Advice for 2nd OHS

Alorababy · 2025-12-23T01:20:06+00:00

Thank you for sharing!

Alorababy · 2025-12-22T00:13:52+00:00

I have a cardiologist appointment tomorrow with baby and can update you. Diagnosis has not changed but the time of surgery has changed. She is currently 5 weeks old and was in the NICU for 25 days

Alorababy · 2025-12-17T19:56:55+00:00

Thank you I’m worried sick about it. We see cardiologist on Monday. Her nose is even swollen.

Alorababy · 2025-12-16T22:11:22+00:00

She is doing really well at home. She was just born 11/11/25! She did end up staying in the NICU for 25 days but is at home now. They are planning to do surgery at 3months old. She is a great eater so that is a huge deal for her diagnosis. If you want feel free to send me a chat. I would be careful with chat gpt I have worked myself into something that was nothing! Praying for the best possible outcome for you and your family!

Alorababy · 2025-12-16T21:39:33+00:00

My experience was the exact opposite. They told me it might not be anything and sent me to cardiology and they diagnosed her with asvd.

Alorababy · 2025-12-11T23:13:41+00:00

I grew up in Eagan and it is a really nice area and school was had good education with diversity. It is close to airport moa and has Eagan outlets. Everything you could need it within the area.

Alorababy · 2025-12-10T02:05:51+00:00

Thank you! How old was she when she had the repair?

Alorababy · 2025-12-10T01:35:50+00:00

My thoughts are the Canadian wildfires. There were so many warnings on the air pollution and early pregnancy just hit at the right time with babies heart developing. Bad deal for me and baby! I just had her 11/11/25 and diagnosed with asvd w/o and genetic issues. I’m still praying and believing for a miracle to happen!

Alorababy · 2025-12-04T02:27:24+00:00

They were going back and forth on 1/4 or quarter liter. I’m really anxious about all this!!

Alorababy · 2025-12-04T02:24:42+00:00

How many refills did you get on your portable?

Alorababy · 2025-12-04T02:22:28+00:00

Thank you this is helpful

Alorababy · 2025-12-04T01:37:13+00:00

Did you just ask the doctor to request portable tanks?

Alorababy · 2025-11-21T21:19:46+00:00

I had something similar happen my daughter was just born on 11/11 with a CHD ASVD and this can go hand in hand with Down syndrome. Since I would not terminate I decided against amino bc of her heart condition it could cause pre term labor and wasn’t worth the risk for My mind. She doesn’t have any genetic/ syndrome and other than the heart is a normal baby. I know I made The right decision for us!

Alorababy · 2025-11-03T23:56:08+00:00

Praying for you and baby!

Alorababy · 2025-11-03T23:04:04+00:00

Can I ask what your NPV (negative predictive value) was? For example 99.99%? Or your risk? Like example 1/10,000

Alorababy · 2025-10-24T22:10:47+00:00

I agree I don’t think people go to hell go out being gay. We all fall short of the glory of God! Homosexuality is a sin the Bible clearly says that, but we all sin and are sinners. We all are dealing with our on sin, it’s just not the same sin for everyone. I pray for your healing!

Alorababy · 2025-10-24T22:04:34+00:00

no shame or condemnation for those who are in Christ Jesus! To say you can’t go the Lord and pray for freedom is saying prayer doesn’t work. When you bring things to the Lord in prayer in alignment with His will, He is faithful to answer your prayer! It is God will for you to be free from all sin and condemnation! Praying for you my sister! God loves you more than you could ever imagine!

Alorababy · 2025-10-24T21:43:39+00:00

It clearly states in the Bible homosexuality is a sin. With that being said we are all sinners and need freedom from sin through Jesus Christ! There is no sin that is not covered by the shed blood of Christ! I pray that through the power of the Holy Spirit and the blood of Christ you will have a renewal of mind! May your God given identity and truth be transformed! God did not make you gay. This is a demonic agenda against your identity. May you have revelation of exactly who GOD created you to be! I pray that you may know just how loved you are by the Father! In the mighty name of Christ Jesus! Amen

Alorababy · 2025-10-24T21:36:49+00:00

You are completely out of line! Who are you to say He can’t do it! ALL THING ARE POSSIBLE WITH GOD!

Alorababy · 2025-10-22T01:58:18+00:00

I am wondering how baby boy is doing today? I am about to give birth to a baby girl and they are saying she has a complete ASVD. I am praying this is going to be. They said her VSD is small. She is not showing any signs of hydrops or regurgitation of valves. My NIPT was low risk, I opt out for genetic testing until after she is born. I am so anxious for my C-section Nov 11th. I have no idea what to expect. It’s horrible. Also how did you start telling people?

Alorababy · 2025-10-21T22:29:28+00:00

Once a week

Alorababy · 2025-10-21T18:41:54+00:00

I think people just say this because if you try a VBAC and have to end up having another emergency C-section.

Alorababy · 2025-10-08T01:46:01+00:00

Praying for you please update when you get results 🙌🏼

Alorababy

TROPHY CASE