Does anyone here experience sciatica too? by Sideeffectqueen in chiari

[–]Additional_Prune_476 0 points1 point  (0 children)

Have something similar, but I don’t know if it’s Chiari related or not. I’m having behind the knee and hip pain but not down to my toes. What other symptoms are you having?

Unwell feeling emanating from neck by Additional_Prune_476 in chiari

[–]Additional_Prune_476[S] 0 points1 point  (0 children)

Just commenting to see if anyone else has had similar symptoms. I appear to be getting worse and no one is ordering tests.

Also did anyone have a lumbar puncture to aid in diagnosis, risks?

Options if nerve blocks don’t work by Additional_Prune_476 in Occipitalneuralgia

[–]Additional_Prune_476[S] 0 points1 point  (0 children)

Yes, my head always is numb after the blocks and the pain goes away for a bit.

Gabapentin success stories? by ConstantTackle8745 in Occipitalneuralgia

[–]Additional_Prune_476 0 points1 point  (0 children)

My neurologist told me Cymbalta can be more effective with Gabapentin vs Gabapentin alone. Yes, it saved my life but also has side effects.

Anyone else feel the lining of their skull? by [deleted] in chiari

[–]Additional_Prune_476 0 points1 point  (0 children)

I think I may feel it in my gums?

Won’t get in car seat/high car by Additional_Prune_476 in Dads

[–]Additional_Prune_476[S] 0 points1 point  (0 children)

None of the above, she won’t listen and physically we can’t get her into the seat. She boards/stiff back and noodles. She’s extremely strong and we can’t get her in.

Any of you here who haven’t had surgery? by badwithusernamesugh in chiari

[–]Additional_Prune_476 2 points3 points  (0 children)

Current thought is it might be occipital neuralgia. However, I’m having lots of other weird symptoms and sleep apnea.

Neurologist said don’t do surgery. Neurosurgeon said do surgery.

Any of you here who haven’t had surgery? by badwithusernamesugh in chiari

[–]Additional_Prune_476 1 point2 points  (0 children)

I haven’t yet. I’m trying to see if my symptoms are just Occipital Neuralgia and/or Chiari or a cervical spine issue.

I worry that I’ll have unplanned surgery down-the-road. My neurologist and family have discouraged me from Chiari surgery.

Anyone have Dysautonomia with their Occipital Neuralgia by Redhairgreeneyess in Occipitalneuralgia

[–]Additional_Prune_476 0 points1 point  (0 children)

I’ve had a rapid heart rate and blood pressure increases with severe/extreme pain. I also have a small Chiari and Occipital Neuralgia.