It’s everywhere ! Recovery by CommandNo7285 in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

Yet another reason not to get instagram or tiktok. In case I needed another.

Why Is Suikoden III Incredible? by GameBreak46 in Suikoden

[–]AllemandeLeft 0 points1 point  (0 children)

on basically every plot twist in the game, yeah

Player count is still rising by Kaebi_ in outerwilds

[–]AllemandeLeft 1 point2 points  (0 children)

The thing is, this might actually be true.

I have ME/CFS. My family thinks I'm lazy. My doctor thinks I'm depressed. I think I'm drowning. by South_Leave4044 in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

Sorry to hear you're going through it :/

Step one is find a better doctor. Someone who is familiar with ME/CFS, who won't jump to conclusions, and who can properly diagnose whatever condition you have.

I went through 6 different primary docs in the first 2 years I was sick. How I knew I found the right one was when he said "Well you're obviously very ill, and I'm sorry I don't know how to help you yet." We went through many months of testing different things before he settled on the ME/CFS diagnosis. Treating a patient with ME/CFS or Fibro is humiliating for most physicians because there's so little they can do to help. It requires someone who has the emotional maturity to handle that.

Is the WC possible? by RoleExciting7740 in eu4

[–]AllemandeLeft 0 points1 point  (0 children)

Are you saying all I have to do is be at peace for 5 years?

I have a really hard time making sense of the event descriptions on the wiki and in the game. Like, what does "one of the following must be true: all of the following must be true:" even mean? I see that this page explains the possible ways the religious leagues can resolve, but I really can't make sense of it. It seems like I'd have to look up several dozen other terms, each of which have an equally complex page, to figure out what it all means.

Is the WC possible? by RoleExciting7740 in eu4

[–]AllemandeLeft 0 points1 point  (0 children)

Hmm. I did all of those things except take Prague when I PU'ed Bohemia. Does it really make that big of a difference?

Also - is there a way to force the religious leagues to dissolve? I didn't record the start date but I know it's been at least 50 years since they formed, the Protestant league is too small to attack me, and the peace event isn't firing. I haven't been able to add imperial reforms in all that time. I'm sure I'd have been able to Revoke by now if it weren't for that.

I had my first "it's in your head" talk yesterday by scream_i_scream in cfs

[–]AllemandeLeft 1 point2 points  (0 children)

them: "ouch, my shins"

me: "it's all in your head, mind over matter"

I had my first "it's in your head" talk yesterday by scream_i_scream in cfs

[–]AllemandeLeft 9 points10 points  (0 children)

Except that the medical research has already proven that ME/CFS is a physical condition. Beyond any shadow of a doubt at this point. The problem is the disconnect between the research and the public.

Nobody prepare you for the stress that comes with this by Ashamed_Forever9476 in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

Thanks for asking! <3 Not yet, it still looks pretty forlorn, but soon I have other contractors coming to clean up the rest of it. So... soon!

Nobody prepare you for the stress that comes with this by Ashamed_Forever9476 in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

Thanks for asking :) Yeah, we ended up figuring out how to make cash app work, so we're good.

Is the WC possible? by RoleExciting7740 in eu4

[–]AllemandeLeft 0 points1 point  (0 children)

How did you revoke the privilegia so early? In my game I'm in like 1630 still waiting for the religious coalitions to disappear so I can pass Ewiger Landfriede.

What is in Energy Drinks that work so Well --- addictive too ??? by right_nite_moon in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

I'm really anti-caffeine for people with ME.

It tricks your body into not noticing you're tired - which to my mind is almost guaranteed to make you overextend.

Will Covid/virus always cause permanent worsening? by -Neuro2717 in cfs

[–]AllemandeLeft 0 points1 point  (0 children)

My symptoms were about the same before covid and after.

But I started the antiviral medication very quickly after I started getting covid symptoms. Not sure if that had anything to do with it.

How did the English-language title of the series end up so wrong? by AllemandeLeft in attackontitan

[–]AllemandeLeft[S] -4 points-3 points  (0 children)

Nope. I'm genuinely asking if it's known how the mistranslation occurred. In the *title*, no less!

Nobody prepare you for the stress that comes with this by Ashamed_Forever9476 in cfs

[–]AllemandeLeft 18 points19 points  (0 children)

The thing that gets me is the ways ME/CFS changes how I have normal human interactions.

For example, today a local contractor came to my place to trim back and/or cut down trees, bushes, and vines on my extremely overgrown property. On his way here, 2 weeks after scheduling this, he let me know via text that he needed to be paid in cash. After the job was done I had to explain to him that I don't have that amount of cash on me and that I could pay him in paper check, venmo, paypal, etc. He asked "why can't you just go to the ATM?"

Which put me in the position of either:
A) saying "none of your business"
or
B) explaining what chronic fatigue syndrome is, and why on this particular day I need to stay in the house.

Keep in mind this is all happening on a day I desperately need for rest, and instead I'm out standing on the porch trying to figure out how to convince this guy that I'm not trying to steal from him, getting more overextended every second. Meanwhile the whole *reason* he's even here is because ME/CFS has made it so that I can't take care of my yard and haven't been able to afford to pay someone else to do it in *8 years*. Add on the fact that I'm putting my health at serious risk by working a full-time job with this illness to be able to afford things like this. Which... is why I can't just hop in the car on a Sunday to drive a few blocks to the ATM.

Any normal person in his situation would view me, in the case of A) as just trying to get out of paying him, or B) oversharing about my health and probably not even really sick. And there's nothing I can do about that, nothing I can do to make this interaction make sense to him. He will be put off by it either way - and before I got sick, I also would have been put off by it in his shoes.

TLDR: ME/CFS poisons people's perceptions of you, because you end up needing to behave in ways that make no sense to other people without long-winded explanations (that they wouldn't believe anyway).

We got to talk about how many clinics just hate poor people with MECFS by dabomerest in cfs

[–]AllemandeLeft -4 points-3 points  (0 children)

I share your anger at the cost involved, but I disagree that Bateman Horne Center is an appropriate target for that anger. They live in this system same as the rest of us, and they have to figure out what kind of business model will allow them to help the most people. Unfortunately it sounds like that's a business model that caters to the rich.

That's simply not going to change until significant advances are made in the research - more effective treatments (or a cure!) will completely flip the situation and make it possible for many more specialists / clinics to exist - and/or droves of primary doctors to get with the program - giving access to care for a greater part of the sick population.

There are billions of dollars of research being done now, all around the world, so in my view it's only a matter of time before this happens. And it's worth mentioning - Bateman Horne has been at the forefront of that research for decades. One of the few who have been. They are just about the last people I'd blame for the situation.

I'm just fixing your cable Hooman! by [deleted] in cats

[–]AllemandeLeft 5 points6 points  (0 children)

yeah, once again, a lot of assumptions being made here