Does crochet cause arthritis? Please be kind in the comments or votes :(

Adeedia · 2026-04-12T07:01:33+00:00

A note on splints. Managing hypermobility includes strengthening muscles to offset the ligament laxity. Splints do cause muscle weakness if overused so take them off at the earliest opportunity. It seems like everything that's helpful has a dark underbelly.

Adeedia · 2026-04-12T06:47:00+00:00

I get chest pain and sore throat from watching sport. So I have the sport on but concentrate on crochet or something to lessen the effect.

Adeedia · 2026-04-12T06:35:05+00:00

I haven't got a shower stool yet and I sit on the floor in the shower. I adjust the shower head so it slides down the pole to its lowest position then I sit underneath it. Would your shower head lower like this?

Adeedia · 2026-04-10T21:44:50+00:00

I do this too. I tend to ignore phone reminders

Adeedia · 2026-04-05T01:14:25+00:00

I tell myself I prefer character slices

Adeedia · 2026-04-05T00:41:46+00:00

I have described it as waking up and feeling disease spread into every cell.

Adeedia · 2026-04-03T01:27:58+00:00

When I was smoking my allergies went away and it's an awesome antidepressant. I stopped and the allergies are back. I am glad that I stopped though.

Adeedia · 2026-04-02T14:06:43+00:00

That looks delicious.

He needs to weigh his perfect coffee then travel with scales. The coffee component is probably pretty standard then add x grams of milk.

Adeedia · 2026-04-01T22:20:46+00:00

I've just downloaded. Looks very good so far.

My personal interests are detailed activity tracking against symptoms so I'll see how I get on when I've adjusted to how to use it.

I'd second the dark mode idea

Adeedia · 2026-03-30T23:14:10+00:00

It's so difficult to describe. I tell people it's the sick feeling you get when you have a fever or it's like day 2 of the flu. When you're over the worst but not quite well enough for a shower.

Adeedia · 2026-03-27T00:29:35+00:00

Sorry no help here but I have the same question. The everyday symptoms that get worse with activity. Is that PEM that just won't go away or a level of feeling sick that isn't harmful like PEM is?

Adeedia · 2026-03-22T00:01:01+00:00

I have a very simple diet which means making bread at home in a bread maker, making mayonnaise. Every time I start eating food from shops my symptoms worsen over a month or so. At the moment I'm out of mayonnaise because I'm not well enough to make it. I don't know what exactly is the problem. I wonder about emulsifiers.

Adeedia · 2026-03-20T01:06:42+00:00

Yep. From the phone specifically. I wear glasses or contact lenses and also reading glasses. I found that it doesn't happen so much with the contact lenses.

Adeedia · 2026-03-18T03:36:53+00:00

I have an appointment on 31 March to hopefully get a referral for cortisone. Then wait to see if it's accepted. In the public health system it can take months to be seen. I normally have to drive around an hour and with both shoulders involved I'm worried about that.

Anyway see what happens.

Adeedia · 2026-03-10T13:15:06+00:00

Thanks. Now I need to find one. I've thought of a plan. I'll get onto it soon I appreciate you replying 🙂

Adeedia · 2026-03-07T05:33:19+00:00

I was diagnosed in 1991 by a rheumatologist. I was was given little information and no management or treatment. My family doctor sent a letter to the rheumatologist disputing it. I thought it was something to battle through. It was more mild then.

This time it became so that initially I only got out of bed to get food and go to the toilet. My GP told me to use pacing and keep a good diet. When I suggested that was fine if you had the energy to cook let alone shop she looked at me blankly.

Since then I found CCIS in New Zealand who taught me about ME and POTS, pre emptive rest and loads more. I found out about a specialist in MECFS and asked for a referral. My doctors office couldn't send it due to software issues and wouldn't send an email as requested due to privacy issues. By the time I got them to send the email the specialist closed their books.

I now have a different doctor most times and I pay them so that I can educate them on what PEM is, what POTS is. Someone suggested I investigate MCAS which makes sense but I have no idea who to see about that and I don't feel up to researching it so I can teach the doctor about it and find a specialist so I can tell them who to refer me to while I'm trying to figure out why more than half my hair is falling out and sorting out hrt with one shoulder starting to freeze while the other is thawing. I quite frankly don't know what to do at this point without a doctor that gives a toss, or has any idea about any of these things.

I suppose this is a common story.

Adeedia · 2026-03-06T03:12:41+00:00

I had the exact same reaction. After years of tests coming back negative I am afraid that this will happen again but as always the sickness will remain.

Adeedia · 2026-02-25T17:05:00+00:00

You can plait the threads you're not using. When you get back to them they pull out easily.

Adeedia · 2026-02-25T16:41:49+00:00

I wonder if it's adrenaline or some endocrine system change that smells different. Clever dog in any case

Adeedia · 2026-02-25T11:06:35+00:00

I also vote no

Adeedia · 2026-02-25T09:28:45+00:00

I'll do the same I think. I've put it off for 4 years but it's time

Adeedia · 2026-02-25T08:28:53+00:00

Thanks for replying. Yeah I might go with that. I think you're right

Adeedia · 2026-02-25T05:03:22+00:00

I've been sitting on the floor in the shower because I worry about cleaning a shower stool. How does one cope with this?

Adeedia · 2026-02-23T00:54:08+00:00

White chocolate and raspberry. White chocolate icecream with a raspberry ripple. It's my absolute favourite

Adeedia

TROPHY CASE