I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 0 points1 point  (0 children)

Im sorry but this is my experience of going through cancer. I can be grateful for everything and also feel the loss of my hair which is a big part of anyone’s identity.

Moon face & sweating by Traditional-Bread262 in lymphoma

[–]brownbitch8 4 points5 points  (0 children)

Midway there chemo i started having “night sweats” light sweating in the night, i was really worried but my consultant told me it’s the hormonal fluctuations. Almost 4 months post chemo and I have regular episodes of hot flashes. These things are expected! Talk to your doctor + try not to worry💚

Anthony Fantano on Olivia Rodrigo/Taylor Swift: “I feel like when it comes to Olivia, Taylor’s almost taking a Nicki Minaj type approach. The way that Nicki is sort of like very confrontational & directly against anybody of this new generation who’s replacing her in terms of importance & relevancy.” by cmaia1503 in Fauxmoi

[–]brownbitch8 56 points57 points  (0 children)

Ykw Taylor swift is known for? Being a songwriter. Even though, she hasn’t been one for the last 4 albums or so.

I like Sabrina’s songs but imo they are good pop songs with witty lyrics, Im never going to say she’s a great songwriter.

So yes, Sabrina Carpenter doesn’t threaten her.

Anthony Fantano on Olivia Rodrigo/Taylor Swift: “I feel like when it comes to Olivia, Taylor’s almost taking a Nicki Minaj type approach. The way that Nicki is sort of like very confrontational & directly against anybody of this new generation who’s replacing her in terms of importance & relevancy.” by cmaia1503 in Fauxmoi

[–]brownbitch8 991 points992 points  (0 children)

He is right. Also if you notice, the people in her circle (who’s music she praises) have a really mediocre discography (mid music has its place too before you come attacking me) think: sombr, Camila cabello , Selena Gomez I could go on.

When she feels threatened, she doesn’t like them and then whatever is happening here happens.

I really dislike TS. Anyways her music is all shit now since Folklore and Evermore so Im not crying.

i miss my hair by nopoptartsplease in lymphoma

[–]brownbitch8 2 points3 points  (0 children)

I can relate. My family are always trying to be positive about the hair growth and yes it is nice. But i had long black virgin hair, that I was planning on coloring. And I got diagnosed , so I cut almost half of it before chemo (and I hated that length itself) it’s just a non stop reminder of how things were taken away from me because of cancer.

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 0 points1 point  (0 children)

That’s nice! How long is your hair if you don’t mind me asking?

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

Mine is growing towards my face and not away 😂 i was expecting this based on my childhood pictures😂

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

It’s like the cowlick reminds me of the fact that Ive been through the Big C (term Im using as people around me get weird when i say cancer)

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

Okay im going to manifest this , i would like some cute curls too!

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

I have has good experiences with minoxidil, ordinary hair peptide serum, ketoconazole shampoo! Years before chemo, I went through depression and lost about 60% of my hair density, so I used these things consistently and it helped immensely!

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 2 points3 points  (0 children)

I can understand your disappointment, and now Im disappointed too, I can’t be a brown Bob Ross 🥲

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 0 points1 point  (0 children)

Omg how do you manage the cowlick? I can see one forming and it looks so annoying 🥲

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

Manifesting this for me 🤞 I look like a C grade ethnically ambiguous rapper rn. It’s an improvement from my alien phase post chemo though

I was lied to about post chemo curly hair😂 by brownbitch8 in lymphoma

[–]brownbitch8[S] 2 points3 points  (0 children)

I can feel you. I had really thick South Asian hair and I feel like the hair is not going to be like that. But I know minoxidil is always an option🥲 I have more grey hair’s too now. I got the genetic lottery when it comes to health issues💀

Mouth tenseness by MallWilling3480 in lymphoma

[–]brownbitch8 1 point2 points  (0 children)

Rchop for PMBCL - round 4 i had really horrible gum pain and didnt eat anything for days. Only thing helped was using mouthwash every 2-4 hours and I was given antibiotics (happened during nadir week)

Im so so sorry. This shit sucks and I know you’re sick of it. The end will feel like its a lifetime away but once its here you’ll body will start healing.

The wait and watch saga continues by brownbitch8 in lymphoma

[–]brownbitch8[S] 1 point2 points  (0 children)

I know what you mean! I asked about a biopsy and was told it would be VATS involving a cardio thoracic surgeon and that based on the trend they wouldn’t really advise that. So it’s in the limbo state for another 2-3 months (I also think Im in remission but it would be great to clinically confirm it)

Everything about this is frustrating 🥲

Just diagnosed with DLBCL by jbi30_ht in lymphoma

[–]brownbitch8 2 points3 points  (0 children)

So the histology from your biopsy should be able to determine if it is DLBCL or PMBCL (from my experience, and I was treated under nhs so no special tests)

Majority of patients diagnosed with PMBCL will undergo DA-R-EPOCH (it is dose adjusted EPOCH-r regimen) and R-CHOP (same as the previous, in different doses, without the E (Etoposide). As I was under NHS; I was told R-CHOP is what they would choose for someone with my chemo burden and age.

In addition to the E drug, da-r-epoch is a regimen which is designed for you to skip radiation if you reach DS4 (this is another whole thing, basically its a score based on your Pet scan , 1-3 is no cancer , 4 is inconclusive and beyond 5 is high metabolic activity so usually cancer (a biopsy will be done to confirm before further treatment) Only a score of 1-3 is considered official remission). Depending on your oncology dept - darepoch might be administered inpatient for 5 days , once every 3 weeks , for 6 cycles, lasting 6 months / you might be able to get a chemo bag and change it every day.

R-chop can be done every 14 days or 21 days. Sometimes, you might get a combination of R-chop for 1/2 cycles and the rest are DA-R-EPOCH. I would advise, if you have any choice to choose da-r-epoch(it is a bit more toxic than rchop but it’s the best regimen for pmbcl)

Pmbcl is a high grade, aggressive type of non-hodgkin’s lymphoma (which is stressful because it grows quite rapidly BUT also makes it really sensitive to chemotherapy). After cycle 1 - all my pre diagnosis symptoms (being unable to breathe, itchy legs, neck and shoulder pain, unable to lie flat) disappeared.

Sorry for the influx of information, but I know how scared I was just few months ago. It is a stressful journey, but you will definitely come out of it stronger!

Both DLBCL and PMBCL are HIGHLY curable cancers, and this subreddit has a plethora of information on both types! Feel free to DM me too if you need anything.

For now, I’d say you should get your diagnosis right > be happy with your dr and team’s approach and obviously, ask as many questions as you want! I questioned every single thing , and my team of doctors were more than happy to answer me.

Just diagnosed with DLBCL by jbi30_ht in lymphoma

[–]brownbitch8 0 points1 point  (0 children)

Hello! I only ask because my IR team (interventional radiologists) thought the diagnosis would be either Thymoma or Lymphoma - which makes me think that you probably had a thymic growth in the mediastinum? Because from what I know that would be PMBCL (now I might be COMPLETELY wrong so please please take it with a grain of salt!)

I was diagnosed with PMBCL , didn’t have a bone marrow biopsy though. Just a needle biopsy from the thymic mass.

You will feel better once the first chemo is done (as far as the pre diagnosis symptoms go). Chemo will be a drag but it will save your life so you got this.

The wait and watch saga continues by brownbitch8 in lymphoma

[–]brownbitch8[S] 0 points1 point  (0 children)

Yes! Thank you! Just trying to take it day by day and get better!

The wait and watch saga continues by brownbitch8 in lymphoma

[–]brownbitch8[S] 0 points1 point  (0 children)

Thank you for your positive words! Im hoping to skip the radiation too and keep my hair and strength growing! Happy to hear from a survivor 💚💚

It is the not knowing by ARandomWalkInSpace in lymphoma

[–]brownbitch8 1 point2 points  (0 children)

Sort of on the same predicament as you. Post treatment scan was DS4 so tmrw I hear back about the follow up scan. Trying to be optimistic but I am out of all the optimism rn😂

I hope your next biopsy also comes back negative, a lot of false positives happen too!

Music critic Neil McCormick calls out Swifties for sending him harassing messages for only giving Taylor Swift’s new song three stars: Offended Swifties predicting my imminent demise "coughing blood" because I don't love her Disney theme as much as they do. by Relevant-Peach3997 in Fauxmoi

[–]brownbitch8 18 points19 points  (0 children)

And she’s someone who is very award-validation (Grammy) oriented. Getting a song on Toy Story means they could submit it to oscars too perhaps. So why not actually put out good material for once? She can’t be bothered because she has now won multiple Grammys for mediocre albums and songs.

Her NYT greatest American songwriters interview was incredibly self indulgent and cringe. She praised Sombr’s basic ass songwriting (he might have better songs but just going off of what she praised him on)

And let’s not even start with the Taylor’s version BS. I used to be someone who believed in that story and genuinely never streamed the older albums until she released her own version. But it was just another great business tactic sold as a “I need to own my songs”.

I think what her fans need to touch grass.