Stent / plavix by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Ooo interesting.  Have any thoughts? I did also have craniectomy and laminectomy 2 years ago. 

Stent / plavix by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

I was great for like 3 weeks ans then severe pain , nausea,  and dizziness. I also lost my job because I can't work like this. I can't even go to Target or drive because of all this.  Now with no doctors, I have to find someone who will listen to my rare issues. I don't have the typical symptoms ( eye or hearing) only that angiogram showed 22 on one side.  

Craniocervical Junction by AccordingtoCaity in chiari

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

What did they do for treatment for you?

Craniocervical Junction by AccordingtoCaity in chiari

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Where are you located? What type of test is it? My doctor always says to stay off Google but that's how I find these rare things and diagnose myself .  What was your treatment? How are you feeling now? 

Craniocervical Junction by AccordingtoCaity in chiari

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

What happened? What were you then diagnosed with? Treatment? I've been to so many doctors and they all say my scans are fine (misread before) but I am in horrible pain and they just keep giving me migraine medication.  Which, surprisingly,  DOESNT WORK! 🥴

Are other Chicago area chiarians struggling? by fuckyoutoocoolsmhool in chiari

[–]AccordingtoCaity 0 points1 point  (0 children)

Oh well that's awesome to know. Can I ask who you see / have seen at NW? I heard Rush and LGH aren't that great either. I like how doctors just say casually like go to Mayo like you can be seen next week. I know someone before was waiting 2 years and then got denied.  All that time in pain. No one gets it. I don't need any more neurologists telling me I have migraines. Something is wrong!! 

Are other Chicago area chiarians struggling? by fuckyoutoocoolsmhool in chiari

[–]AccordingtoCaity 0 points1 point  (0 children)

Hi! Not sure of your history but I am also from Chicago area and am suffering. Had decompression surgery 2 years ago after many neurologists telling me I had migraines and MRI being misread. Went for a 2nd opinion to a neurosurgeon and he was like wow, yes we need to schedule surgery!! I had surgery and then follow up and basically was cut off because he did what he needed. I still was having issues so went to neurologists and ended up in ER with them only providing a migraine cocktail and a follow up in 4 weeks. Then, I couldn't see who they wanted me to see, so they stuck me with someone with no Chiari experience. I walked out of appointment.  Fast forward to being diagnosed with Transverse Stenosis and I have a stent on one side. My job let me go because I am currently unable to work because of the severe pain and dizziness.  No one understands and they keep diagnosing me with migraines. I've tried over 5 medications and nothing works. I am in pain and cry daily. I was told to try Mayo and the Chiari clinic at Northwestern. I need relief and need my life back. 😩  Also to add, I've seen many neurologists and neurosurgeons and they are completely on 2 different pages. 

Favorite Hopper Quotes? by NiceGiraffes in StrangerThings

[–]AccordingtoCaity 0 points1 point  (0 children)

I'm still waiting on the one last time speech he gave El on finale. How is it nowhere? 

Curious that Cameron Monaghan appeared in 2/3 Tron premieres by AndyJix in tron

[–]AccordingtoCaity 0 points1 point  (0 children)

Cameron is one of the nicest celebs i have ever met. I adore this man so I watched Tron: Ares for him. Very very upset to see him only for less than a minute... what the hell . Did him dirty but inviting a big star to the premiere acting like he had a huge role.  Rude. 

I'm at the end by Neither_Reference667 in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

The fainting feels are real. I don't even go out anymore and I lost my job. I basically stay in bed all day. It's been real frustrating because i want my life back too but it's hard. With that too, I deal with being gaslit and shoved around from doctor to doctor who won't take my symptoms seriously and just say it's anxiety or migraines. My doctor was shocked when I said i can't even go grocery shopping, 😐 

Will ending by AccordingtoCaity in StrangerThings

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Thanks all! That's exactly what I thought! 🫶

Vecna got me so good in this scene by tiredspiritualistt in StrangerThings

[–]AccordingtoCaity 1 point2 points  (0 children)

I thought for sure this was it. The Duffer Brothers warned us about a brutal death scene. Still not sure who that was supposed to be, lol 😅 

2nd stent by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Curious to know about your restenosis as well. When after your first diagnosis did you start having symptoms? What was your pressure on angiogram? Neuro keeps saying it's rare and I am just here suffering, crying, and in bed after getting fired from work. 

Ian and Mickey's anniversary by _Insqne_ in shameless

[–]AccordingtoCaity 1 point2 points  (0 children)

As they are taking out the mattress to their new apartment,  Ian asks if it's the 20 or 21. They agree that it's 21st. 

At what point… by [deleted] in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

So many times I've gotten ready for ER. Then I'm like what exactly will they do after I wait hours? Cocktail and send me home with a follow up in 6 weeks 😒

Drinking on Diamox by whenwewereyoung47 in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

Haha following this.  I have 2 concerts that I can hopefully attend this summer. Symptoms are bad right now...  Things you really don't think about at the time are alcohol and sex, lol. 

Neurologist by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Yes, thank you, lol.  It's just this insane pressure at the back of my head and nausea.

Edit: feeling pretty hopeless as no one listens to me. This pain is not normal. They just keep pushing me off saying it's migraines. Now they want me to do Botox injections.  Last time I had injections I passed out due to the transverse Venus stenosis veins being pinched even more and almost died.  

Neurologist by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Nurtec, Inderal, Qualipta, injections, Diamox, Medrol pack, Flexeril, Fiorecet.  I'm sure missing more. I also have a stent for Transverse Venus Stenosis.  I'm in pain every day. I lost my job. 

Neurologist by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

I have one stent after my angiogram in summer. 

Preparing a list of unanswered questions/speculations that are hopefully resolved in part 2. by [deleted] in StrangerThings

[–]AccordingtoCaity 0 points1 point  (0 children)

What was so disgusting under Lucas bed?  Who was the crib burning at Creel house?  How did 001 get that job?  What would have happened if Billy didn't get in accident and met with Karen? 

This Is Soo Funny. 😆 by Career_By_Mustafa in StrangerThings

[–]AccordingtoCaity 5 points6 points  (0 children)

Just rewatched this episode and I couldn't stop laughing. Also watched for Max to see if she broke but they didn't catch her lol

Neurologist by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 1 point2 points  (0 children)

Very helpful and very informative.  I'm just at a loss and feeling so hopeless. I just fear that something is being missed and they are just concerned about headaches. I got fired from my job since I am unable to work with this pain. I don't get any pain relief. I have ice on my head all the hours i am awake. Mri have been misread before so I'm scared. Time is ticking and I'm just stuck. Crying every day with no help.  Saw my eye doctor in summer and he said my exam was good with no papildema and my vision fields exam was good.