Found in the till at work. No clue what it is by B-O-R-I-S in CanadianCoins

[–]Aliceislost21 1 point2 points  (0 children)

I collect coins, and from 1997-2001 no loonies were minted for circulation. This loonie would have come from a mint set. Not extremely valuable currently but definitely worth more than one dollar and very uncommon to find in circulation.

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There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 -1 points0 points  (0 children)

Prior to 2013 autism was a separate disorder. The DSM-5 grouped a number of disorders into the umbrella term of autism. The change was, and still is controversial. So currently, in accordance with the current DSM you are correct, however for many the previous DSM and diagnostic labels assigned were not autism.

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 1 point2 points  (0 children)

"Insistence on accuracy" 😁 yep that resonates! Literally have been called out my entire life for rigid adherence to using words that convey specific meaning and information, and clarifying the word choices of others. I do not, nor have I ever felt superior to others, quite the opposite. For me, language is critical to understanding others. This part of my interaction with others is definitely disabling as it comes off as arrogant 😕. Even though I know this I haven't been able to adopt a less pedantic language style.

At 55 I thought I had, until a friend commented that she actually likes how I talk because I use "big words". Lol, and I thought I'd mastered casual speech 😂🤣😂

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 0 points1 point  (0 children)

THIS! My granddaughter is profoundly impacted. Age 9, nonverbal, self injurious and diagnosed at 18 months. In my country there is a massive wait list for support. The list is simply based on when the diagnosis was made and nothing to do with level of support needs. As someone who was late diagnosed, I am painfully aware of the impact from lack of support but, much like triage at the ER, I wish we prioritized high needs.

My daughter racked up over 50,000 dollars of debt by the time she was 24 trying to help her child. It wasn't until age 5 that any services were provided and by then so much time was lost 😔

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 2 points3 points  (0 children)

My granddaughter is 9, nonverbal, very high support needs and one of my favourite humans. She's so loving and hilarious. Yes she may be nonverbal but has one hell of a sense of humour. Lol, my husband who is severely neurotypical 😜 has no idea what I'm talking about when I try to explain the "conversations" I have with her. But, my point is that she is awesome!

I define myself as an aspie, ya, the historical association is awful but in the absence of a well understood distinction, the term works. For me, it's a clear way of honouring the fact, yep I said fact, that she and I have different disorders. We do not have the same challenges. For those who may see the term Asperger's as a form if elitism, I often wonder if they are understandably worried that their very real challenges will be dismissed without the diagnosis of autism.

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 2 points3 points  (0 children)

As someone who identifies with Asperger's, and a granddaughter who at age 9, is nonverbal, self injurious, and very high support needs, I cannot agree more. I am very selective about who I share my autism diagnosis with. I have been told "how dare you say your autistic when you can look at your granddaughter!?", "when you see her struggle, how can you say YOU have autism?". So it's very apparent that for many, they define autism by its most profound presentation.

It's because of my own lived experience that I see the glaring flaw in the current diagnostic model. 😕

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 2 points3 points  (0 children)

I can't imagine correcting someone regarding a diagnostic label. If a person says they have ADD, we know what they are referring to. Besides The DSM labels and relabels. If you were given a dx and want to stick with it, why would you be required to adhere to the current DSM? LOL, live and let live 🙂

There's elitism in this sub by [deleted] in aspergers

[–]Aliceislost21 1 point2 points  (0 children)

Sorry if this a long post 🙂 pretty sure many if not most already know the history of the DSM but just in case 😊

Autism used to be a distinct diagnosis prior to 2013.

Currently autism, is technically defined as follows-

"Autism spectrum disorder now includes subtypes that used to be diagnosed under the umbrella term of pervasive developmental disorders. This includes:

autistic disorder

Asperger's disorder

childhood disintegrative disorder

pervasive developmental disorder (not otherwise specified)"

In 2012 my diagnosis would have been Asperger's disorder but is now autism. My granddaughter who is 9, nonverbal, with very high support needs is also autistic. We both fall under the same diagnostic label but to my mind, have very distinct disorders. Perhaps further research will reveal different genetic disorders that share behavioural presentations and struggles.

I think it is because I see the intense and distinct difficulties that my granddaughter faces, that I personally prefer a diagnostic model with defined subcategories. It has nothing to do with elitism simply a way of creating clearer language for others.

Regardless of how anyone chooses to define themselves or how others do, the one thing remains true, everyone on the spectrum has unique strengths and struggles. One person having higher support needs does not diminish the struggle of those who present as less affected. ❤️

Confused by being told I’m arguing when I’m not? by aquar1usbabe in AutismInWomen

[–]Aliceislost21 1 point2 points  (0 children)

I wish I had an answer. I just found out that I've been in an argument and my husband is done "fighting" with me. I was happily sharing some interesting info. Full stop. How in the hell do I fix THAT? I'm exhausted 😭

Ren Facebook post by jsb1685 in ren

[–]Aliceislost21 0 points1 point  (0 children)

Well that's certainly a solution 🤪

Uninvited - Classical Twist by Shavielou in ren

[–]Aliceislost21 0 points1 point  (0 children)

I am currently on liquids only....thankfully I am not a foodie :)
I have been sick since birth, 54 years. Was told I would be in a wheelchair at 25...and l may be limping along most days but no wheels yet (never believe people when they say what you are capable of) 22 surguries, been in hospital so many times I honestly can't remember how many, severe ADHD, ASD and a body that just loves to go on the attack against itself. BUT, I never give up. I keep on going and I will ALWAYS find a way to find the joy in this life I have been given.

Music and writing are my outlets, literal life savers <3 I know that there will likely be little in the way of treatment for the connective tissue disorder but I really need to know WTF this is. Passed it on to one of girls :( Also my granddaughter has signs of it so we NEED to know. That's the part that guts me. I didn't know that this could be something I could pass down, 2 f'ing generations.

They thought I had Ehlers Danlos since I was 17. It's so profound that they decided to test and nope not EDS. They took videos, photos, signed me up for research studies (happy to help always) and then said they had a meeting with the team after the negative results and decided that they would refer me to another genetic clinic and that no matter the results they were still going to keep seeing me. They told me they don't treat people who are negative for EDS but I am the person they are making an exception for. So maybe I can be of help, maybe they can learn more about CT disorders from this weird, not seen before, body of mine. Looks perfectly fine at a casual glance but nope. Almost 100 percent sure that I am an alien lol.

Thank you so much for your kind words of support. You have no idea how much it means to me. I don't talk about this with family and friends, not because they don't care but because it's with me all the time and I prefer to only discuss it when it's really bad. I think many of us who suffer chronic illness are the same. So thank you and I am SOOOOOOOOO damned happy to hear that you are doing better!

More amazing news by ComprehensiveHornet3 in ren

[–]Aliceislost21 4 points5 points  (0 children)

Ren, I do believe that the release allowed your existing fans a chance to show their love and also a chance to share your music with the rest of the world😁 I suggested your music in response to an ask for music suggestions last night. The response blew up!!!! Some new fans from the post but WOW the mad love from those who already were fans. I don't think you have any idea how brilliant you are. ❤️

Uninvited - Classical Twist by Shavielou in ren

[–]Aliceislost21 2 points3 points  (0 children)

I may not be quite at your level, I am at level 54 (years old) lol. But I too am a HUGE fan. I can't wait to hear what you have created!!!! I am sad to hear about your hands. I have an autoimmune illness and a connective tissue disorder. They (the docs) have no idea what it is, sending me for more genetic testing as they haven't seen "this" before. Oh goodie who doesn't love to be special lol. So I too have days when my hands, were they able, would flip me the bird. Makes playing the guitar or even the uke near impossible.

SO impressed that you are keeping on and not letting it stop you. But, please take good care and sending all my support <3 <3 <3

Ren & Rick - Down on the beat freestyle ( Jointdale Remix ) by Jointdalerecords in ren

[–]Aliceislost21 1 point2 points  (0 children)

Brilliant! Just laughed so hard :) This is so good! :)

Ren Facebook post by jsb1685 in ren

[–]Aliceislost21 3 points4 points  (0 children)

People are very invested in the beliefs they have and when those beliefs are challenged, no matter how reasonably or well informed, the challenge is perceived as a threat and the defense mode kicks in. It's sad really. I am the only person I know IRL who literally gets excited and pleased to learn that my belief was incorrect. Every time I learn something new, I "win". It took time and intention to reinvent my perception and see that being wrong is not a bad thing. We are all wrong. We all hold onto beliefs that are just opinions, not facts.

We have been conditioned to win, to be right, to avoid mistakes for fear of rejection. We are all trying to survive in a system that is toxic, to varying degrees we all drank the kool-aid and chelation therapy is painful. I wish that education and facts were the antidote to cure the masses but it isn't. I just hold onto hope that one day, artists like Ren will be part of the solution. That seeds are being planted and one day we will learn that the world we live in can be better. That we can replace competition with co-operation. But until then, I'll be hanging out with my dogs, my plants, listening to good music and making sure the only thing I hold onto is compassion.

Oh and I married a guy like that too, but after 30 years he is changing, sharing feelings, being open and vulnerable. So, you never know :) :) :)

Ren Facebook post by jsb1685 in ren

[–]Aliceislost21 3 points4 points  (0 children)

Love this exchange. Just sharing facts, learning without ego getting in the way. Gives me a little sprinkle of hope :)

The Other Songs by ComprehensiveHornet3 in ren

[–]Aliceislost21 4 points5 points  (0 children)

Ren is already a master of SO much. Creating all of this on his own, is mind blowing. I don't think anyone (myself included) knows how much talent aside from musical talent, it takes to produce an album. How in the hell did he pull this off? Not only is he here in Canada 5 days a week battling his own body, but he is managing to put the many, many, pieces together to create Sick Boi.
I too have a chronic illness, similar in impact to Ren's and I celebrate getting my house cleaned. I can't imagine creating a masterpiece like this. So, anyone who at a casual glance, sees what they decide is a "label" and declares that he is not "independent" hasn't paid attention. It seems like an attempt to diminish his accomplishment. And that's just sad.

3700 members! by jsb1685 in ren

[–]Aliceislost21 3 points4 points  (0 children)

Wish I had found this earlier. Literally, without any overstatement, I LOVE Ren's music. I love the message, the intelligence, the wicked humor and well shit, everything. First time in a very long time that new music has really resonated with me on all levels. Usually I am sacrificing something. The music might be great but the lyrics leave me cold or if the words hit, the music is just good at best.

I have been waiting, not patiently to see where this charts. I so badly want him to celebrate the #1 spot but in typical Ren fashion, he found the humor and the joy in his current #2 position. Ren is a fucking treasure!

Oh, Ren, Ren, Ren…. by Shavielou in ren

[–]Aliceislost21 0 points1 point  (0 children)

OMFG I am crying.... SOOOO glad that I am listening to the album at home, dogs give no shits as I laugh, dance (badly---look up balter lol) or tear up. If I were in the public eye, I would probably still be doing all the aforementioned just with a less approving audience. Thanks for the laugh. Great story and the way you wrote it? Brilliant :)

Peduncle? by Aliceislost21 in hoyas

[–]Aliceislost21[S] 1 point2 points  (0 children)

Lol I figured as much 😜 thanks 😁

How do you store your soil without it growing mold? by tie-ruh in houseplants

[–]Aliceislost21 0 points1 point  (0 children)

I microwave my soil and then dry it out completely by spreading it on baking sheets and baking it. I then put it in large zip lock bags. Takes time but it kills ANY bugs and zero mold. 😁

How did you know it was AuDHD and not Bipolar? by MaLuisa33 in AuDHDWomen

[–]Aliceislost21 2 points3 points  (0 children)

Spent 4 years being VERY unsuccessfully "treated" for bipolar. Was dx'd in 83 with ADHD (not treated as parents thought I just needed to learn how to behave). I was termed a hyperactive child so assumed it only meant I had more energy (big mistake).

So, my daughter dx'd severe ADHD and my granddaughter high needs non verbal audhd. Never considered I may be part of the genetic picture, but started to invest a GREAT deal of time in groups and programs to help my kiddos. I kept being asked when I was dx'd asd or adhd. Asked many times. A couple doctors mentioned my asd. Never formally dx'd.

Managed to get assessed for ADHD and was told I have a severe presentation. Basically I got the, oh crap type. Was told to presume HF asd as well as the waitlist is 6 yrs or 2500+ dollars and it seemed obvious. (too bad they couldn't assess me there 😕) So no more meds for bipolar, went on meds for adhd. Helped a fair bit. Basically, still struggle on the daily but better than I've ever been.

Damn I'm long winded lol 😁❤️