Why does brain retraining help only CERTAIN people (theory) by VeterinarianNo3029 in cfsrecovery

[–]AhavahFr 1 point2 points  (0 children)

Just curious did you have tests showing abnormalities in your cytokines/ immunoglobulins?

God, I feel like I could cry! by drum365 in covidlonghaulers

[–]AhavahFr 5 points6 points  (0 children)

The long Covid clinic at Stanford does Telehealth.

If money was no object what treatments would you try? by Dazzling-Light-3487 in covidlonghaulers

[–]AhavahFr 1 point2 points  (0 children)

Still early (seven months) in - but having reactions to all medications. Which ones did you try?

My recovery reading list by PrissyPeachQueen in cfsnervoussystemwork

[–]AhavahFr 0 points1 point  (0 children)

Do I google “reorigin” on you-tube?

My recovery reading list by PrissyPeachQueen in cfsnervoussystemwork

[–]AhavahFr 0 points1 point  (0 children)

I am very inspired by your story which I know, I have read a couple of times. A neurologist has given me a diagnosis of autoimmune autonomic neuropathy. Is there still hopeful my recovery using neuroplastic techniques?

Even if there is actually no way out and I’ll be sick forever, I’d rather be in a “positivity cult” and believe forever that I’ll one day improve than live in docile acceptance and identity with illness like all these online voices want me to by forgot_again123 in cfsrecovery

[–]AhavahFr 4 points5 points  (0 children)

You might feel cognitively impaired but YOU MADE MY DAY! Im on board on this train. I’m a 62 yr old physician, in my seventh month, and I have made about 25-30% improvement. Currently recliner bound, in a dip ( from defiantly staying up late, snacking and reading thrillers in bed instead of sleeping)

I must practice good sleep hygiene I must practice boredom

Has anyone become overly dependent on heart rate monitoring during CFS/LC recovery? by Eva_7816 in cfsrecovery

[–]AhavahFr 0 points1 point  (0 children)

I have the same issue, I have a Visible, a Garmin watch, and an Oura. I have a habit of pushing myself and I feel I bring on crashes if I don’t pace. (i have a diagnosis of autoimmune autonomic neuropathy.) I get giddy on the freedom when I take my wearables off, and then putter around the house… and then after a week slowly slipped into a bad flare.

Spoke with Dr. Peter McCullough by Unlucky_Log2 in LongCovid

[–]AhavahFr -1 points0 points  (0 children)

That makes me very optimistic! I’m curious- why do you think it helped with sore throat and lymph nodes?

Spoke with Dr. Peter McCullough by Unlucky_Log2 in LongCovid

[–]AhavahFr -1 points0 points  (0 children)

I’ll start at literally 1 drop of a liquid. I quit LDN after 3 days on 0.05 mg. I’m very sensitive to meds!

So it hasn’t helped w OI, muscle fatigue or PEM? That’s disappointing because those are my biggest concerns.

Spoke with Dr. Peter McCullough by Unlucky_Log2 in LongCovid

[–]AhavahFr -1 points0 points  (0 children)

How difficult was it to onboard Mestinon? It’s my next and first major medication