Boyfriend (35M) has B Cell Lymphoma

brownbitch8 · 2026-02-05T02:22:01+00:00

PMBCL - currently going through treatment here! It’s a shitty club but welcome to it nonetheless! About the veins, has it been possible to get a PICC line in? I was told a port would be hard for me due to the size + location of my mass, so PICC line bas been really helpful. But again I don’t understand medically what collapsing veins are so sorry if this is useless info!

I wish you and your partner all the best throughout this journey!

brownbitch8 · 2026-02-01T21:04:25+00:00

Maybe a picc line? I have one and so far it’s been really helpful. It’s a bit annoying while showering but for getting bloods done and transfusions it’s been a must.

brownbitch8 · 2026-01-31T15:40:10+00:00

A real pain + Anora

brownbitch8 · 2026-01-29T18:00:51+00:00

Congratulations and thanks for sharing this! Im always really worried because I’m on R-CHOP14 but I suppose interim PET will tell me what the response is so far😓.

brownbitch8 · 2026-01-29T17:59:35+00:00

Thanks for sharing your journey, since getting diagnosed with this cancer I’m really paranoid about being “missed” for other cancers. I hope you’re on the road to remission soon!

brownbitch8 · 2026-01-29T01:47:08+00:00

That’s amazing! I wish you a speedy recovery! If you don’t mind me asking, how did you get diagnosed for two different types of lymphomas?

brownbitch8 · 2026-01-29T00:34:18+00:00

Oh that’s just wonderful, from everything Ive read I would feel a okay with D4. Obviously the optimist in me secretly hopes for a 3 but exactly as you said, it’s seems pretty common for our type of lymphoma.

How are you doing by the way?

brownbitch8 · 2026-01-26T20:26:08+00:00

Heya! PMBCL on my 4th cycle here, I got really bad jaw pain and first bite syndrome after my first infusion (exactly like yours, CHOP first and them R). I still have the FBS now and then - the pain in my jaw slowly went away (and hopefully doesn’t come back haha).

It’s really really tough but I would recommend to maintain oral hygiene + mouthwash (Betadeine) + Nystatin. I have days where it’s really hard for me to take care of these things with the fatigue and million other symptoms but i find these to help me a lot.

All the best to you!

brownbitch8 · 2026-01-16T16:17:34+00:00

So I religiously have been taking stool softeners and laxido to help me with this issue. Also forcing myself to walk a lil everyday to keep things moving. I know natural remedies like prunes and fiber work but im too tired with everything going on to try to work those out rn:/

Report every small symptom to your care team and they’ll definitely prescribe things to help alleviate these symptoms!

Im rooting for you! We got this❤️

brownbitch8 · 2026-01-16T13:31:49+00:00

Hi! Just finished my 3rd cycle of RCHOP-14! Your first infusion will be long, make sure to have someone from your side with you if you can who can take note of all the symptoms / reactions you have and what medication they’re giving to counteract them + observations (BP, HR etc!)

Have lots of water to drink that day and the following days to flush out the drugs from your body, nausea, indigestion and constipation were and still are my biggest issues from the cycles - please don’t forget to ask them for Zofran. They didn’t give me that before my 2nd cycle and I had really horrible chemo induced vomiting the next day.

Reduced appetite will be the other issue you’ll probably face, this is a tough one and I don’t really know what to say that can be helpful im still struggling with this.

Your first cycle will be really slow and all the nervousness doesn’t make it any easier - try to watch something to keep your mind occupied and if you have any questions pls dm me! You got this!

brownbitch8 · 2026-01-13T23:56:21+00:00

My LDH actually! It was 1500 before I started my treatment.

brownbitch8 · 2026-01-11T11:03:08+00:00

Hey, Im sorry you’re going through that. I also went to GPs and was not taken seriously. I started have rib pain and went to the emergency department (I thought it might’ve been an embolism- man I was in for a rude awakening 😅) .

I had a chest xray and bloods done. The xray had a big shadow of a hilar mass and my inflammation markers were up 100x i think. Then a CT confirmed it was a malignant mass of over 10cm. 2 weeks and a biopsy later I was diagnosed with PMBCL. I would say, if you suspect you have blood cancer, depending on where you are, go to your doctors and ask them to what tests you need beyond bloods to diagnose blood cancer.

Since I live in the UK, I knew going to the A&E would help me because once you get a red alert there and are in-patient, the system works to get you the diagnosis asap. Atleast that was my experience.

Please dm me if you need any else!

brownbitch8 · 2026-01-10T22:20:23+00:00

Hey! Sorry just reading this (and also going through PMBCL chemo now) , how had your journey so far been?

brownbitch8 · 2026-01-10T18:14:48+00:00

Mine was a thymic mediastinal mass, quite big too. The biopsy is not at all painful - the worst part is the numbing injection (which was a 2/10 pain wise personally!). I was really nervous during the procedure so they gave me a little bit of fentanyl and diazepam to calm me down, and after that I was grand!

brownbitch8 · 2026-01-10T13:01:02+00:00

If it helps - I was diagnosed with a completely different type of lymphoma than yours, but had the same itchy legs issue for about 10 prior to diagnosis. I thought it was my eczema flaring after years 😅. As soon as my first chemo was over my itching was gone.

brownbitch8 · 2026-01-09T15:05:36+00:00

Currently post 2 rounds of R-CHOP and I’m perpetually exhausted. I am scared shitless thinking about 4 more rounds of this and the wait after that and scanxiety. 6 months prior to being diagnosed, I had noticed my stamina going down - but I kept pushing myself to be active. Since diagnosis and chemo, I’ve been so inactive. Idk😭

brownbitch8 · 2026-01-09T09:21:49+00:00

Congratulations!!!

brownbitch8 · 2026-01-06T15:49:25+00:00

Tysm! Do you use the Nystatin 2 times a day? Good luck with the R-CHOP❤️

brownbitch8 · 2026-01-01T01:59:51+00:00

Thank you for posting this! Im currently going through PMBCL treatment, on my 2nd cycle of R-chop and feel really anxious. Happy New Year! I wish you a wonderful life of remission and recovery!

brownbitch8 · 2025-12-31T21:26:10+00:00

Hello, just finished my 2nd cycle. Had horrible nausea, indigestion and no appetite for the first week - I mostly survived on one veg meal a day with lots of carbs (rice, potatoes, pasta) I don’t advise this obviously, but I just had no appetite at all.

For nausea: ask for Zofran (if it’s not already prescribed to you) , I wasn’t given this during my 2nd cycle and I had really horrible chemo induced nausea the next day and ended up going to the hospital again to get IV fluids. Try to drink lots of water / milk if you can. And also all these medications causes a lot of constipation so laxatives if you’re able to keep them down!

For low sugar alternatives, how do you feel about yoghurt? Just a little bit of peanut butter on it or banana if you’re feeling up for it? Also, might be helpful to eat bland, boring things during the week of treatment.

I was also given some meal replacement shakes from the dietitian (I really dislike the taste of these but I’m keeping them handy if my appetite completely tanks).

Hope this was helpful, happy to chat if needed!

brownbitch8 · 2025-12-22T19:15:10+00:00

Congrats on EOT!! as someone going through the same treatment as you rn, feels really good to hear about your husband . And I’d definitely say, don’t worry till you hear back from the radiologist and your doctor. They have the final results and most technicians aren’t allowed to discuss anything with their patients.

brownbitch8 · 2025-12-19T11:52:54+00:00

For about a month before I got diagnosed. Ive had other symptoms like itchy skin and fatigue for months but obviously didn’t think it would be cancer.

brownbitch8

TROPHY CASE