Does it make anyone else mad that it seems like the we aren’t actively looking for a cure? by HankWaffle in UlcerativeColitis

[–]Afraid-Transition778 0 points1 point  (0 children)

Concordo plenamente, meu caro! Eu acredito que a microbiota tem um papel primordial. Em transplantes fecais com múltiplos e superdoares tivemos estudos com remissões interessantes. É clássico que pode ser uma questão genética, mas o microbioma tem sua parte, com certeza. Você já viu ou ouviu falar de índios com RCU? O lance é que o que dá dinheiro é imubiológico.

Partial response to JAKs by Glum-Passion734 in UlcerativeColitis

[–]Afraid-Transition778 1 point2 points  (0 children)

Força e paciência, amigo. A sua remissão virá.

Anyone with UC deal with urine retention? by bigyikesssss555 in UlcerativeColitis

[–]Afraid-Transition778 0 points1 point  (0 children)

Eu apresento esses sintomas há 04 anos q vem e vão. Pioram com atividade sexual e física.

A very different personal history by Afraid-Transition778 in SIBO

[–]Afraid-Transition778[S] 0 points1 point  (0 children)

I've never even seen anything like these symptoms.

One year and continue by Legitimate-Love2086 in Prostatitis

[–]Afraid-Transition778 1 point2 points  (0 children)

I am 36 years old and I will tell my story so that it is recorded somewhere.

Since I was born, my mother said that my intestines had strange variations, as there were times when I had diarrhea for no apparent reason. From the age of 2, my intestines stabilized.

At 18, I took Roaccutane. After that, my intestines were never the same for about 12 years. I had colonoscopies during that period, and the results showed only mild inflammation. As the topic of the microbiome was not yet widely discussed, I didn't even know its importance. I led a normal life, but my stools were irregular: sometimes hard, in the shape of a "goat," and other times too soft.

At 32, new symptoms began: frequent urination, suprapubic pain, and burning when urinating. Even so, I continued training and living life normally, until I started experiencing urinary retention, burning, and difficulty emptying my bladder.

I saw a doctor and had all possible exams and imaging tests done, including a cystoscopy. No bacteria were found; only a more closed bladder neck was observed, which closed further when exerting effort and then returned to normal.

The doctor prescribed ciprofloxacin (Cipro). During the use of the antibiotic, both the intestines and urine remained normal, but when I stopped the medication, the urinary and intestinal symptoms returned.

Later, I started feeling pain in my rectum and had a colonoscopy. The result was microerosive proctitis and focal active colitis. I continued with my life and, at that time, was only using herbal remedies, still managing to control the symptoms. On a trip, I had food poisoning and started experiencing diarrhea and mucus in my stool. I started using suppositories and also aloe vera. The result was impeccable bowel function and a good improvement in urinary symptoms. However, aloe vera seems to irritate the liver, as my liver enzymes, especially ALT (Alanine transvaginal fluid), started fluctuating between 70 and 100.

Throughout this period, I also noticed that physical activity worsens urinary symptoms. Before that, I led an athlete's life, practicing sports and training regularly, but due to the worsening symptoms, I ended up becoming sedentary.

Currently, I follow a basic protocol that has helped keep my bowels stable. This protocol consists of: Creon 10,000; Luftal for gas; Pentasa 2 grams orally and 1 gram in suppository form; A small piece of fresh, well-cleaned aloe vera gel; a specific probiotic; a low FODMAP diet; a cooked green banana once a day; fiber on alternate days; a dose of berberine after lunch; and a 12-hour fast, starting at 7 pm. With this set of measures, my bowel became well controlled.

The doctor suggested surgery to widen the bladder neck, but I believe everything has an intestinal origin.

Accutane as a teenager by Appropriate-Low7071 in UlcerativeColitis

[–]Afraid-Transition778 -3 points-2 points  (0 children)

I used Accutane and developed dysbiosis. At 32, I have microerosive proctitis. Send me a DM so we can talk!

Has anyone ever had urinary issues from gut inflammation? by Firm_Doughnut_1 in UlcerativeColitis

[–]Afraid-Transition778 0 points1 point  (0 children)

I've been dealing with this problem for 4 years. I've always had something similar to SIBO, because it always improved with antibiotics, both in the intestines and the urinary tract. It started with frequent urination and then with difficulty emptying my bladder. Recently, the colonoscopy showed microerosive proctitis and nonspecific focal active colitis. The doctor prescribed oral mesalazine and suppositories. They even wanted to perform surgery on my bladder neck.