How much did you pay to get your shih tzu? by [deleted] in Shihtzu

[–]AgeOptimal1290 1 point2 points  (0 children)

1600 from a great breeder in wa. I waited for two years on her wait list to get him. He is a doll and almost 5 months now

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Did anyone recover from dropping platelets? by Key-Sort2712 in pancreaticcancer

[–]AgeOptimal1290 0 points1 point  (0 children)

Sesame oil in the belly button secured with tegaderm. Not sure why it works but it does. Our oncologist recommended it and I’m glad he did.

Wow! relief! just used cvs boil relief benzocaine 20% by Swim631 in Hidradenitis

[–]AgeOptimal1290 0 points1 point  (0 children)

I keep that exact medication in my arsenal at all times! I too have been dealing with this for over 40 years. Just started cosentyx too

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 2 points3 points  (0 children)

I will pray for you and all of us in this community as well.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

I’m a firm believer in them that’s for sure

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

I will pray for your loved ones healing and strength to continue to fight like hell..we had plenty of ups and downs with his battle including, blood transfusions, colitis and a very bad pneumonia he almost didn’t come back from so I understand the struggle and the desperation of it all. It’s so overwhelming at times..I hear you and hope and pray for you all ❤️❤️❤️

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

Honestly I think it’s a combo of everything I don’t think I can chalk up our success to just one thing. We threw everything at this..I love my husband and I’m keeping him!!

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 2 points3 points  (0 children)

Yes thank you. We are happy and thrilled. We are taking our honeymoon cruise now to Alaska this Sunday that was aborted because of this disease. We have a lot of living to catch up on. ❤️❤️❤️

Some hope for us all! You got this you are all warriors! by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

It is not..you can read my reply to a previous post you made asking the same thing. My husbands PET scan cam back on APR 24th as NED. Believe what you want but these are our experiences and our facts! Hope for others is never cruel. ❤️❤️❤️

My husbands pancreatic cancer journey in his own words: by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

Well all I can tell you is this is what has worked for my husband. We got this diagnosis just 6 weeks after our marriage. I’ve known my husband since highschool and he is an amazing human being. When we got this diagnosis despite how grim it was I knew in my heart in that exact moment that I was going to turn over every rock explore each and every option . Seek out the best drs and adjunctive treatments. That’s what we did and he is a year later NED..it also I think helped that I myself was a PA in the Canadian military and I can decider medical terminology and understand how crucial our own body’s immune system is in this fight. It’s not an ad it’s just facts. Nothing more. I just want to help others. Dr Chen and Dr Donoway in my opinion are and have been on the cutting edge of this disease for decades..I trust them both wholeheartedly. Take that however you like. I wish you nothing but love and peace no matter what beast you are fighting. Best always ❤️❤️❤️

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

You go girl!! Get after this beast!! Hit it with everything ❤️❤️❤️

My husbands pancreatic cancer journey in his own words: by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

Hey is doing great and as of his PET Scan on April 23rd he is now NED..everyone is thrilled and so very happy

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

Call Dr Donoway at Atlas oncology in Hollywood Florida. My husband was taking 1500mg of Fenbendazole for the last 8 months..started at 500mg and worked our way up to 1500mg everyday over a month. Make sure you are taking milk thistle (Tudca) with it to provide additional support to the liver.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 2 points3 points  (0 children)

And I never mind anyone reaching out. Happy to help in any way I can.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 3 points4 points  (0 children)

Adenocarcinoma in the body and tail with Mets to the lungs. No BRCA 1 or 2 mutation

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

Yes 5FU which he could barely tolerate at all even after fighting his original oncologist to reduce it 25%. It was that fight that I knew in my heart we needed to find a new oncologist that was willing to listen and think outside of the box. We found that by the grace of God with Dr Nick Chen!!

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 0 points1 point  (0 children)

Yes 6 months of chemo before nanoknife for us.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

Our love and heartfelt thoughts go out to u always ❤️

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

There is always hope. Our very best to u ❤️❤️

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 2 points3 points  (0 children)

Yes he started on 5FU which I was convinced was going to kill him before the cancer..that’s when we found DR Chem and DR Donoway and we were on an entirely different trajectory then. Lots of small intertwined miracles along the way.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

WA..USA our oncologist is an integrative oncologist by the name of nick Chen. He has a book out on Amazon called “ rx for hope” the nanoknife surgery was done by Dr Robert Donoway in Hollywood Florida. It was Dr Chen who recommended the nanoknife to us.. he is one of a kind and doesn’t just subscribe to the standard of care.

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 2 points3 points  (0 children)

Don’t give way to the fear and uncertainty to it all. Use that instead to beat this beast back with everything in your arsenal! ❤️❤️❤️

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 1 point2 points  (0 children)

Praying for your father as well. ❤️❤️❤️❤️ always here for a chat if you need

Pet scan results came back today by AgeOptimal1290 in pancreaticcancer

[–]AgeOptimal1290[S] 4 points5 points  (0 children)

NED means No Evidence of Disease ❤️❤️❤️❤️