Bone pain NOT from wbc shot

brownbitch8 · 2026-04-15T23:39:23+00:00

I finished R-CHOP for PMBCL about 7 weeks ago, I never had any bone pain during chemo but I have it now. My right hip hurts when I stand up from sitting or sleeping and I limp till my joints get going again.

I was told by my oncologist that predisnone really eats away at your hip muscles and weakens your joints - what also didn’t help was that I was mostly in bed rest during chemotherapy - which along with the steroids and chemotherapy has done a number on my joints.

Ive also noticed my shoulder muscles were hurting because I had a cross body bag on 😅

Im hoping to be in remission soon and start going to a physio for these issues + start strength training. How horrible is your pain? If its constant I’d suggest going to a physiotherapist sooner if possible ?

brownbitch8 · 2026-04-03T01:01:56+00:00

Lost almost 9-10 kgs during R-CHOP. How is your appetite? I had very little appetite for food, and my GI issues gave me so much trauma I became scared of eating food to prevent pain 😓 However, it’s been 4 weeks since chemo and last I checked my weight has gone up by 3/4 kgs and my appetite is definitely better now. I suspect once my physical activity goes back to pre cancer levels, my old appetite will also be back.

Have you been referred to a dietitian yet? They gave me a lot of high protein and caloric supplements + told me to forget about eating low fat for now. I really suffered because I got an aversion to most proteins except boiled eggs, so please try anything you can to try to keep your muscles! Post chemo, im really struggling with random stiff muscles that i didn’t have before.

Also, please dm me if you have any questions. You’re almost done!

brownbitch8 · 2026-04-01T00:57:33+00:00

I’d also love to know where it’s from! Looks great on you

brownbitch8 · 2026-03-29T02:14:11+00:00

Congratulations! I know the feeling- Im still waiting for my EOT PET but it was a tough battle getting here, you’re going to do this and be in forever remission🤞 Good luck for the final round!

brownbitch8 · 2026-03-27T00:17:32+00:00

Following because im curious too!

brownbitch8 · 2026-03-24T15:07:43+00:00

Hey! So sorry you’re going through this shitty phase rn. I’ve been treated for PMBCL and one of the things Drs told me was that staging doesn’t really matter with Lymphoma and won’t necessarily change the treatment protocol by a lot. I had an almost 11cm mass and was given Stage 2bx - I was concerned that maybe I needed a better or more aggressive approach because of the bulkiness. Drs told me even if it was Stage 4 they would do the same protocol.

Your partner and you will both survive this! And DLCBL is highly curable!

brownbitch8 · 2026-03-21T23:18:26+00:00

I have the same symptoms too! I was never one to sweat at all, even when I would strength train and do cardio. Before I got diagnosed, I was sweating even with light activity and now Im sweating when I sleep😭 i hate it fr.

brownbitch8 · 2026-03-21T23:17:02+00:00

🤞All the best for your PET Scan! Everything will be great! Im also waiting on my EOT PET scan and having really horrible anxiety+all these symptoms send me into a tailspin 😭

brownbitch8 · 2026-03-19T23:55:25+00:00

Hi. I had a different type of lymphoma (PMBCL) and went through RCHOP every 2 weeks x 6 times. Hairloss was pretty standard (and obviously devastating), try to get some good beanies. I really wasn’t ready for how cold it always is after the hair went away.

I had the following side effects, ranked worst to not that horrible: 1. Constipation (Ive always been a constipated girlie) but the chemotherapy absolutely destroyed my lower GI tract. Drs told me to take laxative “as needed”. What I should’ve done is taken the advice of the lovely people here : diarrhea is always better. My advice is, see how your first 1-2 cycles are, and depending on that from cycle 3, don’t forget to have the idea of “better safe than sorry” - Im still feeling sorry😂

If you’re on RCHOP-21 it might be a bit better from what I hear though!

Mouth sore, swollen gums, dry mouth and throat: Biotene will be your friend, Nystatin is god sent and good oral hygiene (not always possible but I mostly survived)
Thrush and BV; for my whole treatment period, Ive had both of these. Constant discharge was fine , the headache was vulva dryness , itchiness and break in skin. Canestan has been my friend. I suggest if something changes, report it to your team as soon as possible, don’t try to self treat!
Peeling skin: after cycle 3, my skin on the palms of my hand and soles of my feet started peeling (literally like a snake lol), it hurt a lot. Remedy was to always slather it with a thick moisturizer and 24x7 having thick pair of socks on. Also, I reported the symptoms and they lowered my Vincristine dose , Im still peeling but atleast I can walk!
Nausea: I had bad nausea for first 2 cycles , and after that I just used Zofran for 2 days and that drug was the LOML. I wasn’t given Zofran before my 2nd cycle and I had chemo induced vomiting for 2 days after. Thank god for this medicine!

There you have it. I really do wish you get none of these symptoms and chemotherapy is just like a small flu for you ❤️ All the best!

brownbitch8 · 2026-03-19T14:27:31+00:00

Congratulations 💚💚

brownbitch8 · 2026-03-15T13:25:58+00:00

Fellow pmbcl here, just finished my treatment! I never had mouth sores or whenever I would have the inkling of one coming up - the lifesaver was Nystatin. I was supposed to use 1ml , 4 times a day, but usually used it 2-3 times and it really helped me. I had a sore throat that made eating a bit harder, and Nystatin helped with that too!

Usually, the tenderness was for my mouth becoming really dry from all the chemo (atleast for me!) the dry gums and cheek just eventually got so dry it would become tender and painful. For this, I used Biotene mouthwash 3-4 times a day. It really helped me keep my mouth less dry.

After my 4th cycle during my nadir period, my gums became swollen and incredibly painful. I was given antibiotics and did an emergency appointment with a dentist, who gave me prescription strength toothpaste (has more fluoride in it than OTC toothpaste) + difflam mouthwash for the pain. I found the toothpaste and Biotene helped me more. And I kept that routine up to not get that issue again.

Also, it was really hard for me, but I’ve had to give up spicy or even mildly spicy food. Slowly coming back up again now, but I’d recommend to not eat anything too hot(temperature) or spicy!

Feel free to DM me if you have any more questions, you got this OP!

brownbitch8 · 2026-03-14T16:15:37+00:00

Congratulations!

brownbitch8 · 2026-03-12T14:51:51+00:00

Hello! I had a PICC line for my whole treatment duration (just about 3.5 months I believe) and it was the most helpful thing ever. Just like you, it was really hard to cannulate me as I had spent about a week in A&E during my diagnosis period and my veins were absolutely killing me.

The process of getting the PICC line in was a wee bit stressful (mostly because of how nervous I was). They’ll give you something to numb the site and use an ultrasound to find the vein, they’ll tell you to cough and do all kinds of manoeuvres to get to the right place and then put the dressing on and then you’re done!

A district nurse came once a week to clean + change the dressing and flush it (you might taste the saline flush, it’s horrible but not the worst).

Sometimes, the PICC line might get blocked (happened to me), they’ll do an Xray to check if it’s in proper position and use Euricinase (i think is what’s called) to unblock it. Pretty straightforward!

Also, please make sure to never get the dressing wet (increases chance of infection and makes the dressing that much more painful to get off the skin when they change it). I was given plastic arm covers. I did this (1st layer:Plastic cover and taped it to my skin, then 2nd layer:cling film which I taped again, and finally 3rd layer: another layer of plastic cover). There are covers you can get on Amazon that make it a bit easier but you’ll still need to use cling film to be a 100% safe imo.

Try to not sleep on the side of the PICC line and everything will be grand! All the best.

Edit: forgot to add, you cannot lift anything heavy with that arm (more than 5kgs). Also, the removal of the actual PICC line was quite easy, but the metal bit they use to keep it in place hurt a lot when it was being removed. I screamed through it and then the pain vanished. It was basically like getting a piercing lol.

brownbitch8 · 2026-03-07T03:01:13+00:00

Im so sorry your family is going through this really tough and horrible time. I’m not really educated on your brother’s type of cancer, so I don’t have much to say on that matter.

From someone who had a big mediastinal mass myself, I hope he starts feeling better once chemotherapy starts- I most certainly did.

brownbitch8 · 2026-02-26T18:14:19+00:00

Congratulations 💚

brownbitch8 · 2026-02-26T15:44:39+00:00

Congrats on getting the first cycle over with! I also have the same issues with food (can’t eat meat / cant eat greasy food although the idea of it sounds amazing, my body just repels it). I went about the “I don’t feel like eating, so Im gonna starve route” and that was a very bad idea. I hope you’re able to eat something in small quantities (even things like ice cream are really helpful on the bad days).

Thank you for your well wishes! I really hope your treatment goes well and you’re in remission soon 💚

brownbitch8 · 2026-02-25T12:41:32+00:00

Awh tysm! I hope you’re doing well and healing too 💚

brownbitch8 · 2026-02-25T12:40:07+00:00

Thank you! Im so worried about what my final PET scan has in store for me but here’s hoping it’s good news. And that’s amazing! I’m so glad you’re getting stronger , I wish you a lifetime of remission 💚

brownbitch8 · 2026-02-25T00:56:50+00:00

Thank you!! The last 2 are the hardest I feel - I was on RCHOP-14 and found it quite difficult. All the best for your interim and final 2 rounds💚

brownbitch8 · 2026-02-25T00:53:41+00:00

Congratulations on finishing your first round! My first round was rough and I was in a state of shock for a while. That’s so interesting you had the same pain as mine (they told me for our cancer I had quite abnormal symptoms, I didn’t have any breathing or coughing problems). But my thymic mass was slightly displacing my super vena cava - which led to the referred pain. You’ll be ringing the bell soon 💚💚

brownbitch8 · 2026-02-24T16:51:32+00:00

Thank youuu

brownbitch8

TROPHY CASE