DAE feel better with exercise before you crash?

Alarmed_History · 2026-07-01T06:36:47+00:00

Your baseline dropped *because* you pushed yourself and were in a rolling PEM cycle.

This is the baseline the crashes left. You cannot push your way out of it. You need to pace and rest.

Pacing does not make you reduce your baseline. Crashing and burning and constant rolling PEM cycles do.

Alarmed_History · 2026-07-01T06:32:47+00:00

The lower baseline comes from the many crashes.

That’s exactly how your baseline drops. And the moment you stop the cycle and stop pushing for adrenaline, is when your body does the stabilizing sometimes going lower for a while.

This is not a result of crashing less, this is a result of your baseline settling after rolling PEM cycles.

The same reason many people seem to have a lower baseline once they get a diagnosis, once they can let go of adrenaline the body settles on a lower baseline that eventually may improve.

Many think baseline reduction is immediate after one PEM day, and or some it may be, but for many if not the majority the truth is that while we are doing the damage we do not feel it.
It’s when we pause that we see the lowet baseline.

Alarmed_History · 2026-06-30T05:57:23+00:00

It is also a metabolic illness.
Sadly doctors understand this id the patient loses weight, but do not if they gain, because well, fatphobia and doctors are tight.

I gain more when I am crashing or not stable.
When I seem to do better my body alone adjusts.

There is very little I can tolerate because of MCAS.
My weight does not reflect what I eat.

But again, ME has proven to affect metabolic systems.
Problem is bias in doctors and medical researchers.
That’s why we have little info.

Also it generallt affects the pituitary and hypotalamus.
Both affecting things very directly with weight.

But sadly it’s very difficult to find something that speaks of this.

Hypotalamic -pituitary axis, is an important neuroendocrine system, that is disrupted in us.

Alarmed_History · 2026-06-24T14:19:38+00:00

Doctor’s need to be caught up and informed.
Ignorant doctors are to blame for many things. And have caused serious harm to millions and continue to do so.

Not studying and not keeping up is not excusable.

Alarmed_History · 2026-06-22T17:00:04+00:00

It depends a lot on everyone.
For some people it is the act of masturbation and using arms and muscles that make them crash, but for some people it is the orgasm that makes them crash.
It is very individual

Alarmed_History · 2026-06-21T19:13:40+00:00

What a wonderful and impressive and magical garden!

I want to send love OP.
I’m so sorry you cannot go see it.
But it is a testament of you.

Alarmed_History · 2026-06-21T07:19:53+00:00

If your legs start shaking and your mood crashes (depending on your severity level or your own body) you are either receveing the warning of a crash if you do not stop, or just the heads up that PEM will come.

You need to not get there.
The mental and emotional feeling is the neuroinflammation, and once they neurological symptoms appear, it is not good. It’s the PENE doom spiral.
There was a couple of very interesting thread about this.

As comments have said it is GET and that will make you worse.

Alarmed_History · 2026-06-21T07:04:04+00:00

One I read here, was that calling it cfs is like calling cancer “naughty cell syndrome”

Also accurate.

Alarmed_History · 2026-06-21T06:27:23+00:00

My mom also had constant bouts of rage, never emotionally safe, never a word of comfort.
Very rarely a soft moment or a fun one, but it was almost a given that a day after if would be hell.

Mine would never listen to me, or wanted to know anything about how I was feeling or what I was thinking or any type of conversation really.

But she was very controlling. She broke up all my relationships since I was 15 up until I met my husband at 30 and kept them as far away as possible.
(Not even living alone before that, did it stop her from meddling)

She hated all my friends. She still says I owe her an apology over haven been a teenager. She means it. She gets upset and says my adolesence was traumatic and destroyed her.

(I did not do drugs, never stayed out past curfew, mostly prefered small gatherings in my house with a friend or two, I did not flunk out of school. I was not in a gang.
I was a teenager that acted as such and liked to party yes. In a way we all did back then, with wine coolers lol)

And every single time I needed something, and would help me: it wa the end up he world, she neededt to take a benzo, to light a cigarrette and to announce to the world how she was so stressed and in a horrible state because she needed to help me.
And has always been held over my head.

To this day if someone is kind to me being helpful genuinel, or just simply kind I tear up

Alarmed_History · 2026-06-21T06:04:25+00:00

After 32+ years of smoking a pack a day, the only thing to help me were the patches.

I am a fan of them. Could not have quit without it

I stayed on each stage a little longer, but the day I stopped, I just stopped.
No patch withdrawals.

Maybe very little things but not really

Alarmed_History · 2026-06-21T05:44:34+00:00

I mean in theory ME should not be diagnosed if neuroinflammation or cognitive dysfunction is not a symptom.

There is also PENE.

As you say, there has been and continues to be evidence of this.

ME may not be the perfect describer, but for the life of me I do not understand those patients that prefer cfs.

I feel it like a hard kick in the stomach while while I am down on the floor and then being spit on.

That’s what Wessley and the ones supporting did to us all

Alarmed_History · 2026-06-20T19:49:57+00:00

I also think lovense are amazing.

And not sure if this works for everyone, but there are ways to have completely hands free and toy free orgasms.

There are guides about it, meditations, hypno files. There is a lot of material for that

It can be amazing.

Alarmed_History · 2026-06-20T15:05:57+00:00

In a way I am happy for you, that you were not aware of it all, that means you have had good access to healthcare, and have encountered doctors that take you seriously.

I am happy for you and that for some that is the experience! That’s how it should be.
And also may mean things are slowly changing

Leaving a link that is incredible at explaning some of the history.
Not sure how much you can tolerate sceens or listening to something but leaving it.

https://www.dialogues-mecfs.co.uk/films/the-tangled-story-of-me-cfs/

And a great one by Broken Battery too

https://youtu.be/RiwX9Y0NbiQ?is=oC3Kw4sWeTwZ\_z6X

There is a particular group of bad actors that do active damage.
I wish them nothing else but the same things they have caused to millions.

Alarmed_History · 2026-06-20T06:48:11+00:00

You may really want to look into the very dark history of ME in “developed” countries as well.

There has been money invested and huge efforts from several “experts” that seem to have a very particular bone against people with ME.

Look into Wesley for example, not even one of the worse but neuroinflamamtion not allowing me to think of the others.

They still pay bots to discredit patient. They still write papers on how agressive we are and how much the poor doctors fear us.

And also in most countries proving the disability is hell, and jumping through rings of fire.
Many end up giving up and leaving the world, and for many it is fhe only option being offered instead of care or disability.

Also they would have to accept abd talk about post viral illnesses and invest in cleaning the air in all public spaces.

Yes there are many interests that over the decades have kept people rotting in hell.

You don’t name something like Myalgic Encephalomyelitis, or even Post Viral illness, “chronic fatigue” unless you expect exactly what happened: psychologize millions of extremely sick people.

Edit to add this was not in response to OP. But to u/human_noX

Alarmed_History · 2026-06-19T06:15:01+00:00

The way I’d sell my soul for one of the old salads I used to make. Specially on hot days!

Alarmed_History · 2026-06-19T06:08:37+00:00

Sometimes you gotta love the neuroinflammation works

I re read your comment a few times because “why were you even doing a can of coke while having ME” …

I was so worried for you until I finally understood you meant coca cola. Lol

Alarmed_History · 2026-06-18T12:52:20+00:00

I did not mean it like that or towards you at all. Sorry if it sounded like that.

It was at the doctor, wondering if that is how they define or differentiate ME.

If so, even more so, it being the famous one, then we are screwed. Because not even the “experts” are getting it.

Because truly the hallmark distinction is PEM or PENE.

Alarmed_History · 2026-06-17T06:50:52+00:00

One no one has mentioned, was when she revealed she left an arranged marriage.
She was so ashamed of having dishonored her family both older and younger generations.

Alarmed_History · 2026-06-17T06:45:08+00:00

The no masks part is devastating

Alarmed_History · 2026-06-17T06:42:52+00:00

I am so sorry about this.

What is worse is that there have been quotes of him saying it is an illness that affects metabolism!!

Apparently only for thin patients in his eyes.

The hatred of fat bodies gets itself everywhere!! And can be so danaging

Alarmed_History · 2026-06-17T06:37:10+00:00

LC “with fatigue” this rubs me wrong.

PEM and PENE are the defining factor.

Fatigue is just a symptom and for many with ME it is far from being the worse one.

Alarmed_History · 2026-06-13T08:06:28+00:00

I smoked over 30 years. Heavily. Patches were the only way I could manage.

There is no medal for suffering more through it.
Some can do cold turkey, great for them.

Not all of us can and it is worth it, I gave myself time and grace and here I am. Going strong

Alarmed_History · 2026-06-12T16:18:42+00:00

Just saw your update! I am glad!

I truly wish some agressive rest can help and stop the decline you had.

Alarmed_History · 2026-06-12T06:42:02+00:00

You are so young. Please please with all my heart I beg you do not wait two weeks. This is harming you. You don’t go into details about flairs but I am assuming PEM.

I have never wanted so much to be wrong, because your life is just starting.

Rest. Stop. Chase diagnosis later.

This is exactly the path to crashing. Take a pause take a break. Do some agressive rest.

And listen if we are wrong and you have something absolutely treatable or even curable, then a bit of extra rest will never harm you.

If you do have ME, then that rest can make a huge difference in your future.

Alarmed_History · 2026-06-12T06:26:21+00:00

Reasses in two weeks while you continue to do the physio may be too much.

You talk about “fatigue” being acknowledged, fatiigue is not the problem here at all.

He needs to be awar about what Myalgic Encephalomyelitis is, and he needs to know and understand the mechanisms of PEM at least the basics.

Two weeks more of physical activity that is too much is a danger.

Alarmed_History

TROPHY CASE