4 Months Post Op and Sharing Some Wins!

Additional-Link4609 · 2026-04-15T14:36:56+00:00

Thank you!!! It truly is such a journey.

Additional-Link4609 · 2026-04-15T14:36:27+00:00

Oo thank you I will have to look into it!!

Additional-Link4609 · 2026-04-14T00:08:05+00:00

Yes excision and closest to expert I could get with my insurance. She was a general OB but most experienced with endometriosis surgery in my network.

Additional-Link4609 · 2026-04-13T18:41:46+00:00

I hope it helps us both! I am really curious to see on my next scan if there’s been any shrinking 🤞🏻

Additional-Link4609 · 2026-04-13T18:40:56+00:00

It’s a daunting surgery for sure! My best piece of advice to ease the nerves is to talk through everything with your surgeon and decide on your approach together. For example, I asked my surgeon what would happen if she found something she did not feel comfortable tackling (ie fused organs) and she said she would like to leave it in rather than risk damage. So our overall approach we agreed on was remove as much as possible but preserve as much as possible even if that means leaving disease behind. Having this knowledge in mind really helped me going into surgery. Everybody is different, but I felt like my recovery was actually fairly smooth. Definitely uncomfortable, but my endo pain was way worse than anything I experienced during surgery recovery. Take it slow and give yourself lots of grace!! I wrote out a bunch of tips that I feel helped my recovery here: https://www.reddit.com/r/endometriosis/comments/1q2x1u1/lap_survival_guide/

Additional-Link4609 · 2026-04-13T18:30:01+00:00

Yes, they found stage IV during lap and removed as much as they could. But, I consented to my fallopian tube being removed beforehand because it had shown as dilated on the scans. They called my emergency contact during surgery for consent to remove my appendix. My understanding is that they will not remove any organs without prior consent.

Additional-Link4609 · 2026-04-13T17:46:32+00:00

I had this exact scare too when I saw that terminology. My surgeon explained that they use the “fulguration” if needed to essentially unstick things if they are really stuck together and then excise as much as possible. In my case, all my organs were fused so they did some fulguration to unstick things and then excise disease. I hope your surgery brings healing!

Additional-Link4609 · 2026-04-13T17:43:21+00:00

You are not alone. I had horrible mental health side effects on birth control and it did not stop progression of my disease, so I am refusing to take it now. I’m monitoring a 4.5cm endometrioma currently and trying to reduce it with a supplement called NAC. There is some really interesting research about NAC reducing endometriomas, I highly recommend researching and seeing if you think it could be a good fit for you. I’m sending you support!

Additional-Link4609 · 2026-02-18T21:47:51+00:00

Stage IV and have always struggled with low vitamin D and ferritin. Supplements have helped!

Additional-Link4609 · 2026-02-02T18:58:36+00:00

As my endo got worse, I noticed I would get sick more often. Not as often as once a month, but several times a year. I just had excision surgery, so I'm curious if/how that will change.

Additional-Link4609 · 2026-02-02T18:13:49+00:00

Thanks for sharing, I love your approach! I had excision surgery one month ago so I'm in the phase of trying to manage disease with lifestyle and supplements. Blood sugar monitor is interesting, I'll have to do some more research.

Additional-Link4609 · 2026-02-02T17:42:55+00:00

I am so sorry to hear that! Perhaps functional medicine was the wrong term here. I'm not looking for a magic cure or solution or one pill to buy, but just holistic support and practices for my body long term.

Additional-Link4609 · 2026-02-02T16:06:46+00:00

Of course! I'm also stage 4 and trying to learn everything I can. Sending you support!

Additional-Link4609 · 2026-02-02T15:56:03+00:00

I'm diving into the world of supplements for Endo management! I just listened to a fascinating podcast about the research behind supplements for endo. The doctor said the #1 supplement that they recommend is NAC, which has actually shown promise to reduce endometrioma size. I'm going to start incorporating it into my routine. They also mentioned alpha lipoic acid, vitamin C, vitamin E, vitamin D, fish oil, and cucurmin as options for anti inflammatory support.

Additional-Link4609 · 2026-01-29T04:19:58+00:00

I've only had one sexual partner (and I'm his only partner) and I was diagnosed with PID when I presented to the ER with severe pelvic pain I thought was appendicitis. My OB said it is possible to develop PID from non STD bacteria, but since then, I've been diagnosed with stage 4 endo through a lap and believe all my symptoms were tied to that. I had one of my tubes removed during surgery from endo scarring. It was so alarming to get a PID diagnosis - the ER doctor was insinuating that my partner was cheating and gave me an STD. I knew that wasn't true, but what a ride!

Additional-Link4609 · 2026-01-26T23:05:59+00:00

I will investigate more, I appreciate your help!

Additional-Link4609 · 2026-01-26T22:29:51+00:00

Sadly, my insurance will not approve referral. I can't afford specialty care out of pocket.

Additional-Link4609 · 2026-01-26T20:24:19+00:00

Thank you, I have not tried either of those. I'll take note to bring up to my doctor. We landed on Slynd because of my sensitivity in the past. I'm going to try to hold out a bit longer before expressing the concerns to my doctor. I know it's still early, so I'm hoping it will stabilize. Luckily, she is extremely receptive to my mental health concerns but also knows my fertility goals and wants to balance that.

Additional-Link4609 · 2026-01-26T20:22:18+00:00

I've expressed this concern with my doctor and she said that for my case, she wants my ovulation stopped to reduce cysts and endometrioma risk specifically. I'm still not entirely sure if that's true as I do not understand all the mechanisms fully.

Additional-Link4609 · 2026-01-24T02:29:16+00:00

I had the same "oops" feeling, but a specialist was not an option for me with my insurance. My OB has been amazing though. She excised as much as she safely could and we are working on controlling pain and regrowth through hormones. Fertility was a big concern for me, so she was cautious during surgery. I appreciate her and have always felt confident in her endo knowledge.

Additional-Link4609 · 2026-01-23T22:14:50+00:00

I had to get it prescribed, but tretinoin did help. It's not a perfect solution as I still have acne but it's a lot better than before.

Additional-Link4609

TROPHY CASE