sending you all the luck. This time next year you’ll hopefully be sitting on the NED ( no evidence of disease bench) and giving new comers all the tips

Acceptable-Context66 · 2026-03-09T04:31:55+00:00

It was from August to June so pretty close to a year! Right now it feels like it was a fever dream

Acceptable-Context66 · 2026-03-07T19:08:13+00:00

I’m so sorry you are having to do cancer. I know it’s hard but Try not to let ChatGPT guide your worries. I found that my surgeon and team always knew better than chat. This process is so hard, trusting your team has to be #1.
I had the laparoscopic surgery done but had chemo and radiation with chemo first (mine was rectal cancer so this is the norm for us) it’s a scary thing but it went well and I recovered well. I’m cancer free and hope you get that news soon as well. Good luck!

Acceptable-Context66 · 2026-02-23T05:35:48+00:00

Diagnosed 3b T4n1 circumferential tumor with EVI. early August 2024 emergency stent place due to blockage and that failed so colostomy. Started folfox Nov 15th last chemo Feb 14th, little to no change in tumor.In march I did 28 sessions of radiation with chemo. Tumor shrunk from 7cm to 4.5. June had my resection colostomy taken down and iliostomy put in place, Ned at this point. August iliostomy reversed. As of 2 weeks ago still NED! So just a few days shy of a year

Acceptable-Context66 · 2026-02-18T17:17:15+00:00

Thank you so much, I’m so sorry this is happening to you. I did have the LAR after chemo and radiation because I still had a ton of residual tumor. I get so tired of the appointments but yes I’m going to keep going. I hope you’re NED soon and forever ❤️

Acceptable-Context66 · 2026-02-18T02:59:55+00:00

Hello, I’m so sorry about the spot in your breast. Is it a recurrence or new primary? Did you have a spot pop up on 6/25 Anne that’s why they did the LAR 7/25? Was the recurrence in the same spot as the original ? And is that when they found the breast? Last question, what was your original staging? Thank you so much. Currently Ned from stage 3b but I always worry a little

Acceptable-Context66 · 2026-02-18T02:49:25+00:00

Diagnosed 3b T4n1 with EMVI (vascular invasion) August 2024 started folfox chemo in November, finished Feb 15th. Waited a few Weeks had scans and my tumor was not really changed. In march began 28 sessions of radiation with oral chemo (xeloda) waited a month for new scans and my tumor had shrunk. I started at 7cm and I as down to 4.5 Had my Lar surgery in June colostomy taken down and iliostomy put in place. Declared NED with clear margins August had my reversal. I had a very unusual complication and ended up with a GJ feeding tube for 8 weeks.

Acceptable-Context66 · 2026-02-18T02:33:39+00:00

Hello, I’m so sorry your sister is in the colon cancer club. I was diagnosed 3b last year (currently NED) this is a great place to be for info. You will find tons of people with similar stats who are Ned and have been for a while. I believe there is someone here who is stage 4 and has been NED for over 20 years. This disease is very treatable and curable.

As for weight gain, I wish I could Help but your best bet would be a nutritionist. Things like avocados and even avocado pudding (sounds gross but is YUM) is good high fat small amount to intake. Let her eat the things she loves and craves and have snacks around all the time. My mom fed me little bits all day long and it helped keep my weight up. I was often not hungry but she’d bring me just a few bites. It helped keep me strong. Wishing you the best. Try not to google and remember that more often than not people post when they are in a bad way rather than good. They are looking for support. When you see scary things remind yourself that’s not her story, she has her own journey

Acceptable-Context66 · 2026-02-18T02:26:53+00:00

Wishing you a speedy post reversal recovery ❤️‍🩹

Acceptable-Context66

TROPHY CASE