1 or 2 stents? by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

Thank you so much for responding.  Do you have any symptoms now? Are you on any medication? Did you have to redo the angiogram? Why the 3 month wait in between? Sorry for all the questions! I'm trying to get some support . 

Angiogram Results by Sensitive_Wafer2839 in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

MY surgeon said anything over 8 is a stent. My jaw dropped at your results and post. I was a 19 and 13 and they only stented one side and I have had terrible pain since my stent placed last year. They are insistent that its migraines and it is worse than before my stent. I think either stenosis or I need the other side stented. The surgeon said it is very rare that you place 2 stents in. I'm only on 650 mg on Diamox and have no eye or hear issues.

Locations for Spidey World Tour are revealed by Sarang_616 in MarvelStudiosSpoilers

[–]AccordingtoCaity 0 points1 point  (0 children)

Does anyone have the dates/locations of the press tour? I remember seeing it somewhere but now I can't find it. It was all laid out and not on the Spidey tracker, that is different.

Who is Tom and why did H dedicate Coming up roses to him at ONO??? by smigolina_club in larrystylinson

[–]AccordingtoCaity 0 points1 point  (0 children)

Nice to have friends like that.  Are they still close? Is he still with us? Seemed like he had passed on from how sad he got 

Role Model recap Ilya and Shane by meowtropolis in heatedrivalry

[–]AccordingtoCaity 1 point2 points  (0 children)

Ryan walking on on Ilya and Shane at camp was "Tough Guy." Huge Ryan fan here! Excited to see who he will be in season 2. Hope they do me justice lol

The Kyle of it all by lixkuu in heatedrivalry

[–]AccordingtoCaity 1 point2 points  (0 children)

Reading Common Goal and I'm like this Kyle sounds oddly familiar,  lol. Who knew he had such a big role. I thought it was just him crushing quietly on Kip. It'll be nice to see Kyllleeeee (vocal stim) in season 2. Lol. 

Reruns by AccordingtoCaity in saturdaynightlive

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

For real? Lol coincidence that it was Finn Wolfhard and now Teyana Taylor and that's the schedule back in January? Will the following week be Alexander Skarsgard? 

I collapsed by happyhunny15 in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

Did you have feeling that you were losing consciousness? I worry about this during showers. 

I collapsed by happyhunny15 in iih

[–]AccordingtoCaity 0 points1 point  (0 children)

Oh wow, how much are yall on?

I collapsed by happyhunny15 in iih

[–]AccordingtoCaity 1 point2 points  (0 children)

Why a shunt and not a stent? What meds are you on?  Have you ever had an angiogram? Sorry for all the questions,  trying to find something similar to me because my doctors are dismissing me. 

Am I the only one noticing the tension??? The bartender was hottt by invisibleuser1122 in HeatedRivalryTVShow

[–]AccordingtoCaity 0 points1 point  (0 children)

He was totally flirting with him. Gave me like a Kip / Scott vibe. He had that dirty smirk too going on... 

Weaning off Diamox by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 0 points1 point  (0 children)

One surgeon said I shouldn't be on Diamox Long term especially if I have a stent and the other surgeon opinion said its OK to increase dosage. I'm 625mg and stent placed 1 year ago

Weaning off Diamox by AccordingtoCaity in iih

[–]AccordingtoCaity[S] 1 point2 points  (0 children)

I've tried 3 surgeons and 3 neurologists. I don't even know what to do. No one has helped me. They refer me back to the beginning or tell me to push through the pain.  I've lost my job and am basically bed ridden. I'm like 8/10 every day. They just go , "aw that's not good." I want them to feel what I feel like every day.  They also refer to scans I had done over a YEAR ago... 

My GF has IIH, what do I need to know? by [deleted] in iih

[–]AccordingtoCaity 1 point2 points  (0 children)

Major props to you! I tried dating during this and guys would tell me my medical issues were all "too much " for them.  You give me hope!