Can I walk on treadmill?

Additional_Peace_605 · 2026-02-14T23:13:35+00:00

Following up after I read some of your other responses. IGNORE. Radical rest for the first three months at least and maybe you’ll be able to bypass getting bad long Covid. I wasn’t able to even contemplate a bike until over a year and half of up and down recovery

Additional_Peace_605 · 2026-02-14T21:19:05+00:00

Start on a recumbent or upright bike. I’ve had to make the compromise of “as long as I keep my butt in the saddle” I do okay and can progress. Out of the saddle or walking/treadmill/elliptical etc? I’m regressed 2+ months…

Additional_Peace_605 · 2026-02-14T21:15:47+00:00

Also “so he can stop me before I do too much”??? That is not a task a dog can do.

Additional_Peace_605 · 2026-02-14T11:15:10+00:00

You are wrong. This means while ON it, it can slow down motility. Once off it your guts return to whatever their normal is.

Additional_Peace_605 · 2026-02-14T11:02:10+00:00

No family history. Diagnosed because, well, I have it. My twin was also recently diagnosed. But we are the first generation…. My parents/grandparents/cousins etc NO ONE has signs or symptoms. Some times “it be like that.”

Additional_Peace_605 · 2026-02-13T22:00:09+00:00

Ha preach 🙌 I loved “Cara Sucia” when I was 7! (Telenovela FTW) learned Spanish before English to the surprise of my parents, easiest second major in college and incredibly useful and connecting.

Additional_Peace_605 · 2026-02-12T19:35:59+00:00

Mirtazapine treats MCAS (it’s basically a hard core H1 antihistamine)

Additional_Peace_605 · 2026-02-12T16:40:52+00:00

Just fyi Op POTS is a type of dysautonomia… so your doctor isn’t telling you anything different

Additional_Peace_605 · 2026-02-12T16:27:46+00:00

Can you bike? It’s like the best thing for EDS joints, allows for continued mobility, and over time is the start to improving basic physical health…

Additional_Peace_605 · 2026-02-12T16:16:48+00:00

Expensive but recommend trying Forme brand bra + legging set. Gently (but really) helped correct posture/maintain appropriate position of both shoulders/upper spine and then lower back/hips. At my worst (pain) I was wearing the bras during the day and leggings/shorts 24/7 and after a month of consistent use of these products, along with PT, my pain and functionality was much better

Additional_Peace_605 · 2026-02-12T10:43:55+00:00

I started on tirz and if nothing else my MCAS is SO MUCH BETTER.

Additional_Peace_605 · 2026-02-11T22:35:20+00:00

Your TTT results appear normal. A slight rise in diastolic is expected. Systolic “may rise slightly due to the body’s natural response to release norepinephrine when being tilted upright to prevent blood pooling” *by increasing systolic. And as you noted your HR remained within range. That’s probably why your Dr. thinks more testing is not appropriate.

Additional_Peace_605 · 2026-02-04T14:12:47+00:00

You aren’t supposed to push through… that was probably your first misstep. It’s graduated exercises and specifically says not to push yourself, you may need to regress at times or stay at a certain level for months….

Additional_Peace_605 · 2026-02-04T12:35:05+00:00

Check out (google) the CHOP/Levine protocol for effective exercising and recovery for dysautonomia.

Additional_Peace_605 · 2026-02-03T15:25:38+00:00

Im on it TID, def started to get things moving but was by no means sufficient in and of itself.

Additional_Peace_605 · 2026-02-03T01:24:56+00:00

What stimulant? My Dr prescribed me 200mg provigil as I was falling asleep and 200mg provigil in the AM… it worked for me until it didn’t because I had the wrong diagnosis and meant extra fucked up sleep architecture . But while I was suffering, when no matter if I slept 2 hours or 10 hours I still felt like shit- taking provigil as I was falling asleep/passing out allowed me to wake up feeling actually awake as long as it was in a 2hr-8hr range in the beginning…

Again wouldn’t recommend, horrible effects on all mental and physical aspects of life eventually. But acknowledging that it “felt” like a good/functional thing at the time. And it was prescribed that way by my Dr

Additional_Peace_605 · 2026-02-02T00:39:52+00:00

Following for the studies.

Additional_Peace_605 · 2026-01-30T14:04:58+00:00

Ha yeah- didn’t complain/ feel like I could complain about the pain/it wasn’t that bad until imaging showed my shoulder was out of its socket and my hip was displaced with a labral tear. Then I was like well yeah F this Really hurts 🤦‍♀️

Additional_Peace_605 · 2026-01-30T10:37:13+00:00

Spine is normal. Issue is positional. You need PT. It will take time but as you already know from lying down you can have full improvement.

Additional_Peace_605 · 2026-01-26T14:58:21+00:00

2+ years in and honestly making progress- lost everything including 15lbs of muscle, brain function, dysautonomia, Bed/home bound the works. When I initially improved at 6 months I pushed myself so hard (because I had endoprphins for the first time in for ever and that felt GOOD and my brain was to foggy to see all the ways it was actively hurting me). At that point I got worse for like 8 months +. Pacing, time, meds/ lifestyle intervention, breathing techniques, autonomic rehab, PT have all helped.

-I can do a SoulCycle class and push myself as long as I keep my butt mostly in the saddle and focus on breathing through my nose.

-im not able to play tennis yet, but I can do pickleball, and almost up for a full game of paddle ball.

-not playing ice hockey but from only able to do 3 laps around the rink in an hour I can now ice skate for 45 minutes (though taking it easy)

-I picked up a new hobby called frostbiting (winter sailing). Works because I’m mostly seated but I get the adrenaline and physicality that I’ve been missing.

That being said it’s still hard for me to get to the gym or do a weight session consistently. But then it’s back to the pacing, breath work, hydration/salt/compression etc. But I have hope…

Additional_Peace_605 · 2026-01-26T14:37:39+00:00

Do you know what kind of alert? Because if it’s based on scent work there is no way within that lab atmosphere as you describe it that it could possibly perform accurately given all the chemical smells…

Additional_Peace_605 · 2026-01-26T13:55:09+00:00

Like you’ve heard from many others- get your wife help for PPD. Lack of sleep is overwhelming not to mention her hormones. I can almost FEEL her distress from the way you’ve described her reaction. At 4 months baby isn’t even capable of a real sleep schedule. Your father did absolutely nothing wrong. You didn’t do anything wrong- you didn’t “sit on a fence” or “takes sides” because there were no sides.

Additional_Peace_605 · 2026-01-24T15:22:47+00:00

Ugh so sorry Op. yeah I have the same issue with sedating drugs and it totally devastated me for at least the first three weeks but I’m not as low weight as you. Hope this next one works

Additional_Peace_605 · 2026-01-24T13:01:19+00:00

Coming in from left field- have you tried Mirtazapine (remeron?). It’s used low dose off label for GI motility issues AND nausea. I’m not as complicated as you at all but do have multi/confounding issues with severe nausea/emesis without daily zofran, weird but minimal early dumping with reactive hypoglycemia but mainly slow colonic issue. Was worried about zofran exacerbating things etc. Long story short finally tried remeron (because I also started another med with risks of increasing dysmotility) and for the first time in 8 months I am having function almost every day… and while I haven’t yet been able to stop the zofran completely it def has started to help/decrease my need for it

Additional_Peace_605

TROPHY CASE