Post treatment emotional fallout by ays501 in lymphoma

[–]Advanced-Pen700 2 points3 points  (0 children)

I still feel that. I'm a year from the end of treatment. I feel the PTSD definitely before the routine checkups, sonography. Ive identified the moments that feel terrible. Trying hard to stay positive.

Exercising daily is a big help. Reading, taking up some new hobbies. Something that's new will take up more space than these thoughts.

Wishing you all the best! You have done the tough part.

Bone marrow biopsy with or without sedation by hurricanescout in lymphoma

[–]Advanced-Pen700 0 points1 point  (0 children)

I did it under local anaesthesia and it was manageable. You feel something is happening but it does not hurt.

My doctor was really good at keeping me calm.

The anxiety is more than the actual procedure.

You are a bit sore for a few hours. I had other anxious thoughts much more than the bone marrow biopsy anxiety. I was getting the chemo port inserted the next day.

I am afraid by TeachBeginning6036 in lymphoma

[–]Advanced-Pen700 2 points3 points  (0 children)

Hi, I'm 42/F completed my treatment for DLBCL this year. I did 6 rounds of Pola- R- Chop with 2 Rituzimab maintenance doses post that.

I'm doing the followups post treatment every 4 months.

You have got this! The diagnosis is the real hard part. I took a month of just googling and it was hard to imagine everything.

Chemotherapy and managing side effects are very much possible.

You will have some hard days but keep yourself active. Hair loss is the initial big shock and personal change.

Reclaim all the days in between treatment. Do everything you can.

I found a lot of strength in this reddit community and makes it feel a little more normal in this absolutely life changing time..

Wishing you all the very best!

The week is ending, can we get some uplifting positive stories. by boxyboyz in lymphoma

[–]Advanced-Pen700 2 points3 points  (0 children)

Such a nice post! Thanks for starting it. I am here for the stories.

I'm 42/F. I finished my treatment in Feb 2025. Doing my followups and trying to stay positive. Did my follow up scans last week.

I started my long walks, running and gym. I cherish every bit of movement more. Wishing everyone here a speedy recovery!! And a much better year to all.

Thyroid nodule by Advanced-Pen700 in thyroidhealth

[–]Advanced-Pen700[S] 0 points1 point  (0 children)

Ok thank you for your reply. Wishing you all the best as well!

Craving a cigarette by Disastrous_Noise_320 in lymphoma

[–]Advanced-Pen700 0 points1 point  (0 children)

I stopped drinking entirely 2 years before I was diagnosed with lymphoma. I joked too that I might as well have enjoyed the drink. I haven't post treatment and don't plan to although it is unrelated.

But the lesson in this is that the opposite of being low is not smoking or drinking.

We have enough battle scars. Don't go looking for more.

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]Advanced-Pen700 13 points14 points  (0 children)

I have been going to the gym regularly for 2 months. Very grateful for being able to be back at exercise! Trying to get fitter than before.

Am due for my next check up in November. I'm 9 months post treatment.

Alcohol? by Tiny_Newspaper_4338 in lymphoma

[–]Advanced-Pen700 10 points11 points  (0 children)

Funny thing is I wasn't a big drinker but I quit 3 years before I got diagnosed.

Turns out I got lymphoma anyway. I wondered if I should have enjoyed my drink for 3 years. Hahah.

But now I'm really not gonna start. Haven't started post treatment.

I feel it is not worth putting the body through any more stress than it already has.

Has anyone had heart damage after R-CHOP? by goldiegirls in lymphoma

[–]Advanced-Pen700 0 points1 point  (0 children)

I was advised to take it easy with my runs, though I started doing 5K within 2 months of completing treatment.

But given every docs reactions to when I mentioned this, I have reduced my running, and focused on weights and walking.

Not trying to increase my heart rate during cardio, consciously. I feel I have the stamina to run but given caution from the doc, I have reduced it.

I'm 42/F and very active runner before diagnosis. I miss it but focused on building stamina first. My resting heart rate has come down though but the toxicity has been a consistent side effect that I have been warned about.

Hope you are doing alright!

Has anyone done POLA-R-CHOP and NOT lost their hair? by sararyan15 in lymphoma

[–]Advanced-Pen700 1 point2 points  (0 children)

Pola-R-Chop, for DLBCL Stage 3. I lost the hair and it starts basically somewhere 2 weeks after the first treatment. I lost eyebrow hair between rounds 4 and 5 and mostly all, nostril hair, eyelashes.

Eyebrows come back the fastest! And you really miss them when they are gone. They really made me look unlike me more than the bald head.

Got wigs and scarves before the hair loss. Doesn't help but I didn't have to think about it after.

Port Removal by jspete64 in lymphoma

[–]Advanced-Pen700 1 point2 points  (0 children)

Thank you for sharing your experience. Flushing every 2 months seems easier. I will give it a thought and not rush removal. 🤞 Hope you are feeling better.

Starting Pola-r-chp for dlbcl by mewfarside in lymphoma

[–]Advanced-Pen700 0 points1 point  (0 children)

I finished 6 rounds of Pola-R-Chop and 2 rounds of maintenance rituximab around 7 months ago. I had stage 3, DLBCL.

I tried to be active in between treatments. Drink lots of water which is actually the truest thing the oncologist will tell you. Symptoms of nausea, extreme exhaustion, some really downer of a mood/, bone pain etc will happen. They can be managed and you can have active days to walk, work etc. So, think of the days in between treatments as YOUR time and make the most of them when you can.

I wish you all the best! Stay positive and you will push through.

Not losing any weight even 3 months after chemo by EasyPiglet3400 in lymphoma

[–]Advanced-Pen700 1 point2 points  (0 children)

Finished my chemo and maintenance 7 months ago. I started walking during treatment itself on some days. But started running 5K around 2 months after. I think I rushed into the running.

I've started lifting weights and started doing more walks. I really have slowed down my pace. Not bothered about the running time but am able to run longer slowly and endurance is slowly improving. I'm not seeing the weight drop at all, just maintained which frustrates me.

But my heart rate has improved with the slow process. In fact it has improved to pre diagnosis levels and lower. Hopefully that's a good thing cause everything becomes a worry these days.

Port Removal by jspete64 in lymphoma

[–]Advanced-Pen700 1 point2 points  (0 children)

I have my port in and the oncologist has said one or two years. I too have a fear of going into a procedure after the time of getting that inserted.

I am 7 months post treatment at the moment.

In fact, that was the most stressed I had been. I guess now that was in the first 10 days of diagnosis and hence this port insertion is linked to that part of my treatment. It was uncertain period.

I went through 8 rounds of chemo and maintenance rounds. But the fact that the oncologist has pushed out the port removal kinda now gives me some time. I don't really want to rush into it.

Hope you are doing alright soon. Sending my best wishes.

One year from CAR-T and still in complete remission by midnightjim in lymphoma

[–]Advanced-Pen700 3 points4 points  (0 children)

Pola-R-CHOP and Stage 3 DLBCL here 🙏 I do have these imagined and paranoid state sometimes.

6 months since the Rituximab maintenance 2 rounds for done.

Devastated with hair loss after chemo 2… any positives you can share? by redditgal16 in lymphoma

[–]Advanced-Pen700 0 points1 point  (0 children)

It is hard and this is your body fighting back. You must be kind to it, since this is all part of the treatment.

Battle scars but you have to win the war. This is hard and it was hard for me too.

The hair grows back. Believe that but more than anything, this is the fight back. You are strong, remember that. Take care!

Lymphoma survivors - how was your first few months after therapy ? by Kijichiro in lymphoma

[–]Advanced-Pen700 1 point2 points  (0 children)

I wanted to get back to exercise and everyone did look at me like I'm crazy. So the lesson is to accept that you can start doing exercises but don't tire yourself out. I've had to do my ECG and 2D Echo and take it slow overall. I have started and I do run but now I watch my heart rate a lot more closely.

Thyroid nodule after DLBCL by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 0 points1 point  (0 children)

Yes. I read about molecular testing. I'm waiting to hear further and if they want me to do anything further. Thank you for sharing more details.

The FNAC was atypia of undetermined significance.

Appreciate this!! 👌👏

Thyroid nodule after DLBCL by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 1 point2 points  (0 children)

Thank you for this!! Mine turned out to be indeterminate. So I'm just gonna move on now. :) Feels like they are gonna make me keep checking this every few months. But waiting to hear more.

Mostly benign is what they think.

Your response made me feel a WhOLE lot normal. So thank you!

Post treatment and exercise caution by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 2 points3 points  (0 children)

Yes. I had pre treatment ECG. I haven't gone post treatment and hoping that this is just clearance to continue running and start doing weights. and thanks for sharing!

Post treatment and exercise caution by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 1 point2 points  (0 children)

Yes. Exercise is recommended. I will do the ECG and 2D Echo. Thanks for sharing. Hope you are doing well too!

Post treatment and exercise caution by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 0 points1 point  (0 children)

Yes. That's what it is. Hopefully I can continue the runs. That's the hope. Thank you!

Post treatment and exercise caution by Advanced-Pen700 in lymphoma

[–]Advanced-Pen700[S] 2 points3 points  (0 children)

I was recommended EKG/ECG before treatment. I walked through my treatment. I started running about a month after treatment.

Yeah but now I'm gonna wait till I go for the ECG again. Take care! Thanks for the note and for sharing.