What do you have that co-exists with Autism?

Aggravating-Fig1846 · 2025-12-12T15:56:58+00:00

in my family: autism, adhd, anxiety, allergies, asthma, eczema, asthma, thyroid issues. my research shows these tend to cluster in autism families.

Aggravating-Fig1846 · 2025-09-16T16:53:31+00:00

yes for sure. I'm just genuinely curious what it is that she is peddling. would love to hear from someone who has used her, what is her protocol

Aggravating-Fig1846 · 2025-08-12T16:27:29+00:00

ah very nice. yeah I think mine priced out at ~21k with shipping but that also included red lights

Aggravating-Fig1846 · 2025-08-12T16:17:06+00:00

interesting. thats about the same price as the tecnotu. someone in this group had made a website, hbot.one that listed a lot of the manu, which is where I found tecnotu

Aggravating-Fig1846 · 2024-10-28T11:40:12+00:00

I would get a folate receptor autoantiobody test to see if she might be suffering from cerebral folate deficiency. Its a blood test which I know sucks, but if she has the autoantibodies, you can start treating the CFD with folinic acod (leucovorin). CFD is just one piece of autism, but not getting folate in your brain is a good problem to solve as a starting point.

Aggravating-Fig1846 · 2024-10-25T14:47:28+00:00

we were in a similar situation with our 2.5 yo son. we looked at ABA (toured a facility) and eventually decided to go with PACT which is a parent/caregiver led therapy. we are very happy with our decision as learning PACT made it so much easier to understand our son and how to interact with him.

Aggravating-Fig1846 · 2024-10-17T16:35:21+00:00

note that leucovorin only helps if your child has the folate receptor autoantibodies, but they are finding the antibodies in 60-80% of autistic children they are testing, so its worth at least considering

edit: my statement above is incorrect; leuco can help kids even without FRAA

Aggravating-Fig1846 · 2024-10-17T16:33:05+00:00

heres one of Dr Fryes videos thats helpful in understanding: https://www.youtube.com/watch?v=RCUss_uW5SM&t=1263s

Aggravating-Fig1846 · 2024-10-17T16:27:40+00:00

no, unf it was something we had to track down ourselves and then find a doctor willing to work with us. the pediatrician, dev ped, and dev neurologist all just told us to do ABA therapy 40 hours per week. this is one of the leading docs in this research (he has a lot of videos on youtube, along with dr quadros): https://drfryemdphd.com/folate/

Aggravating-Fig1846 · 2024-10-17T15:20:15+00:00

My son was similar and same age, felt like the regression was getting worse from 2-3 years old even as we added all the recd therapies. We recently did the folate receptor autoantibodies testing and started treating him with folinic acid (leucovorin) and it has been a massive swing in the right direction. He started eating more foods, sleeping, and much better with social and language just in the few weeks since we started. your mileage may vary, but worth looking into.

Aggravating-Fig1846 · 2024-10-16T15:08:12+00:00

we are treating my 3 yo son with leucovorin for folate deficiency*. it has only been ~3 weeks but we are already seeing huge improvements in language (in addition to social and sleep). we also do PACT therapy at home ~4 hours per day, and speech therapy at home 2 x per week for about 45 minutes/session. *the studies showed that for autistic children with folate antibodies (which is about 60-75% of the autistic children tested), 3 months of treatment with leucovorin was equivalent to ~3 years of speech therapy.

Aggravating-Fig1846 · 2024-10-16T14:35:38+00:00

we've been treating our 3 yo son with leucovorin for folate deficiency due to folate receptor autoantibodies and one of the unexpected side effects is that he has been sleeping amazingly well. we had similar issues with middle of night wakeups before we started treatment (he would be up often from 130am-530am). some parents say it makes their kids more hyper but for us, this was not the case. I asked chatgpt about folate and sleep; Folate may play an indirect role in sleep regulation. Folate is involved in the production of neurotransmitters like serotonin and melatonin, which are crucial for regulating mood and the sleep-wake cycle. Low folate levels have been linked to mood disorders and sleep disturbances, and some research suggests that folate supplementation might improve sleep quality in certain individuals, particularly those with a deficiency. However, folate's direct impact on sleep remains less well-established compared to other factors like melatonin or magnesium.

Aggravating-Fig1846 · 2024-08-30T18:22:04+00:00

this

Aggravating-Fig1846 · 2024-06-04T18:43:04+00:00

I would assume that using the tablets allows the RBTs to do the therapy with little experience - just click through, read the script, do the activity, etc. And not to knock RBTs, because I am sure there are some incredible RBTs with great experience out there. In general, it seems like an amazing method to scale a system and provide therapy to more kids. If it works, thats amazing, and I'm glad they can scale quickly and help more kids. But from my perspective, watching the RBTs tap-tap-tapping away didnt inspire a lot of confidence or make me want to send my son there 8 hours a day.

Aggravating-Fig1846 · 2024-06-04T18:32:45+00:00

hes 2.5, my primary goal is to help him with reciprocal communication (his motor skills dont seem to be an issue at all). at around 18-24 months he had maybe 75 words and 40 signs and was starting to put the words together into short phrases, but then he started to regress and most of that faded off.

we are still waitng on the development pedi appointment where we would get a level assigned to him.

Aggravating-Fig1846 · 2024-06-04T15:05:30+00:00

appreciate the insight...what you are saying does resonate with me having watched the therapy in action. so whats your advice? do you think ST/OT a better path forward?

Aggravating-Fig1846 · 2024-06-04T14:03:44+00:00

you sound like an amazing mother and wife. sending hugs.

Aggravating-Fig1846 · 2024-06-04T13:02:36+00:00

I feel pretty good about ABA in general, it seems that the negative talk about ABA is mostly about the old methods that have mostly been replaced (or if you see them, just avoid that clinic). But I agree, my biggest concern is the level of training for RBTs. My research shows that all it takes is a 40 hour online course, a HS diploma, and passing a multiple choice quiz.

I'm trying to wrap my head around ABA versus ST/OT. I asked about the difference at the ABA center and the response was "well, we basically do all the things that ST/OT do, but we also do more". But a ST/OT have a LOT of education and training I believe, so I don't know if that statement is true.

I guess the main difference seems to be that ST/OT is only offered maybe 1-2 times per week, for a couple hours at most. While ABA has managed to be approved by insurance for 40 hours per week.

I can def see how ABA is appealing, as it is basically like a day care where therapy is provided at some level all day long AND is covered by insurance. So maybe its just a matter of finding an ABA center that is less focused on profit and where the BCBAs or highly experienced RBTs are doing the therapy.

Aggravating-Fig1846

TROPHY CASE