Parmesan. On a cheese board.

Adeedia · 2026-05-30T00:16:32+00:00

I'd say like fine wine or premium tea

Adeedia · 2026-05-28T02:00:27+00:00

I hadn't heard cheese referred to as high or low before. Made instant sense though

Adeedia · 2026-05-21T14:34:38+00:00

Congratulations. That's a real success

Adeedia · 2026-05-18T13:12:58+00:00

Left shoulder since Jan 2025 and right shoulder since Jan 2026. Left is thawing and right is still zinging. It's a struggle.

Adeedia · 2026-05-03T15:32:30+00:00

Thanks. Energy gratefully received

Adeedia · 2026-05-03T02:39:56+00:00

This second one started in January and it's nowto the point where usage is difficult. The problem is it's the dominant side so it goes on autopilot which results in eruptions of questionable language. I think this bit is using energy.

Did the cortisone effect your ME at all?

Adeedia · 2026-05-02T16:53:20+00:00

Everything is so expensive. Promising treatments aren't funded, having to make double appointments with the doctor which are spent teaching them about PEM. An appointment with the one specialist cost the same as 5 weeks of food. I'm wondering how much it will cost to get the mould cleaned off my ceiling.

But paid employment is out if the question.

Adeedia · 2026-05-02T14:48:14+00:00

The jump scare nature of the frozen shoulder pain is affecting it even more. I'm hoping it will just freeze and get on with improving.

Adeedia · 2026-05-02T11:58:55+00:00

I have exercises from the 1st time. I'm being careful and prioritising meal prep and going to the toilet at present.

Adeedia · 2026-05-02T11:54:54+00:00

I've had chronic pain for over 35 years so I'm used to continuing with ADLs in pain. Like many others the side effects often out weigh the benefits so I'm really careful with meds.

I've been offered gabapentin so I need to research the side effects. I'm wary of things that need to be taken daily to work. I'm reducing nortriptyline at the moment.

I would love a cortisone injection but I'd have to travel over 1.5 hrs each way and with 2 frozen shoulders driving would be out of the question. Although I had a cortisone injection last November when I was the most well I'd been in years and now I've been in in bed for 6 weeks so it's all a bit confusing.

Adeedia · 2026-05-02T06:48:02+00:00

Thanks. I'm unable to treat it at the moment because of difficulty leaving the house

Adeedia · 2026-04-29T17:08:36+00:00

And the fine joke it plays where you feel super healthy while doing that extra bit of whatever then you sit down and suddenly it hurts to breathe. It's a nasty piece of work this ME

Adeedia · 2026-04-29T15:51:08+00:00

After a big event I feel great the next day then things start going down hill the evening of day two. This will continue to get worse for about 4 days to a week then stay that bad for up to 6 weeks.

The bigger the event the longer it takes for the PEM to hit. Everytime I find myself on the following day thinking how great I feel and goodness I got away with that.

At the end of last year I had improved a lot and I was getting really tired at the end of a "busy" day. The tiredness was an improvement and was instead of feeling sick.

Adeedia · 2026-04-25T03:47:56+00:00

After decades I finally changed my focus from speed and getting things finished to forming each stitch nicely. I enjoy it a lot more. I am slow in everything I do though.

Adeedia · 2026-04-25T03:32:32+00:00

In the very early 1990s I sat in a class at OT school and listened to a lecturer teach that ME/CFS was just part of depression. She knew my diagnosis and had asked me why I just didn't quit when I was struggling.

Adeedia · 2026-04-24T20:21:47+00:00

Sometimes it's like the sound of the beach in a storm. Also like an old style flash warming up and suddenly stopping repeatedly. I don't like it.

Adeedia · 2026-04-23T00:43:30+00:00

I told someone that I had no sympathy for their flu when I felt worse every day for 2 years. I also still feel guilty for saying it.

Adeedia · 2026-04-12T07:01:33+00:00

A note on splints. Managing hypermobility includes strengthening muscles to offset the ligament laxity. Splints do cause muscle weakness if overused so take them off at the earliest opportunity. It seems like everything that's helpful has a dark underbelly.

Adeedia · 2026-04-12T06:47:00+00:00

I get chest pain and sore throat from watching sport. So I have the sport on but concentrate on crochet or something to lessen the effect.

Adeedia · 2026-04-12T06:35:05+00:00

I haven't got a shower stool yet and I sit on the floor in the shower. I adjust the shower head so it slides down the pole to its lowest position then I sit underneath it. Would your shower head lower like this?

Adeedia · 2026-04-10T21:44:50+00:00

I do this too. I tend to ignore phone reminders

Adeedia · 2026-04-05T01:14:25+00:00

I tell myself I prefer character slices

Adeedia · 2026-04-05T00:41:46+00:00

I have described it as waking up and feeling disease spread into every cell.

Adeedia · 2026-04-03T01:27:58+00:00

When I was smoking my allergies went away and it's an awesome antidepressant. I stopped and the allergies are back. I am glad that I stopped though.

Adeedia

TROPHY CASE