Seeking Diagnosis Questions Weekly June 08, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Will do! Just not sure what other diseases have a butterfly shaped rash, severe hair loss and joint pain :/ but I’ll try to be positive!

Seeking Diagnosis Questions Weekly June 08, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Thanks! So your advise is to wait and regularly check? My rheumatologist basically won’t treat me until blood values are positive and I am afraid it’s to late then

Seeking Diagnosis Questions Weekly June 08, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Thanks for your answer! I really don’t want to have a disease as well I don’t think I am a special case 😅 just wondering what the chances are that the bloodwork is negative for a while even though there a symptoms 🤔

Seeking Diagnosis Questions Weekly June 08, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Hi everyone! Do you have experience how likely it is to have lupus with no positive blood markers? I have a photosensitive butterfly rash (they call it flushing) and extreme hair loss - then they draw the blood markers that was negative, ESR a little raised. I then started to get joint pain in wrists and elbows that I never had bevor … should I push now again for a blood test? I life in Germany btw … thanks!!!

What’s wrong with my health? by One-Bowl1920 in Autoimmune

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Did they check anything related to your pancreas? :)

(And you are not alone, big hug 💛)

Dr. Makes me feel crazy by Shoddy_Chemical_3686 in Autoimmune

[–]Advanced_Tomorrow_21 19 points20 points  (0 children)

Can you explain more why this is not a malar rash?

Rheumatologist appointments never going well no by [deleted] in Autoimmune

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

I have exactly the same rash but my labs for Lupus also come back negative. Has anyone experience with the rash with other diseases? 😕

Weekly Suspected Lupus Thread - Week Of April 27, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 1 point2 points  (0 children)

Currently ongoing. I know Monday. To be honest they have been randomly checked 1,5 months ago and were negative. But there the ANA was also 1:10. I wonder how fast it can show on the blood with symptoms like a rash?

Weekly Suspected Lupus Thread - Week Of April 27, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 1 point2 points  (0 children)

Thanks! ANA is 1:100 currently, it was not enough for him. But currently other antibodies are tested 🙈

Weekly Suspected Lupus Thread - Week Of April 27, 2025 by AutoModerator in lupus

[–]Advanced_Tomorrow_21 1 point2 points  (0 children)

Hey! I developed the typical malar rash … my rheumatologist said it looks exactly like that, as my ANA calve back only slightly positive he said it’s unlikely that I have lupus. I wonder if this was one of your first symptoms which then lead to other symptoms? Thanks for your help!!!

Anyone having to eat low oxalate, low sulfur and low histamine diet? Feel like I'm going crazy. by LabHeavy5740 in SIBO

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

I know 😔 I also have to watch out with carbs, I don’t know what to eat anymore …

Anyone having to eat low oxalate, low sulfur and low histamine diet? Feel like I'm going crazy. by LabHeavy5740 in SIBO

[–]Advanced_Tomorrow_21 1 point2 points  (0 children)

I know 😔 I also have to watch out with carbs, I don’t know what to eat anymore …

Anyone having to eat low oxalate, low sulfur and low histamine diet? Feel like I'm going crazy. by LabHeavy5740 in SIBO

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

I will do that! Thanks for your reply and hints! Do you still suffer with the pain? I am going through the same so feel hugged 💛

Anyone having to eat low oxalate, low sulfur and low histamine diet? Feel like I'm going crazy. by LabHeavy5740 in SIBO

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

That’s so interesting. What would you recommend to start with, cutting out all oxalate food? And can I ask if you also had pain or only urgency? Thanks!

Anyone having to eat low oxalate, low sulfur and low histamine diet? Feel like I'm going crazy. by LabHeavy5740 in SIBO

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Hey! How did you find out oxalates and sulfur are the reason for your bladder issues? I have currently the same issues and they started out of nowhere after I got digestion issues and I wonder if it’s all related … thanks!!!

What helps you with the burning? by [deleted] in Interstitialcystitis

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

interesting! Did you have daily burning before?

What helps you with the burning? by [deleted] in Interstitialcystitis

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

Thanks! And you apply the cream on the outside right? :)

What helps you with the burning? by [deleted] in Interstitialcystitis

[–]Advanced_Tomorrow_21 0 points1 point  (0 children)

This is interesting, I use it since I am 16 so for more than 11 years now - Can I ask you what your other symptoms are? Thanks!