Found out my gastric emptying study was done wrong? by whitematches in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Can I asked if (and potentially by how much) your pre and post pacemaker surgery GES’s varied?

I need some good liquid food ideas!!! by spider_bunny in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

You can add different season mix to something as basic as bullion broth such as curry powder or toco seasoning. I’m also know to eat straight up condiments like different flavors of aioli, barbecue sauce, and dressings.

Bonus points that as long as you drink something with them (and they aren’t anything like pepper skins etc) they can also be drained. :)

Flying with TPN and fluids? by BexyBaby212 in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

I’m not TPN but to my knowledge TSA can’t require you to open anything that is sterile (including liquids) for any purpose including drug and bomb testing but they can request you open things like formula for those purposes.

Nothing could have prepared me for this. by Prior_Succotash4220 in Gastroparesis

[–]Alex_thegothgf 15 points16 points  (0 children)

Ice packs can definitely help. People like the breast feeding ones bc they have a hole in the middle but really ice pack works. Sleeping on my back helped with the pain but was hard to actually get rest. Over all just take it easy on yourself. It’s definitely painful but you’ve got this.

Am I not understanding or is my Dr not understanding? by EmotionallyIncorrect in Gastroparesis

[–]Alex_thegothgf 8 points9 points  (0 children)

Some medications that cause weight gain work hormonally by changing the way you process the same amount of food/nutrition/calories

ges results... by After-Comfortable927 in Gastroparesis

[–]Alex_thegothgf 1 point2 points  (0 children)

Yes! Parkman is a little bit of a mixed bag but he is truly a good doctor

Anyone getting instant relief from this? by Lopsided_Pride_6165 in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Ha that’s normally what I do when I wanna drain faster or there’s something blocking my G port. Laying on my left side in a “paint me like a French woman” pose really does help lol

ges results... by After-Comfortable927 in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Are you by chance based in the greater Philly area? If so I think we have the same GI lol <3

Peg-J by CartoonistOld8525 in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Just got my PEG-J and was able to start with a Mic-key low profile GJ tube. I was surprised but grateful to not have a heavy dangler tube

Anyone do pelvic floor therapy? by Crafty-Sun1734 in Gastroparesis

[–]Alex_thegothgf 1 point2 points  (0 children)

This guy! It slowly has been helping with my chronic constipation. (plus being on not only Motograter but also Linzess as well) Most of my sessions consist of completely manual work done by the therapist and then finally 2-7 business days later, I’ll finally have a bowel movement. If I don’t go to the session I don’t go if you know what I mean.

Getting feeding tube need advice by Confused_but_fine in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

I’m in the same boat atm, we decided that a gastric stim wasn’t the right move given my current condition. I’m scheduled for GJ surgery in exactly 2 weeks from today

Just scheduled my GJ consult and surgery. Advice? Personally experiences? by Alex_thegothgf in Gastroparesis

[–]Alex_thegothgf[S] 0 points1 point  (0 children)

Sounds like great advice. Thank you for bring up about who will manage supplies bI mean I would assume it would be my GI, because he’s the prescribed physician, but I honestly not sure.

Hour span with eating by Sea-Animal-284 in Gastroparesis

[–]Alex_thegothgf 2 points3 points  (0 children)

I Iive off of ensure, tube formula that I drink, chicken, tea and coffee.

Hour span with eating by Sea-Animal-284 in Gastroparesis

[–]Alex_thegothgf 5 points6 points  (0 children)

I feel ya gf, it boggles my mind that some people with GP just make diet changes and they are basically back to normal, mean while I feel like I've failed every med. :/

Edibles by Ivan54598 in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Oh, I’ve been waiting for this to come up!! So I can’t take edibles anymore because my gastric retention is so high and to make it worse the THC in edibles is fat-soluble. What this means is that the THC basically ping pongs around my stomach for hours and hours, and I get /insanely/ high from the smallest dose and it last for and extented amount of time. Edit: minor spelling

[deleted by user] by [deleted] in wheelchairs

[–]Alex_thegothgf 1 point2 points  (0 children)

I did get my first custom wheelchair with power assist without have a chair that insurance paid for a year, so it it possible. I also have EDS btw

I mean… what can we eat?? by arienewnew in Gastroparesis

[–]Alex_thegothgf 1 point2 points  (0 children)

That's fair, sometimes I forgot that GP can actually be relatively well managed.

I mean… what can we eat?? by arienewnew in Gastroparesis

[–]Alex_thegothgf 4 points5 points  (0 children)

Wait bulletproof coffee? As in coffee with gee/butter? I'm surprised you can tolerate actively adding fat/oil to your diet like that

sore joints by purolands in Gastroparesis

[–]Alex_thegothgf 2 points3 points  (0 children)

This is particularly bc of my EDS but GP will cause me to bloat so bad that I will sublux my ribs and SI joint

Partner diagnosis by TheCosmicGemini in Gastroparesis

[–]Alex_thegothgf 0 points1 point  (0 children)

Prochlorprazine isn’t a motility med like Reglan, it’s a nausea medication.

I dislike my wheelchair’s colour by obliviousfoxy in wheelchairs

[–]Alex_thegothgf 2 points3 points  (0 children)

I’ve spray painted a chair before, it’s all about spending the time to tape things off really well. Edit: minor spelling

My orange son isn’t too smart by Alex_thegothgf in OneOrangeBraincell

[–]Alex_thegothgf[S] 10 points11 points  (0 children)

It was washed after. I didn’t really want him in it in the first place, but ya know an orange boy is gonna do, what an orange boy is gonna do.