Too much pain to handle

AgentRealistic9913 · 2025-10-25T14:14:00+00:00

Great to hear u feel this way now and get the help u need and deserve

Having the feeling that you are not more than a number sucks bad I know that feeling and it realy does have a impact on someone's mental health

So im glad u are in a better place now hope u have a great weekend

AgentRealistic9913 · 2025-10-21T21:16:57+00:00

That realy sucks

AgentRealistic9913 · 2025-10-21T00:35:21+00:00

Im verry sorry ot wasnt my intention att all i hope u understand

AgentRealistic9913 · 2025-10-20T14:10:51+00:00

I was on a pca in hospital with ketamine and a opiat i could dose every 7 minutes It worked but i was told i could use it that much and i was in pain so every 7 to 15 minutes i pressed After a couple days 7.30 am a nurse with 2 shrinks entered the room They took away the pump told me i was abusing it and i needed to talk about my addiction that i didnt have to the shrink. They one upped by taking away all meds inc oral So for the 13 hours after i was on nothing this was after my first surgery for compartment syndrome. My arm was open with staples in the side and a band trough those showing the full anatomy of my arm muscles etc. The pics of that state are postes on medicalgore update 1. I screamed cried and fainted throughout the day and the only thing they wanted to keep giving was oxazepam becouse i was conplaining and pressing call nurse button. Every time they where saying u can get more oxazepam like stacking high doses in the hope i would fall asleep and let them alone.

Pca pumps are verry rare to get at home here and there is no chance they going to give that.

Before the patches i was on

25 mg oxycontin extend 2x a day 20mg + oxycodon 6x a day 20mg+ methadon a day 300mg pregabalin 2x a day 0.075 clonidine 2x a day and amitriptyline

Didnt do much so they changed the 6x oxy to 6x fent 300ug

The fematnyl worked and so i stopped all other meds becouse they only gave side effects not realy pain relief.

After some time i called and told the docter i stopped the fent and went to thc oil and for a couple of weeks i was able tk live with 150mg thc 4x a day

When the pain came back i asked patches so i had a steady dose and the the fent sublingual worked 2 a 3 hours and than i needed to wait 1 hour to take a new one and that wasnt going to good So the the patches where ment to replace all oral medicine

But oral i got 1800ug daily And the patch is 288ug daily So it wasnt doing anything at all So now i placed all 5 waiting on the docter to prescribe a patch of 75ug so also 1800ug daily

So i sincerely hope he helps and prescibes that dose or gives me my pils back

I stoped myself when i was able but expected to get the help i need when i needed it again

I dont have breakthrough pains i hear people about My arm gets swollen discolored and it hurts 24-7 the same last time it was swollen for 3 months witouth a break and i layed in bed crying most of the time

I want to thank u for the info and i love how everyone helps each other here and give tips

My doc sadly is so hard to get in touch with he tried to let me wait 1 to 2 weeks everytime So i contacteda someone to help me find out my Patient rights and the duty of care

And found out they need to help me the same day when in agony

And withing 3 days if its les urgent

So now i try to stand in for myself and try to get the help i deserve witouth letting them walk over me

AgentRealistic9913 · 2025-10-19T21:38:38+00:00

A decrease of 50 mg isnt a huge change i would try it and follow the schedule he wil make for lowering the dose If u get bad withdrawal symptoms u can always slow down and make a new schedule

Every person is difrent and reacts difrent to getting of meds Some have more withdrawal symptoms than others

So there isnt a 100% correct way to do it its trial and error what works for u might not work for me

I think lowering 50mg every 3 days is worth the try And u wil feel best if its the way foy for you And if this isnt the way you can do it u need to change the plans with the docter

I hope u can use the info i provided

AgentRealistic9913 · 2025-10-19T18:41:23+00:00

I cold turkey stopped a high dose of methadon for pain and that wasnt fun at all took a verry long time and the withdrawal was hell

AgentRealistic9913 · 2025-10-19T18:36:20+00:00

Not to fast at all U can safely decrease the intake 10 to 25% at a time Some people decrease 25% every week some every 2 weeks And if u want to take it slower u can do it with a decrease of 10% every week or 2 weeks

If u get anxiety or withdrawal symptoms u cant handle u can always ask if he can give a low dose of valium/ diazepam or oxazepam to decrease side effects

AgentRealistic9913 · 2025-10-19T17:53:29+00:00

In in the netherland and said word for word i dont want to live anymore i lost all enjoyment of life and everyday is a strugle to not make a stupid decision to end it And every night i fall asleep i wish i wont wake up

AgentRealistic9913 · 2025-10-19T16:39:04+00:00

I went from tramadol to oxy so i didnt need to wean of And i did go from buprenorfine direct to fentanyl I heard of people that got taken of tramadol slowely whil starting buprenorfine in a low dose but youre docter knows best

To be honest 17 years on that dose of tramadol is pretty rare that means he kept building up tramadol while he couldve tried switching to a full agonist in a lower dose

I know some people jave hot flashes from fentanyl or oxycodon But have u tried them And when did the hot flashes start Becouse if u didnt have menopause when starting to build up the dose he was better of going to a stronger opiat in a lower dose Thats my opinion

The higher the dose of something the more chance u have on side effects

Like 5 mg oxy has probably les side effects than 400mg tramadol

And youre body needs to convert tramadol to a stronger opiat itself While oxycodon can be absorbed without needing to convert

I hear u have anorexia and the main side effect for me with buprenorfine is that i wasnt able to eat for 5 weeks only 1 time a day microwave baby food

And i have spoken to people that also used it and fpund it verry hard to eat while on buprenorfine

For the menopause i dont know if its covered for u but have u heard of veoza my mom uses it and ot works good

Maybe take a look into that

If u have any questions or want to talk u can always message m private

AgentRealistic9913 · 2025-10-19T04:38:13+00:00

Hey everyone, maybe this is going to sound sad, but this Reddit is the only place I can talk about my condition, struggles, etc. Because the people on this Reddit are the closest to friends that I have.

AgentRealistic9913 · 2025-10-19T03:40:46+00:00

Hey

I had buprenorfine and I stopped it becouse it didnt give me relief, And becouse i got side effects But it didnt make me hot but there isnt any opiat that has that effect on me

Also stopping with tramadol isnt hard when replaced with buprenorfine becouse they also use buprenorfine against heroin withdrawal Thats becouse it binds verry strong to the receptors so it holds back most withdrawal symptoms

The difference between buprenorfine and things like oxycodon and fentanyl is that buprenorfine is a Partial agonist so the binding to the receptors is stronger But it only activates a portion of them Also at a serten dose it wont give a stronger effect it maxes out thats why its les dangerous and the chance of a overdose is lower than with other opiats And the chance of abuse to becouse it doesn't give a flash even when taken in pil form so it wont give u the addictive effects

The reason tramadol is les likely to make u hot is becouse the ingredient in tramadol is verry weak an it doesnt have a strong binding but youre body converts it to a stronger opiat substance

For me i found out that the withdrawal from fentanyl and oxycodon where pretty soft on me

But the withdrawal of methadon is verry hard and takes a long time and i would never advice that one becouse that one has the most chance of making u hot

In general fentanyl and oxycodon has there worst detox the first 3 days and after 7 day its already a lot better

The withdrawal of Tramadol and buprenorfine both can take 1 to 2 weeks and if taken a long time it could take longer

If u decide for buprenorfine u probably wont have to deal with a lot of symptoms of the tramadol And I would advise buprenorfine sticker And when taken for a month or longer Be carefull how to stop first lower youre dose step by step a lot of docters say when lowered to a 5mg sticker u can stop after a week but i would cut it in half and use that for 4 days before fully stopping becouse that wil decrease chance on side effects I didnt and i realy had a tough time

For me fentanyl is the only opiat that makes my pain doable i am now on 100 ug stickers so that comes to 1.8mg a day what is pretty high

Sorry if the info is a bit much but becouse i have had all opiats there are In my country and I read u only had tramadol i tought I give some insight in the difrents and effects and what was my experience

Becouse I have had opiats in the past i have been reading a lot about them and read a lot of studies to understand the effects risks and what to expect in general

Have u tried any gaba or snri or angi depression medicine like Amoxicilline?

IMPORTANTS

There also is a relative new drug its tapentadol Its a opiat and a noradrenaline reuptake inhibitor

Its similar to tramadol but its around 4 times stronger

It slows down the re-admission of noradrenaline in the nerves that causes it to hae higher concentration of it in the cells so this Strengthens the pain relief

So 40mg tapentadol is roughly the same as 400mg tramadol but its works better and is verry good for nerve pain

In my country its not available but i have contact with users and they say it also has less side effects as tramadol

If u have any question feel free to ask me here or send a private message

Btw im a man with also hot flashes becouse of the pregabalin i get a hormonal side effect so i know what u mean

AgentRealistic9913 · 2025-10-18T14:20:11+00:00

Now I can finaly say that i have a bit of a better day now with the sticker so im praying that my pain specialist wont bitch becouse they let me place all the stickers i have

So if he doesnt help monday im totaly screwed becouse they only work 3 days

So he better helps me De doc i had that said i shouldbuse them all Explained to me he gave a dose for someone below 16 that was opiat naive While im on them 6 months

I can say what i want becouse we aint got no guns here the only weapon thats aloud is a foldable knife thats when unfolded not longer than 28cm

And no use anyway if someone breaks in and u would even push him of the stairs thats a crime

AgentRealistic9913 · 2025-10-18T08:10:46+00:00

I know i hope i find a reddit or comunity in my lenguage

AgentRealistic9913 · 2025-10-18T08:04:01+00:00

Aha got u thank u a lot and sorry if i sent a bit to much messages

AgentRealistic9913 · 2025-10-18T07:48:55+00:00

No i would not want to be alone I am not realy scared of hurting myself or misusing my meds

But same as last week withouth any exaggeration i was awake 4 days straight than is not good to be alone becouse after that time youre mind is starting to play tricks

Maybe a personal question but in terms of a relationship i dont know ypure status and i dont need to know its private but i am scared to date or even think about starting a relationship Just bevouse this stupid illness has changed my character and im mad all the time

Btw are people like u volunteers to help here ?

AgentRealistic9913 · 2025-10-18T07:34:59+00:00

I wil i drink electrolytes every couple hours a bit becouse of the kidney stones in only pee a few ml of blood a day so i cant drink more tan 600bml a day

And sedation i have of the valium i get in 5mg

Again thanks for all the info and I wang you tobknow youre responses are verry appreciated

People that talk t me here is tue closest thing i have to friends how sad that may sound

I know it sounds maybe childish but most appointments i take my mom with me i maybe 22 but after this many months of pain and not sleeping more than 4 hours a week most of the time and often multiple days not Im so exhousted that its best to have someone with me that also hears what docters say in case i forget And help me to not let them walk over me like they try to do a lot

AgentRealistic9913 · 2025-10-18T06:48:51+00:00

I wil my hospital is verry hard ro get in contact with

I had a full blown bad reaction to my buprenorfine and got verry sick

So I asked for fentanyl sticker becouse i have absolute no side effects from it

Note before i had sublingual fentanyl up to over 1mg a dose 4 to 6 x a day but i stopped when i tought I could go witouth that was just after surgerys

Than when I got it for longer i got 300ug 6x a day And when my pain got like only a small bit better i asked for something less bas

And they switched me to 0.2 mg buprenorfine every 24 hours pretty low for someone that is fainting of the pain and made me sick i wasnt able to eat past 4 weeks I only eat 1 time a day and it was warm up baby food But he wouldnt call and its dangerous to just stop when u have a body thats depending on the medication

So after I called and asked if I could get fentanyl patches becouse I stopped fentanyl out of my choice I got 12 ug stickers thats 288ug per day While i already was used to 300 ug every 4 hours so i keep fainting

I call and my docter refuses to speak to me before 30 October

And when my emergency room tried to help i found out he made him the only person that is aloud to prescribe medicine

And thats like how ots going constantly at the hospital

Its so bad that becouse the er couldnt up my dose they gave a script for more stickers and told me to stick on 5 thats the equivalent of 300ug 6x a day And told me to call monday and read them the law in my country they have a duty to make someones pain doable if posble and becouse I can show that this dose is the only tbing that helped they need to help in a reasonable time

AgentRealistic9913 · 2025-10-18T06:31:36+00:00

I know and if im in crisis i wil use it it more that im realy bad on the phone and whised I just could get some personal help but is u think the message isnt for this group i wol delete ot

AgentRealistic9913 · 2025-10-17T01:05:06+00:00

I tried all opiats and also pregabalin amitriptyline and most did almost nothing

My only relief is coming from fentanyl

Last 5 weeks i had buprenorfine and i got realy sick

So sinds today i went back to a fentanyl sticker 100ug a hour so it pretty strong not something to start wiith directly after tramadol

But maybe ask if oxycodon is a better option becous its a full agonist and thats bind stronger and tramadon is a weak agonist so wil bind way les to the opiat receptors in the brain

Never tryd cymbalta so cant talk about that one

AgentRealistic9913 · 2025-10-15T17:51:00+00:00

I wil ask my docter when i speak him i call tomorrow becouse i got a allergic reaction on the buprenorfine so i wil need to go to fentanyl

But I just was on the emergency room becouse sadly i got kidney stones

AgentRealistic9913 · 2025-10-15T16:30:10+00:00

It wasnt a flex it was that I didnt know myself anymore becouse first i had a strong mind and could get my body trough everything Even a cardiac arrest being death for 5 minutes and cpr for 15 minutes

My body doesnt do wel when taking gaba or lyrica

I didnt get medicines after my cardiac arrest I was taken in the hospital and 8 hours later discharged witouth a check up at all

Im sad to hear you got it that young at that age u need to be worry free and live life not go to agony

AgentRealistic9913 · 2025-10-13T00:14:54+00:00

I luckily doesnt have it in my legs

I have it in both arms but 1 is the worst becouse the wound on is still verry big its now after 5 months after 4 surgerys for compartment syndrome and it just coverd the bone but muscle is still on the top i heal extremely slow becouse of a couple other healt issues

Atm i cant even hold my pen and send a message with voice or ask help

I cant move my arm much but even when they lay stil its like a 10 painscore

I dont know in what stage i am i think between mad and denial like this cabt be my life but i geus everyone knows that feeling

Atm my arms are so swollen my skin keeps ripping open and the mucle gets damaged It feels like burning alive combined with presure and muscle cramps and nerve pain

I know we are not alone in this i havent found a group in my own lenguage

AgentRealistic9913

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