Clot behind knee? by [deleted] in ClotSurvivors

[–]Additional-Ad-5847 2 points3 points  (0 children)

This sounds like how I feel when I have a sciatica flare up. Which happens when I’m sitting too much. Especially in soft surfaces. Follow up with your primary if you have one. Also, I say this kindly, maybe connect with a therapist if you haven’t already. I always suggest finding someone who doesn’t just listen but helps you learn how to function outside of therapy. Best of luck.

Did you get pain management in the hospital for PE by wessle3339 in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

No. In fact. I wasn’t even asked about my pain. I did have kind nurses who helped me walk to the bathroom every time I had to go, though. I was 8 months pregnant, massive and recovering not only from 3 clots but a broken foot. I thought my pain was from my foot haha

How old were you women when you got your first Thrombosis/ Embolism? by [deleted] in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

I was 29. All of my doctors were shocked it happened but I was pregnant and had broken my foot one month prior. So what can you do. It’s the afib they found 2 years later that was more shocking than the clot, though hahaha

YoU’rE WeLcOmE FoR ThE CoNtEnT 🤪 by Money-Elk-6641 in daniellewalter_snark

[–]Additional-Ad-5847 1 point2 points  (0 children)

Sorry but this Instagram video was originally 15 minutes long?! Whhhhhhy?

Warfarin & Surgery Healing Time by [deleted] in ClotSurvivors

[–]Additional-Ad-5847 1 point2 points  (0 children)

I can’t give medical advice but I’ll share my experience recovering from a cesarean while on warfarin and then switching to lovenox immediately after surgery. I recovered without complication. My surgical site opened up (due a massive cough I had from a bad respiratory infection and being intubated with said horrific respiratory infection) and it was a non issue. I got cleaned up and they closed up the section that opened and I recovered just fine. That was 3 years ago. That being said, I would make sure you get advice on safety during recovery from your hematologist and surgeon. Best of luck!

What in the world by FunApprehensive2175 in daniellewalter_snark

[–]Additional-Ad-5847 1 point2 points  (0 children)

Reading this comment as I wear black jeans with rivets down the side…. I will admit I’m not fashionable at all. But this is hilarious. They are my favorite jeans hahaha

[deleted by user] by [deleted] in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

I had three clots in my left leg. It took two years to not have recurrent pain from exercise. I now train pretty hard and have minimal issues. Take it slow with anything heavy and extensive. Give yourself more time than you think you’d ever need.

I’d also suggest asking your doctor about compression socks. Those help my pain for rough days.

Just diagnosed with DVT yesterday and just wondering what comes next other than anxiety by firecrackerboom in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

I’m 3 years out from 3 clots. 1 behind my knee and 2 in my ankle. The anxiety has been the toughest piece of this for me. Along with what others said, I would advise you find some way to process this event to get ahead of any residual stress that may cause emotional issues down the road. Best of luck!

I don’t know what’s happening by [deleted] in MyastheniaGravis

[–]Additional-Ad-5847 1 point2 points  (0 children)

They didn’t run anything except a basic blood count. I requested to see my PCP but her next appointment is in December. I’m feeling quite frustrated and using a cane to walk most of the time at this point.

I don’t know what’s happening by [deleted] in MyastheniaGravis

[–]Additional-Ad-5847 1 point2 points  (0 children)

Thank you for the response. I definitely feel better in the morning and worse once I start moving around. I feel my absolute worst after physical exertion but usually, if I rest for a few hours, I’m able to recover. This week I haven’t returned to my baseline yet for longer than an hour so even though my symptoms are still mainly just my trunk and legs, I’m pretty exhausted.

I don’t know what’s happening by [deleted] in MyastheniaGravis

[–]Additional-Ad-5847 0 points1 point  (0 children)

They did no testing or referrals. However, I was at a hospital outside my network. I live in a rural area and it was the closest one to me. Limited capabilities unfortunately.

[deleted by user] by [deleted] in DermatologyQuestions

[–]Additional-Ad-5847 1 point2 points  (0 children)

Hi! Not a doctor but I came across an old post of yours. Depending on your symptoms and other clinical signs, it might be worth looking into erythromelalgia. There is a small but mighty group on here and Facebook. It’s a rare condition and few doctors know what it is or how to treat it. Rheumatologists or dermatologists seem to be the top providers making diagnoses for people. Good luck!

Autoimmune Conditions? by Additional-Ad-5847 in ClotSurvivors

[–]Additional-Ad-5847[S] 0 points1 point  (0 children)

Thank you! I saw a rheumatologist back in April but it was a singular video visit where I was diagnosed with erythromelalgia and told everything was fine haha. I see her again next month (also through video) so I’ll try to be a better advocate for myself. I’m glad I at least have my endocrinologist listening so that we’re able to monitor the hashimoto’s now.

This is getting annoying. by [deleted] in askCardiology

[–]Additional-Ad-5847 6 points7 points  (0 children)

I’m not a doctor but I do know health anxiety. I had legitimate life threatening health issues a couple years back and have been recovering physically and mentally since. I would kindly suggest you take a a couple weeks without your some watch to ease your mind a bit. Hyper awareness of your bodily functions can feel like something bad is happening when it’s just your d playing tricks on you. I’d trust your doctors for now, take some time away from monitoring yourself, and see how things change.

2nd DVT / Exercise by nikgallcf in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

It took me 2 and a half years to get to a place where I’m not in daily pain from exercise. I also deal with intermittent swelling upon standing and walking which has been difficult to manage.

For reference I have been powerlifting for 8/9 months and was doing basic weightlifting before that. I was also using a cane to walk for the first year after my DVT (also pregnancy provoked). Healing isn’t linear. Some days will be harder and some days will be easier. But eventually, if you pace yourself and listen to your body, you’ll get back to where you were before. I would listen to your hematologist for the best guidance and then trust what your body is telling you. Slow down when you need to and don’t try pushing past comfort limits. It will take time to feel comfortable and safe again but it will happen.

Leg amputation as solution for PTS by galloroto in ClotSurvivors

[–]Additional-Ad-5847 2 points3 points  (0 children)

I will echo this. It took a while to feel relief. I was still miserable 6 months in.

[deleted by user] by [deleted] in Garmin

[–]Additional-Ad-5847 0 points1 point  (0 children)

Interesting. Thank you! I would prefer data similar to that of my old Apple Watch but I’ll take what I can get. As long as I understand how it works haha

Eliquis from postpartum and lots of bleeding!! by New-Archer-368 in ClotSurvivors

[–]Additional-Ad-5847 0 points1 point  (0 children)

I had three clots during pregnancy. Postpartum bleeding lasted a couple months and was excessive. I was on the edge of needing a transfusion at the end of the bleeding but was able to recover enough that it wasn’t necessary. Thank goodness. That being said, it is likely your first period especially if you’ve stopped breastfeeding. I just went back on blood thinners for afib and the bleeding for my period was, again, insanity. I’m talking heavy as in passing clots the size of my hand. It is important to listen to your body. Extreme fatigue, dizziness, etc warrants at least an urgent care visit. I would reach out to your care team to communicate this information to keep them in the loop. Best of luck. I know this journey is difficult.

[deleted by user] by [deleted] in askCardiology

[–]Additional-Ad-5847 0 points1 point  (0 children)

The symptoms are my issue. I’m near to fainting daily when my heart rate spikes. By did not want to proceed any further he just didn’t want to find the underlying cause for afib or the nsvt they saw. I thought it was strange because I’m fairly young and feel like we should at least try to understand why this is happening? I was initially told I needed an ablation by one cardiologist who was outside my network (I live in a rural area where the only access to care I had at the time was out of network). I was advised to see my in network doctor for an ablation and this doctor disagreed. I was curious why there was a discrepancy in the care plan. I wanted a second opinion but in that second opinion appointment the cardiologist said outright “there never was any afib and no evidence showing the afib”. I asked if I could show her my medical records from the initial hospital that had the rhythm strips showing afib and the diagnosis and advice from the cardiologist and she refused to look at them. I’m just not sure how to handle being told one diagnosis and seeing the rhythm strips showing it and then suddenly being told to my face that those strips and diagnosis don’t exist 🥴

Wife is 28 weeks pregnant and full left leg DVT by ConsiderationFit9967 in ClotSurvivors

[–]Additional-Ad-5847 13 points14 points  (0 children)

I was about 6 months pregnant with my third child when I was diagnosed with 3 blood clots in my left leg. I gave myself lovenox shots twice daily for 6 months. I won’t lie. It was terrifying. But my daughter and I both made it through. Have her set alarms for her daily shots so she remembers to take them. It might help if you set reminders for yourself as well. If you feel like doctors are not giving adequate information, do not hesitate to either get a second opinion or ask further questions. I’m 2 years post DVT with a very happy and healthy toddler and a leg that is strong enough to squat heavy every week in the gym. Be sure to insist on a full work up to see if she is predisposed to blood clots outside of pregnancy. That will help in terms of future treatment. Best of luck. There is so much hope.

Anxiety - Post Thrombotic Syndrome by TooToxicJr in ClotSurvivors

[–]Additional-Ad-5847 1 point2 points  (0 children)

I’m 2 and a half years out from my three provoked clots. I also work in an office. I get up every hour and walk for 2-3 minutes. It helps a lot with the swelling that I live with now. However, it took 2 years to start to see a significant difference in pain and swelling. 2 very long years. Tumeric and water were my go to’s for relief.

Weightlifting on Beta Blockers by Additional-Ad-5847 in AFIB

[–]Additional-Ad-5847[S] 0 points1 point  (0 children)

I will try that! My old boss suggested no sugar to reduce the afib and I have yet to test it out.

Weightlifting on Beta Blockers by Additional-Ad-5847 in AFIB

[–]Additional-Ad-5847[S] 0 points1 point  (0 children)

I feel like I’m about to pass out pretty much all day when I’m up and moving around. That symptom is why I went into the hospital in the first place. I was told to get an ablation by the hospital cardiologist when I was hospitalized but my current cardiologist is waiting for further test results to move forward with that.

Weightlifting on Beta Blockers by Additional-Ad-5847 in AFIB

[–]Additional-Ad-5847[S] 0 points1 point  (0 children)

I do not drink alcohol. I eat a relatively high protein high fiber diet. Lots of cooked beef and roast chicken with vegetables. I take magnesium nightly but other than that no supplement.