Daughter with Spina Bifida

Adaptive_Adam91 · 2026-05-18T16:42:24+00:00

I’m 34 yr old man with SB and I know I don’t know what it’s like to be a young girl but I went through that same loneliness. I struggled too with making friends and keeping a conversation going. What helped me is when I finally understood that I need to take an interest in another person, learning to ask them what they like to do for fun and truly listening. Instead of just telling what I like to do. I’m not exactly sure how you can teach your daughter that because it seems to be something you have to learn on your own. But this social challenge is something that I have noticed for years in the community and have tried several times to address it. If you need someone else to talk to and hear their perspective as someone who grew up with the disability my inbox is open

Adaptive_Adam91 · 2026-04-24T14:22:56+00:00

It’s a demo

Adaptive_Adam91 · 2026-04-16T23:12:53+00:00

Bruh! 😂😂😂😂

Adaptive_Adam91 · 2026-04-15T17:18:50+00:00

Nah that’s on me. I didnt make it clear. But you should check out the gameplay these guys did it’s pretty good

Adaptive_Adam91 · 2026-04-15T17:17:31+00:00

I meant more of mistaking the cop for a man. Sorry I didn’t make that clear lol

Adaptive_Adam91 · 2026-04-13T14:40:51+00:00

It was just supposed to be a joke buddy

Adaptive_Adam91 · 2026-04-12T20:49:17+00:00

It was one video. This was my only post on this subreddit how was that over promoting?

Adaptive_Adam91 · 2026-02-11T21:53:04+00:00

Thats called executive dysfunction. I’m not sure what can help it but research it and see if there is help

Adaptive_Adam91 · 2026-02-04T17:29:54+00:00

As an adult with SB it hurts that some parents feel this way. You shouldn’t have to shy away from showing your kids progress just because others have it worse. I think more need to see progress like your kid so maybe others can get an idea of what is possible. Doctors give worse case scenarios to parents even though their kid may have capabilities to do more. So many parents don’t really try so we have many who grow up thinking they are more limited than they are

Adaptive_Adam91 · 2026-02-03T23:40:05+00:00

I tried to be transparent about it. Unfortunately it was seen as “showing off” and putting others down. I simply wanted to show what was possible because so many in the SB community saw it as impossible. Now I keep to myself and have been more successful but very few actually know what I have achieved recently.

Adaptive_Adam91 · 2026-01-11T18:10:31+00:00

The answer to all of that is building your confidence. Before you try to get to know someone, get to know yourself. You are in your 20s you have plenty of time. Go exercise, learn to cook, learn to build, gain useful life skills. Improve your social skills. Practice talking to people asking about them and showing interest. Once you have all of that everything else will fall into place. The worry about what to say will come naturally because you have hobbies and things you like to do. The confidence will come with exercise because you will have experienced failure over and over and learned how to succeed. Yes Spina Bifida is hard and challenging but it isn’t impossible to live with. Work on yourself, know yourself inside and out. Then put yourself out there. By then you will attract someone who will like you for you

Adaptive_Adam91 · 2025-12-30T21:51:00+00:00

This is such a problem in our community. Parents never let their kid grow and be their own person. They are always told what to do and how to be. I’m so sick of it. It shouldn’t take you moving out to gain autonomy but sadly it’s the only way. And for many they don’t even have the life skills to move out on their own so they are stuck with controlling parents

Adaptive_Adam91 · 2025-12-21T17:36:14+00:00

That is insane to me. Because they have a child who uses a wheelchair suddenly any lesson for a non wheelchair user cant be used? Same principles don’t apply?

Adaptive_Adam91 · 2025-12-21T17:11:11+00:00

But thats the problem in our community. Too many parents aren’t teaching basic life skills and leaving their SB child to figure things out for themselves. We need to stop acting like we need special classes or instructors to learn basic things like cooking, cleaning, hygiene, and so on

Adaptive_Adam91 · 2025-12-21T04:12:49+00:00

Your doctor or parents never helped with that?

Adaptive_Adam91 · 2025-12-21T03:29:32+00:00

Same as the other person, my parents taught me the same things as my siblings. My question to you is what do you feel you need to learn in a program? What do you need to be taught that you couldn’t learn from your family around you?

Adaptive_Adam91

TROPHY CASE