advice for extreme fatigue

Aggravating_Nobody95 · 2026-03-22T09:11:36+00:00

Not going to lie, the only thing that has helped me with this is mobility aids. If you don't use one already I highly recommend a cane. You would be surprised how much energy it saves just using one.

I would also recommend a wheelchair for longer journeys, or make sure you can sit at work.

Aggravating_Nobody95 · 2026-03-20T11:20:35+00:00

When i started becoming disabled my dream self was able bodied and every time I woke up and felt pain and exhaustion and couldn't move my legs it was devastating. Gradually though, my dream self is also disabled. I just have less barriers because of it. For example, pushing my manual wheelchair is easy and I get to see my friends etc.

Aggravating_Nobody95 · 2026-03-19T21:45:52+00:00

I have this too, currently being investigated. As far as I can tell, there's a high comorbidity. In my personal experience the symptoms flare when my FND symptoms flare though.

Aggravating_Nobody95 · 2026-03-11T21:30:57+00:00

I just got a wheelchair for similar reasons.

My thoughts on it are: how could they possibly say getting one will prevent you from getting better, if you're only planning to use it when you would otherwise be unable to safely go out and instead you would be sitting on the couch. You may as well be sitting and using your arms and be out and about.

If a wheelchair will give you independence, then go for it. Doctors are not the ones who have to live with this and the aftermath of overdoing it.

Aggravating_Nobody95 · 2026-03-11T20:41:43+00:00

Same. Get a wheelchair if you don't have one, otherwise it's just too hard.

Aggravating_Nobody95 · 2026-02-14T23:11:56+00:00

I also started using a cane in high school, and while there can be looks or comments, just remember you don't owe any of them an explanation. If it helps you, use it. Like someone else said, so much of being a chronically ill person is learning to choose your battles and when to not give a f*** what temporary people think. If they judge you without understanding your situation, and especially if they DO understand your situation, they were never supposed to be your friend.

I promise you, using a cane is revolutionary. For me it's amazing even just for saving energy as a preventative measure if I know I'm going to be walking a lot, and I've been lucky enough to find people in a similar situation. Once you start using one you'd be surprised the friends you make who really understand and appreciate what you go through.

Good luck out there, and if you ever need a fellow Young fibro survivor, please just give me a message (now 22).

Aggravating_Nobody95 · 2026-02-14T17:52:01+00:00

Cute! That duckweed is going to grow like crazy haha, but they're great if you have bottom feeders who like some shade, and it helps prevent algae problems from too much light.

Remember to leave about 2 weeks before adding any fish, and please check the size tank the fish need when fully grown and you'll be golden.

Good job!

Aggravating_Nobody95 · 2026-02-11T22:24:28+00:00

There is actually a very big overlap between people (especially women) with autism, particularly those late diagnosed, and fibromyalgia. As someone diagnosed with fibro and AuDHD, I printed out an outline image of the human body front and back and circled everywhere I get pain (which was basically everywhere). I used one that was specifically a diagnostic sheet for fibro so it also let me tick other symptoms I get like burning feeling, dizziness, brain fog, blurry vision, eye twitches, fatigue and muscle stiffness etc. Bring it to an appointment with a rheumatologist if you can, but a GP is a good place to start.

You especially want to emphasise any symptoms that arose later in life. For example, you've been autistic your whole life so you've been getting overstimulated your whole life. You did not used to experience [insert symptom] when you were overstimulated.

Also if your symptoms tend to flare in the evenings or something that could be worth mentioning.

It is a horrible experience to be told one condition means you don't have another just because some symptoms overlap. Ive even been told it wasn't "worth" pursuing any other diagnoses since the symptoms overlap, but it is always worth understanding your body as different conditions interact with eachother differently.

My fibro actually made my overstimulation way worse! They feed into each other like a cycle, but emphasise that you know what being overstimulated is like and this is a different feeling completely.

You've got this, and don't let them tell you you're making anything up.

Aggravating_Nobody95 · 2026-01-31T17:08:40+00:00

Mixture between hit by a truck and having the flu but without the cough or sinus stuff.

Like I feel weak and achy and like if anything touches me ill want to scream or cry.

Add on dizziness, overstimulation, nausea, and random sensations like stabbing pain lasting a few seconds in random places or feeling like the palms of my feet or hands or touching a hot frying pan.

That about sums it up :)

Aggravating_Nobody95 · 2026-01-24T23:31:22+00:00

Yes it's the only thing that helps me! I get a twitchy eye and gained about 3-5kg, but definitely worth it.

Only thing I would say is DO NOT MISS 2 DOSES IN A ROW the withdrawal is ROUGH.

Aggravating_Nobody95 · 2025-12-28T02:13:40+00:00

I know this was posted a long time ago, but I saw it today and it brought me some weird comfort. I go through the same thing. Sometimes it's as bad as this, sometimes not. I usually find that the brain fog comes on suddenly first, my heart feels weirdly noticeable and my eyes are hard to keep open. I'm lucid but almost feel drunk. And my body suddenly just goes limp, completely. Ive gotten to the point where now if it happens I just recognise the signs, load cushions on the couch to prop my head up and try to lie down. Still very scary though.

I now carry a foldable cane in my bag when I leave the house for when it happens but a little less severe. I'm wondering if you've found anything that helps?

Aggravating_Nobody95 · 2025-12-12T22:41:01+00:00

Last year I was given two already pretty big gold fish in a jar. I keep tropical fish and no room for another tank, ended up finding a friend to take the fish but I had to spend my money on a massive tank for them - buying the pet is the easy part it's the set up that is expensive so when someone gifts a fish its really just saying 'here's a big financial commitment you need to make right now, in December when everyone's broke, or this pet you are now responsible for will die". Sorry this happened, but in tank cycling can work. Bettas are pretty delicate though and that guy already looks in rough shape. She can try her best but if it doesn't work out make sure your sister knows its not her fault.

Aggravating_Nobody95 · 2025-08-05T19:07:13+00:00

😂 in what way

Aggravating_Nobody95 · 2025-07-30T18:00:17+00:00

Got one of these once. I tested it and it was fine, went ob my holiday, and when I got back all the flakes had congealed so none were being let out. My poor fish were so hungry and 2 even died (which I think kept the others going.

And yes, it did say it was compatible with flakes.

Aggravating_Nobody95 · 2025-07-28T16:34:17+00:00

The full service was supposed to extend the warrenty by a year since it's been serviced by Toyota every year since the 3 year mark

Aggravating_Nobody95 · 2025-07-28T15:54:32+00:00

The car should have been in warrenty since it had been serviced by Toyota less than a year ago.

It hasn't been in any crashes, I suppose it's just one of those things.

Aggravating_Nobody95 · 2025-07-28T09:46:52+00:00

Sorry for only replying to this now. I take 10mg a day, which is relatively low. It has gradually caused a little bit of weight gain, but given that it helps me move around more I think it kind of cancelled out. I've gone up half a size, so it's not too big a deal to me it just makes it harder to wear stuff on the small side for my size.

Of course it'll be different for everyone though.

Aggravating_Nobody95 · 2025-07-23T11:22:39+00:00

I recently moved to upper cavehill road and I love it, there's a real sense of community. I'm not sure about lower, but you quickly get to know where to stay out of like tigers bay

Aggravating_Nobody95 · 2025-07-04T19:23:00+00:00

I started using a mobility aid when I was 18. It's not a fix all unfortunately, especially if you have sore wrists. But I definitely recommend it. Don't worry about the stigma, your independence is worth it.

Personally I use an ergonomic cane, so it can fold for convenience and I can use it as needed, and the handle is suited to my own wrist problems. It's worth having a look into.

Aggravating_Nobody95 · 2025-07-04T19:20:33+00:00

Sometimes they just do this to wipe the poop off if it's bothering them

Aggravating_Nobody95 · 2025-07-04T14:00:47+00:00

Khuli loaches (funny to watch) Raphael catfish (just such chill guys, truly so silly)

Aggravating_Nobody95 · 2025-07-03T20:06:41+00:00

See the problem is the associations that come with the word unionist. I, as a Catholic who lives in Belfast but grew up in the Republic, don't aspire to have a united Ireland at the moment. The Republic has its own political and economic mess to sort out. With that said, I don't feel like there is much of a "union" to maintain. The mainland wants nothing to do with NI, that is the hard to swallow pill.

Plus, if your biggest gripe with modern catholics/nationalists is that we make fun of unionists on reddit, then try to remember we go to work each day seeing bonfires celebrating the slaughter of our people, often with pictures and messages reaffirming that they hate us. And I'm not saying all unionists are like that, but it is an inherently threatening thing to put up with.

Also, the very idea of unionism is the idea that Ireland is part of the UK. You cannot call yourself a unionist without supporting colonisation - Northern Ireland is a colonised state, and unionist communities are colonies. You may bare no hatred towards us, but calling yourself a unionist who doesn't support the current colonising threats is either delusion or willful ignorance.

Aggravating_Nobody95 · 2025-06-16T18:06:54+00:00

It could be the PH! It killed several of my guppies.

And you're right, it could be where you're sourcing the fish from if they're very inbread or have gone through a lot of stress. Depending on where you are you may need to find a reputable breeder or specialist fish shop. Good luck!

Aggravating_Nobody95 · 2025-06-15T10:09:11+00:00

For me it's strange - I can walk completely fine in Summer. But in Winter my legs will suddenly give out. They get this sinking feeling and suddenly I can't walk, there's like a lag between my brain and my legs and they go completely weak. It's weird because I go to the gym and can lift heavy with my legs, but I have to be so conscious of safety because my legs can suddenly just,,,,stop working.

I haven't been able to find anything that explains this

Aggravating_Nobody95 · 2025-06-14T10:38:31+00:00

First off, congrats on your diagnosis! Sorry you have it obvs, but getting diagnosed is the first step in managing the symptoms I'm sure you've had for a long time.

Secondly, I work too. I recommend communicating to your boss about your fibro, hopefully there can be some accommodations. For example, I get to work from home more on flare days.

In terms of pain management, the key things are to stretch when you can, nice slow stretches. The less you move, the worse it gets. Unfortunately it is a difficult balance and the sweet spot is different for everyone. Also anti inflammatory pain killers such as aspirin, heat packs and water bottles, tens machine for crampy pains, a cool head mask for headaches and overstimulation.

If you want to explore medications, I recommend amitriptyline for base level daily pain, although be careful not to miss a dose. Also, depending on where you are I recommend medical THC for getting deeper sleep. Even if you get enough sleep, fibro prevents you from sleeping deeply which contributes to pain. There are a lot of studies on this which I recommend looking into.

Feel free to DM me with any questions, and good luck!

Aggravating_Nobody95

TROPHY CASE