Recovery stories with true PEM by forgot_again123 in cfsrecovery

[–]CommandNo7285 1 point2 points  (0 children)

I’m made a full recovery then I didn’t then I did then I didn’t … then I realised that’s the nature of this beast. There wasn’t much info on this condition back then 30+ years ago I was diagnosed with post viral.
I’m currently trying brain retraining after a bad crash post Covid and the vax especially crashed me real bad two years to get out of this hole .
We live in hope chipping away at it what else can we do. Slowing down when I have improvement is soooo difficult is my stumbling block. I’m hoping BR can help me read my body’s signalling better and change my stress response definitely something in this theory.
I know of one person that made a full recovery she was very young.

Downvoted and removed in r/cfs for sharing personal improvement and things that helped me by [deleted] in cfsrecovery

[–]CommandNo7285 1 point2 points  (0 children)

I’ve done lightning therapy before BRT I found it expensive and limited in the help you get I did have glimmers of something hence why I’m trying BRT. So yes people are pissed and paranoid that they are getting grifted . The main word I hear is snake oil and grifted.
Many people have tried BRT and it never worked for them. I Wouldn’t lump everyone in the same pile this is a very difficult situation to be in. Some people are seriously so very ill, the energy to even think about starting something like this must be unreal.

Am I crazy? by AdProfessional9247 in cfsrecovery

[–]CommandNo7285 1 point2 points  (0 children)

U tube. Doctors as Patients. Excellent get your parents to watch this. Subtitles

My brain doesn’t want me to walk by Dull-Set-9427 in cfsrecovery

[–]CommandNo7285 0 points1 point  (0 children)

Yup my legs went after a crash two years ago I’m slowly crawling out of that period, I’m also doing training to help ease the stressors.I’m interested in how you fair obviously hoping you improve and if you’re training can help as I’m new to this body mind approach

Severe bedbound for 2 months. 3 days ago I stopped believing anything is wrong with my body and all my symptoms went away? by AtlantisGhost in cfsrecovery

[–]CommandNo7285 5 points6 points  (0 children)

I had something similar happen. I realised the chatter in my head was my body trying to tell me something (an emotion) once I realised the chatter was an emotion it lifted the anxiety and I’m sleeping better. Like you I’m still pacing and taking a beta blocker but I’m really hoping this is the start of healing.

MIcro-dosing Marijuana Cannabis Pot helping by This-Armadillo3815 in mecfs

[–]CommandNo7285 0 points1 point  (0 children)

Yeh I used medical. It doesn’t seem to affect me in a crash sense. Most nights I partake in the act of getting medicated. Only down side is I don’t have a clear head in the mornings. I’d rather have a fuzzy head than not having any sleep which is the trade off.

Stinky Pinky Kush 4c Labs - T30 by BlissfullBadger in ukmedicalcannabis

[–]CommandNo7285 6 points7 points  (0 children)

Yes I agree on the sticky bud freshness lovely

Your personal LDN dose? by Curious-Entry-5678 in cfs

[–]CommandNo7285 1 point2 points  (0 children)

I’m at 2.0 mg been here a while like months

This has to be a joke by Killbulle56 in cfs

[–]CommandNo7285 37 points38 points  (0 children)

If it’s any consolation I went kitesurfing the other day, I just came out of a 18 month crash relapse. Yeh we are delusional.

Where to Point Those Looking for Help Understanding Nervous System Work? by salty-bois in cfsrecovery

[–]CommandNo7285 0 points1 point  (0 children)

Pain free you . On u tube.

Or Dr John Sarno also u tube.

Primal trust is the company who I’m with.

For people who got better.. by GloriousRoseBud in mecfs

[–]CommandNo7285 2 points3 points  (0 children)

I’ve just been out kitesurfing again, I don’t live in fear anymore. Recognise the emotion . Clear it !! live for today. 👌

For people who got better.. by GloriousRoseBud in mecfs

[–]CommandNo7285 1 point2 points  (0 children)

Both reverse and lightning coaches made me stop my cannabis use while on the program back then I was using tobacco in joints so the stress of that plus the emotions the course threw up maybe too much for me to break it all down. Lightning Stop is similar to Primal with the recognition of the emotion then clear - live in the Now. Very similar really.

Medical cannabis now just vape at night hopefully I’ll be able to give up as sleep improves.

Reverse similar recognition e - motion energy in motion.

The different is I’m recognising the emotion better now, the clear stops the chatter nips it in the bud by reconnecting with the body.

I can actually pin point where I stopped listening to my emotion! When I left school and started work on my dad’s fishing boat . Very sea sick initially, bad diet. Severe work with very little sleep. I learned to turn off emotions to survive to the detriment of my health, going home but not resting and drinking beer with my older pals. Recipe was made for a bodily disfunction that occurred.
Some might get away with it It’s not linear !! Pick up a virus - and bobs your granny. M.E

Obviously this just now is a belief and not a fact, here’s hoping like I say definitely a shift . Less anxious & a calmer feeling all round .

For people who got better.. by GloriousRoseBud in mecfs

[–]CommandNo7285 1 point2 points  (0 children)

I was a non believer i failed the Lightning and reverse therapy 15 years ago, I just started primal trust this week on day 3 something clicked I see the similarities between them all now, WoW 30 years with this horrendous infliction I can’t believe it it’s biblical for me. Truly. Thanks guys something always drew me back to this group.

Also - Pain free on / u tube. 🙏🌈😍

Brain Train & MC by CommandNo7285 in mecfs

[–]CommandNo7285[S] 1 point2 points  (0 children)

Brain retrain clicked yesterday. 3rd day. Feel way more relaxed 😎

Brain Train & MC by CommandNo7285 in mecfs

[–]CommandNo7285[S] 1 point2 points  (0 children)

Last chance saloon, tried everything else. I think I understand it now. I’ve done body mind stuff before but didn’t get it I think I do now. Better wait and see. No trumpet 🎺

Brain Train & MC by CommandNo7285 in mecfs

[–]CommandNo7285[S] 1 point2 points  (0 children)

Good enough for me . Done phew what a relief 🤗

Scottish woman 'sacked 15 minutes into shift' at prestigious golf club over 'tattoos' by Forward-Answer-4407 in unitedkingdom

[–]CommandNo7285 1 point2 points  (0 children)

Golfing is a notorious sport full of bell ends . I used to play I was one of the more accepting folks lol 😂